TEDWomen 2015
Alix Generous: How I learned to communicate my inner life with Asperger's
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Alix Generous is a young woman with a million and one ideas -- she's done award-winning science, helped develop new technology and tells a darn good joke (you'll see). She has Asperger's, a form of autistic spectrum disorder that can impair the basic social skills required for communication, and she's worked hard for years to learn how to share her thoughts with the world. In this funny, personal talk, she shares her story -- and her vision for tools to help more people communicate their big ideas.
Alix Generous - Advocate
Alix Generous is a college student and biology researcher with Asperger syndrome. She stresses the importance of building accepting environments for all kinds of minds. Full bio
Alix Generous is a college student and biology researcher with Asperger syndrome. She stresses the importance of building accepting environments for all kinds of minds. Full bio
Double-click the English transcript below to play the video.
00:12
Today, I want to talk to you about dreams.
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Avui, els vull parlar de somnis.
00:15
I have been a lucid dreamer my whole life,
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He somiat desperta tota la vida,
00:18
and it's cooler than in the movies.
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i és molt millor que a les pel·lícules.
00:20
(Laughter)
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(Riures)
00:22
Beyond flying, breathing fire,
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A més de volar, escopir foc,
00:25
and making hot men
spontaneously appear ...
spontaneously appear ...
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i fer que apareguin
del no res homes atractius
del no res homes atractius
00:28
(Laughter)
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(Riures)
00:30
I can do things like read and write music.
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puc fer coses com
llegir i compondre música.
llegir i compondre música.
00:33
Fun fact is that I wrote
my personal statement to college
my personal statement to college
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El més curiós és que vaig escriure la
sol·licitud per a entrar a la universitat
sol·licitud per a entrar a la universitat
00:36
in a dream.
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en un somni.
00:38
And I did accepted. So, yeah.
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I m'hi van acceptar. Així que...
00:41
I am a very visual thinker.
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Penso visualment.
00:44
I think in pictures, not words.
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Penso amb imatges, no amb paraules.
00:47
To me, words are more like
instincts and language.
instincts and language.
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Per a mi, les paraules són
més aviat instints i llenguatge.
més aviat instints i llenguatge.
00:51
There are many people like me;
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Hi ha moltes persones com jo;
00:53
Nikola Tesla, for example,
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Nikola Tesla, per exemple,
00:56
who could visualize, design,
test, and troubleshoot everything --
test, and troubleshoot everything --
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qui podia visualitzar, dissenyar,
provar i inclús solucionar
provar i inclús solucionar
01:01
all of his inventions --
in his mind, accurately.
in his mind, accurately.
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tots els seus invents,
a la seva ment, i en detall.
a la seva ment, i en detall.
01:06
Language is kind of exclusive
to our species, anyway.
to our species, anyway.
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De totes maneres, el llenguatge és
exclusiu de les nostres espècies.
exclusiu de les nostres espècies.
01:09
I am a bit more primitive,
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Jo sóc una mica més primitiva,
01:12
like a beta version of Google Translate.
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com la versió beta de Google Traductor.
01:14
(Laughter)
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(Riures)
01:18
My brain has the ability
to hyper-focus on things that interest me.
to hyper-focus on things that interest me.
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El meu cervell es concentra
a fons en les coses que m'interessen.
a fons en les coses que m'interessen.
Per exemple, un cop vaig
tenir un afer amb el càlcul
tenir un afer amb el càlcul
01:23
For example, once
I had an affair with calculus
I had an affair with calculus
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01:25
that lasted longer
than some celebrity marriages.
than some celebrity marriages.
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que va durar més que el
matrimoni d'alguns famosos.
matrimoni d'alguns famosos.
01:28
(Laughter)
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(Riures)
Encara hi ha més coses
poc usuals en mi.
poc usuals en mi.
01:32
There are some other
unusual things about me.
unusual things about me.
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01:36
You may have noticed
that I don't have much inflection
that I don't have much inflection
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Potser heu notat
que no tinc gaire bona dicció.
01:39
in my voice.
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01:40
That's why people
often confuse me with a GPS.
often confuse me with a GPS.
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Per això la gent em sol confondre
amb el GPS.
amb el GPS.
01:43
(Laughter)
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(Riures)
La comunicació bàsica
pot convertir-se en un repte
pot convertir-se en un repte
01:48
This can make basic communication
a challenge, unless you need directions.
a challenge, unless you need directions.
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a no ser que
vulguis arribar a una adreça.
vulguis arribar a una adreça.
01:52
(Laughter)
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(Riures i aplaudiments)
01:56
Thank you.
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Gràcies.
01:57
(Applause)
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02:02
A few years ago, when I started
doing presentations,
doing presentations,
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Fa uns anys, quan vaig
començar a parlar en públic,
començar a parlar en públic,
02:05
I went to get head shots done
for the first time.
for the first time.
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vaig anar a fer-me fotos per primer cop.
02:09
The photographer told me to look flirty.
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El fotògraf em va dir que fingís
una mirada provocativa.
una mirada provocativa.
02:12
(Laughter)
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(Riures)
02:14
And I had no idea
what she was talking about.
what she was talking about.
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No tenia ni idea de
què volia dir allò.
què volia dir allò.
(Riures)
02:17
(Laughter)
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02:18
She said, "Do that thing,
you know, with your eyes,
you know, with your eyes,
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Em va dir: "Fes això,
ja saps, amb els ulls,
ja saps, amb els ulls,
com quan intentes seduir
els nois".
els nois".
02:21
when you're flirting with guys."
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02:23
"What thing?" I asked.
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"Que faci què?"
Li vaig preguntar.
Li vaig preguntar.
"Ja saps, pestanyeja".
02:25
"You know, squint."
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I ho vaig intentar, de debò.
02:27
And so I tried, really.
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Em va sortir una cosa així.
02:29
It looked something like this.
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02:31
(Laughter)
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(Riures)
02:33
I looked like I was searching for Waldo.
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Semblava que estigués
buscant a Wally
buscant a Wally
02:36
(Laughter)
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(Riures)
02:40
There's a reason for this,
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I, hi ha una explicació,
02:42
as there is a reason that Waldo is hiding.
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com també hi ha una explicació
de per què en Wally s'amaga.
de per què en Wally s'amaga.
02:44
(Laughter)
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(Riures)
02:52
I have Asperger's,
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Tinc Asperger,
02:54
a high-functioning form of autism
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una variant avançada d'autisme
02:56
that impairs the basic social skills
one is expected to display.
one is expected to display.
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que perjudica les habilitats socials
bàsiques que s'esperen de nosaltres.
bàsiques que s'esperen de nosaltres.
03:02
It's made life difficult in many ways,
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Això m'ha complicat la vida
en molts aspectes
en molts aspectes
03:05
and growing up,
I struggled to fit in socially.
I struggled to fit in socially.
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i mentre creixia, vaig lluitar
per a encaixar amb la societat.
per a encaixar amb la societat.
Els meus amics explicaven acudits,
però jo no els entenia.
però jo no els entenia.
03:09
My friends would tell jokes,
but I didn't understand them.
but I didn't understand them.
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03:14
My personal heroes were George Carlin
and Stephen Colbert --
and Stephen Colbert --
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Els meus herois van ser George Carlin
i Stephen Colbert,
i Stephen Colbert,
ells em van fer descobrir
el sentit de l'humor.
el sentit de l'humor.
03:19
and they taught me humor.
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03:22
My personality switched
from being shy and awkward
from being shy and awkward
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La meva personalitat va canviar
i vaig passar de ser tímida i maldestra
i vaig passar de ser tímida i maldestra
03:26
to being defiant and cursing out a storm.
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a ser desafiant i malparlada
com un camioner.
com un camioner.
03:30
Needless to say,
I did not have many friends.
I did not have many friends.
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No cal dir que
no tenia gaires amics.
no tenia gaires amics.
Era hipersensible a les textures.
03:33
I was also hypersensitive to texture.
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03:36
The feel of water on my skin
was like pins and needles,
was like pins and needles,
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L'aigua sobre la pell
em provocava una mena de formigueig
em provocava una mena de formigueig
03:40
and so for years, I refused to shower.
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i per això, durant molts anys,
em vaig negar a dutxar-me.
em vaig negar a dutxar-me.
03:43
I can assure you that my hygiene routine
is up to standards now, though.
is up to standards now, though.
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Però els asseguro que ara
tinc un nivell d'higiene normal.
tinc un nivell d'higiene normal.
(Riures)
03:47
(Laughter)
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03:50
I had to do a lot to get here,
and my parents --
and my parents --
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He hagut de treballar molt per a arribar
fins aquí i els meus pares també.
fins aquí i els meus pares també.
03:54
things kind of got out of control
when I was sexually assaulted by a peer,
when I was sexually assaulted by a peer,
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Les coses es van descontrolar
quan un company em va agredir sexualment,
quan un company em va agredir sexualment,
03:59
and on top of everything,
it made a difficult situation worse.
it made a difficult situation worse.
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així doncs, la situació que ja
era difícil, va empitjorar més.
era difícil, va empitjorar més.
04:05
And I had to travel 2,000 miles
across the country to get treatment,
across the country to get treatment,
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Vaig viatjar més de 3.000 km per a
travessar el país i rebre un tractament
travessar el país i rebre un tractament
i pocs dies després que em receptessin
un nou medicament,
un nou medicament,
04:10
but within days of them prescribing
a new medication,
a new medication,
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la meva vida es va convertir
en un episodi de Walking Dead.
en un episodi de Walking Dead.
04:14
my life turned into an episode
of the Walking Dead.
of the Walking Dead.
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04:18
I became paranoid,
and began to hallucinate
and began to hallucinate
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Em vaig tornar paranoica i
vaig començar a tenir al·lucinacions,
vaig començar a tenir al·lucinacions,
04:21
that rotting corpses
were coming towards me.
were coming towards me.
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veia cadàvers putrefactes
que se m'apropaven.
que se m'apropaven.
04:24
My family finally rescued me,
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Finalment, la família em va rescatar,
però, en aquelles tres setmanes,
ja havia perdut nou quilos,
ja havia perdut nou quilos,
04:27
but by that time, I had lost 19 pounds
in those three weeks,
in those three weeks,
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patia una anèmia de cavall
04:32
as well as developing severe anemia,
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04:34
and was on the verge of suicide.
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i contemplava la idea de suïcidar-me.
Em van traslladar a un altre centre
de salut on entenien les aversions,
de salut on entenien les aversions,
04:38
I transferred to a new treatment center
that understood my aversions,
that understood my aversions,
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els traumes i l'ansietat social
que patia,
que patia,
04:42
my trauma, and my social anxiety,
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i sabien com tractar-ho. Allà vaig
rebre, per fi, l'ajuda que necessitava.
rebre, per fi, l'ajuda que necessitava.
04:46
and they knew how to treat it,
and I got the help I finally needed.
and I got the help I finally needed.
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04:50
And after 18 months of hard work,
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Després de 18 mesos de
treballar dur,
treballar dur,
04:52
I went on to do incredible things.
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vaig passar a fer coses increïbles.
Un dels punts principals dels Aspergers
és que, moltes vegades,
és que, moltes vegades,
04:56
One of the things with Asperger's
is that oftentimes,
is that oftentimes,
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05:00
these people have
a very complex inner life,
a very complex inner life,
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la persona té una vida
interior molt complexa,
interior molt complexa,
i jo ho sé de primera mà:
tinc una personalitat molt vívida
tinc una personalitat molt vívida
05:02
and I know for myself,
I have a very colorful personality,
I have a very colorful personality,
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tinc un munt d'idees i coses que
em ronden pel cap.
em ronden pel cap.
05:05
rich ideas, and just a lot
going on in my mind.
going on in my mind.
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Però hi ha un buit
entre això que em passa pel cap
entre això que em passa pel cap
05:08
But there's a gap
between where that stands,
between where that stands,
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05:12
and how I communicate it
with the rest of the world.
with the rest of the world.
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i la manera de comunicar-ho
a la resta del món.
a la resta del món.
05:15
And this can make
basic communication a challenge.
basic communication a challenge.
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I això pot convertir una comunicació
bàsica en tot un repte.
bàsica en tot un repte.
Hi havia poques empreses
disposades a contractar-me,
disposades a contractar-me,
05:20
Not many places would hire me,
due to my lack of social skills,
due to my lack of social skills,
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degut a la falta d'habilitats socials
que patia,
que patia,
05:23
which is why I applied to Waffle House.
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per això vaig presentar una
sol·licitud a Waffle House.
sol·licitud a Waffle House.
05:25
(Laughter)
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(Riures)
Waffle House és un restaurant
excepcional obert les 24 hores,
excepcional obert les 24 hores,
05:32
Waffle House is an exceptional
24-hour diner --
24-hour diner --
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(Riures i Aplaudiments)
05:35
(Laughter)
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05:37
(Applause)
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05:41
thank you --
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Gràcies
05:42
where you can order your hash browns
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on pots demanar una varietat de
patates fregides tan extensa
patates fregides tan extensa
05:44
the many ways that someone
would dispose of a human corpse ...
would dispose of a human corpse ...
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com la varietat d'opcions que
tens per a desfer-te d'un cadàver...
tens per a desfer-te d'un cadàver...
05:47
(Laughter)
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(Riures)
05:49
Sliced, diced, peppered, chunked,
topped, capped, and covered.
topped, capped, and covered.
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a rodanxes, a daus, amb sal, a trossos,
recobertes o arrebossades.
recobertes o arrebossades.
05:54
(Laughter)
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(Riures)
Per a seguir amb les
convencions socials
convencions socials
05:56
As social norms would have it,
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05:57
you should only go to Waffle House
at an ungodly hour in the night.
at an ungodly hour in the night.
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només cal anar a Waffle House
a una hora intempestiva de la nit.
a una hora intempestiva de la nit.
06:01
(Laughter)
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(Riures)
06:02
So one time, at 2 am, I was chatting
with a waitress, and I asked her,
with a waitress, and I asked her,
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Un cop, a les dues del matí,
parlant amb una cambrera li pregunto:
parlant amb una cambrera li pregunto:
06:07
"What's the most ridiculous thing
that's happened to you on the job?"
that's happened to you on the job?"
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"Què és el més ridícul que t'ha
passat a la feina?"
passat a la feina?"
06:10
And she told me that one time,
a man walked in completely naked.
a man walked in completely naked.
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I em va dir que un cop va entrar un
home completament nu.
home completament nu.
06:14
(Laughter)
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(Riures)
Li vaig dir: "Genial, apunta'm
al torn de nit!"
al torn de nit!"
06:15
I said, "Great! Sign me up
for the graveyard shift!"
for the graveyard shift!"
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06:18
(Laughter)
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(Riures)
06:20
Needless to say,
Waffle House did not hire me.
Waffle House did not hire me.
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No cal dir que Waffle House
no em va contractar.
no em va contractar.
06:25
So in terms of having Asperger's,
it can be viewed as a disadvantage,
it can be viewed as a disadvantage,
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A vegades, patir
Asperger és un inconvenient,
Asperger és un inconvenient,
06:30
and sometimes it is
a real pain in the butt,
a real pain in the butt,
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o una mena de gra al cul,
06:32
but it's also the opposite.
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però també pot ser un avantatge.
06:34
It's a gift, and it allows me
to think innovatively.
to think innovatively.
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És un regal que em permet
pensar de manera creativa.
pensar de manera creativa.
06:38
At 19, I won a research competition
for my research on coral reefs,
for my research on coral reefs,
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Amb 19 anys vaig guanyar
un concurs d'investigació
un concurs d'investigació
amb un treball sobre
coralls marines,
coralls marines,
06:45
and I ended up speaking
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i vaig arribar a la Convenció sobre
Diversitat Biològica de la ONU
Diversitat Biològica de la ONU
06:47
at the UN Convention
of Biological Diversity,
of Biological Diversity,
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06:49
presenting this research.
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per a presentar aquella investigació.
06:50
(Applause)
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(Aplaudiments)
06:52
Thank you.
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Gràcies.
06:53
(Applause)
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(Aplaudiments)
06:58
And at 22, I'm getting ready
to graduate college,
to graduate college,
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I amb 22 anys, estic a punt
d'acabar la universitat,
d'acabar la universitat,
07:02
and I am a co-founder of a biotech
company called AutismSees.
company called AutismSees.
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també sóc cofundadora d'una empresa
de biotecnologia, l'AutismSees.
de biotecnologia, l'AutismSees.
(Aplaudiments)
07:08
(Applause)
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Gràcies.
07:09
Thank you.
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07:10
(Applause)
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(Aplaudiments)
07:13
But consider what I had to do to get here:
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Però, compilem tot el que he
hagut de fer per a arribar on sóc:
hagut de fer per a arribar on sóc:
07:16
25 therapists, 11 misdiagnoses,
and years of pain and trauma.
and years of pain and trauma.
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25 terapeutes, 11 diagnòstics erronis,
i molts anys de dolor i de traumes.
i molts anys de dolor i de traumes.
07:22
I spent a lot of time thinking
if there's a better way,
if there's a better way,
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Vaig passar molt de temps pensant
si hi havia una forma millor,
si hi havia una forma millor,
07:25
and I think there is:
autism-assistive technology.
autism-assistive technology.
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i crec que és la tecnologia
de recolzament cap a l'autisme.
de recolzament cap a l'autisme.
Aquesta tecnologia podria
dur a terme un paper clau
dur a terme un paper clau
07:30
This technology
could play an integral role
could play an integral role
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07:32
in helping people
with autistic spectrum disorder,
with autistic spectrum disorder,
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per a ajudar les persones amb trastorns
de l'espectre autista o TEA.
de l'espectre autista o TEA.
07:35
or ASD.
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L'aplicació Podio, que
AutismSees ha creat,
AutismSees ha creat,
07:38
The app Podium, released
by my company, AutismSees,
by my company, AutismSees,
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és capaç de realitzar
avaluacions independents
avaluacions independents
07:43
has the ability to independently assess
and help develop communication skills.
and help develop communication skills.
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per a ajudar a desenvolupar
les habilitats de comunicació.
les habilitats de comunicació.
07:49
In addition to this, it tracks
eye contact through camera
eye contact through camera
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A part, fa un seguiment del contacte
visual a través d'una càmera
visual a través d'una càmera
07:53
and simulates a public-speaking
and job-interview experience.
and job-interview experience.
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i pot simular un discurs
o una entrevista de feina.
o una entrevista de feina.
08:00
And so maybe one day,
Waffle House will hire me,
Waffle House will hire me,
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Així que, potser, algun dia
Waffle House em contractarà
Waffle House em contractarà
08:03
after practicing on it some more.
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si practico una mica
amb aquesta aplicació.
amb aquesta aplicació.
08:05
(Laughter)
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(Riures)
08:09
And one of the great things
is that I've used Podium
is that I've used Podium
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I una cosa fascinant, és que
he practicat aquesta xerrada
he practicat aquesta xerrada
08:14
to help me prepare for today,
and it's been a great help.
and it's been a great help.
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amb el Podium, i m'ha
ajudat molt.
ajudat molt.
Però això només és
un exemple.
un exemple.
08:19
But it's more than that.
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08:21
There's more that can be done.
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Podium fa moltes
més coses.
més coses.
Pel que fa a
les persones amb TEA,
les persones amb TEA,
08:24
For people with ASD --
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08:27
it has been speculated
that many innovative scientists,
that many innovative scientists,
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s'especula que hi ha
molts científics innovadors,
molts científics innovadors,
investigadors, artistes
i enginyers que els pateixen,
i enginyers que els pateixen,
08:31
researchers, artists,
and engineers have it;
and engineers have it;
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08:36
like, for example, Emily Dickinson,
Jane Austen, Isaac Newton, and Bill Gates
Jane Austen, Isaac Newton, and Bill Gates
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per exemple, Emily Dickinson,
Jane Austen, Isaac Newton i Bill Gates,
Jane Austen, Isaac Newton i Bill Gates,
08:42
are some examples.
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entre d'altres.
Tots ells s'enfronten al problema
08:44
But the problem that's encountered
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08:46
is that these brilliant ideas
often can't be shared
often can't be shared
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de sovint no poder compartir
les seves brillants idees
les seves brillants idees
quan la comunicació és un obstacle.
08:49
if there are communication roadblocks.
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08:53
And so, many people with autism
are being overlooked every day,
are being overlooked every day,
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Per això, moltes persones amb
autisme són infravalorades dia a dia
autisme són infravalorades dia a dia
08:57
and they're being taken advantage of.
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i no se n'aprofita el potencial.
09:01
So my dream for people with autism
is to change that,
is to change that,
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El meu somni per a les persones
amb autisme és canviar això,
amb autisme és canviar això,
09:08
to remove the roadblocks
that prevent them from succeeding.
that prevent them from succeeding.
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eliminar els obstacles
que els impedeixen tenir èxit.
que els impedeixen tenir èxit.
Una de les raons per les quals
m'encanta somniar desperta
m'encanta somniar desperta
09:11
One of the reasons I love lucid dreaming
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és perquè em permet
ser lliure,
ser lliure,
09:14
is because it allows me to be free,
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sense que em jutgin ni haver de patir
conseqüències socials i físiques.
conseqüències socials i físiques.
09:17
without judgment of social
and physical consequences.
and physical consequences.
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09:21
When I'm flying over scenes
that I create in my mind,
that I create in my mind,
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Quan volo dins la meva ment,
trobo la pau.
09:24
I am at peace.
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09:27
I am free from judgment,
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Ningú em critica
i puc fer el que vull, m'explico?
09:29
and so I can do whatever I want, you know?
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09:31
I'm making out with Brad Pitt,
and Angelina is totally cool with it.
and Angelina is totally cool with it.
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Surto amb en Brad Pitt,
i l'Angelina no s'enfada.
i l'Angelina no s'enfada.
09:36
(Laughter)
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(Riures)
09:39
But the goal of autism-assistive
technology is bigger than that,
technology is bigger than that,
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Però l'objectiu de crear tecnologia
per a recolzar l'autisme
per a recolzar l'autisme
és més gran que això
i més important.
i més important.
09:43
and more important.
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El meu objectiu és canviar l'opinió
de la gent sobre l'autisme
de la gent sobre l'autisme
09:45
My goal is to shift people's perspective
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09:49
of autism and people
with higher-functioning Asperger's
with higher-functioning Asperger's
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i de la gent que pateix
formes avançades d'Asperger
formes avançades d'Asperger
perquè aquesta gent
pot fer moltes coses.
pot fer moltes coses.
09:54
because there is a lot they can do.
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09:58
I mean, look at
Temple Grandin, for example.
Temple Grandin, for example.
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Mireu què va fer la Temple Grandin,
per exemple.
per exemple.
10:02
And by doing so, we allow people
to share their talents with this world
to share their talents with this world
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Fent això, ajudem la gent a
compartir el seu talent amb el món
compartir el seu talent amb el món
i, així, millorar el planeta.
10:07
and move this world forward.
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10:09
In addition, we give them the courage
to pursue their dreams
to pursue their dreams
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A més, nosaltres els encoratgem a
perseguir els seus somnis,
perseguir els seus somnis,
10:12
in the real world, in real time.
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al món real, en temps real.
10:15
Thank you.
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Gràcies.
10:16
(Applause)
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(Aplaudiments)
Gràcies.
(Aplaudiments)
10:19
Thank you.
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10:21
(Applause)
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ABOUT THE SPEAKER
Alix Generous - AdvocateAlix Generous is a college student and biology researcher with Asperger syndrome. She stresses the importance of building accepting environments for all kinds of minds.
Why you should listen
Alix Generous has Asperger syndrome, but was misdiagnosed for years. A student and researcher who is passionate about molecular biology and neuroscience, she encourages people like her to share their intelligence and insights. She is a co-owner of the startup AutismSees, which develops technology tools to help all kinds of people give presentations.
At 19, Generous won first place in a nationwide competition for her work in quorum sensing and coral reefs. Her paper titled "Environmental Threats on the Symbiotic Relationship of Coral Reefs and Quorum Sensing," was published in Consilience. In November 2013, she was a youth delegate for the UN Convention of Climate Change (COP19), where she negotiated technology transfers and issues of medical importance. She has assisted neuroscience researchers at the Medical University of South Carolina, Tufts University School of Medicine, and the University of Vermont.
Alix Generous | Speaker | TED.com