TEDWomen 2015
Alix Generous: How I learned to communicate my inner life with Asperger's
Alix Generous: Kako sam unatoč Aspergerovu sindromu naučila dijeliti svoj unutrašnji život s ostatkom svijeta
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Alix Generous mlada je žena s milijun i jednom idejom - bavila se znanošću koja osvaja nagrade, pomogla u razvijanju nove tehnologije i zna se dobro našaliti (vidjet ćete). Ima Aspergerov sindrom, oblik poremećaja s autističnog spektra koji u nekim slučajevima narušava osnovne društvene vještine potrebne za komunikaciju i godinama je naporno radila kako bi naučila sa svijetom podijeliti svoje misli. U ovom duhovitom, osobnom govoru Alix dijeli svoju priču i viziju o alatima koji bi pomogli da više ljudi podijeli svoje velike ideje sa svijetom.
Alix Generous - Advocate
Alix Generous is a college student and biology researcher with Asperger syndrome. She stresses the importance of building accepting environments for all kinds of minds. Full bio
Alix Generous is a college student and biology researcher with Asperger syndrome. She stresses the importance of building accepting environments for all kinds of minds. Full bio
Double-click the English transcript below to play the video.
00:12
Today, I want to talk to you about dreams.
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Danas vam želim govoriti o snovima.
00:15
I have been a lucid dreamer my whole life,
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Lucidno sanjam cijeli svoj život
00:18
and it's cooler than in the movies.
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i štosnije je nego u filmovima.
00:20
(Laughter)
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(Smijeh)
00:22
Beyond flying, breathing fire,
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Osim letenja, riganja vatre
00:25
and making hot men
spontaneously appear ...
spontaneously appear ...
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i spontanih pojavljivanja dobrih frajera...
00:28
(Laughter)
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(Smijeh)
00:30
I can do things like read and write music.
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mogu čitati i skladati.
00:33
Fun fact is that I wrote
my personal statement to college
my personal statement to college
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Jedna zanimljivost:
napisala sam osobnu izjavu za faks
napisala sam osobnu izjavu za faks
00:36
in a dream.
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sanjajući.
00:38
And I did accepted. So, yeah.
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I primili su me. Tako da,
00:41
I am a very visual thinker.
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pravi sam vizualni tip.
00:44
I think in pictures, not words.
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Razmišljam u slikama, a ne riječima.
00:47
To me, words are more like
instincts and language.
instincts and language.
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Za mene su riječi više
poput instinkta i jezika.
poput instinkta i jezika.
00:51
There are many people like me;
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Ima još ljudi poput mene;
00:53
Nikola Tesla, for example,
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npr. Nikola Tesla
00:56
who could visualize, design,
test, and troubleshoot everything --
test, and troubleshoot everything --
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mogao je zamišljati, dizajnirati,
testirati i rješavati probleme
testirati i rješavati probleme
01:01
all of his inventions --
in his mind, accurately.
in his mind, accurately.
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svih svojih izuma u svom umu, i to točno.
01:06
Language is kind of exclusive
to our species, anyway.
to our species, anyway.
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Jezik je ionako ograničen
samo na našu vrstu.
samo na našu vrstu.
01:09
I am a bit more primitive,
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Ja sam malo primitivnija,
01:12
like a beta version of Google Translate.
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nešto kao beta-verzija
Google prevoditelja.
Google prevoditelja.
01:14
(Laughter)
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(Smijeh)
01:18
My brain has the ability
to hyper-focus on things that interest me.
to hyper-focus on things that interest me.
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Moj mozak ima sposobnost hiperfokusa
na stvari koje me zanimaju.
na stvari koje me zanimaju.
01:23
For example, once
I had an affair with calculus
I had an affair with calculus
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Npr. jednom sam imala aferu
s infinitezimalnim računom
s infinitezimalnim računom
01:25
that lasted longer
than some celebrity marriages.
than some celebrity marriages.
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koja je trajala duže od nekih
brakova slavnih osoba.
brakova slavnih osoba.
01:28
(Laughter)
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(Smijeh)
01:32
There are some other
unusual things about me.
unusual things about me.
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Neobična sam.
01:36
You may have noticed
that I don't have much inflection
that I don't have much inflection
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Možda ste primijetili
da nemam previše infleksije
da nemam previše infleksije
01:39
in my voice.
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u glasu.
01:40
That's why people
often confuse me with a GPS.
often confuse me with a GPS.
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Zato me ljudi znaju pomiješati s GPS-om.
01:43
(Laughter)
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(Smijeh)
01:48
This can make basic communication
a challenge, unless you need directions.
a challenge, unless you need directions.
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Zbog toga osnovna komunikacija
zna biti teška, osim ako trebate upute.
zna biti teška, osim ako trebate upute.
01:52
(Laughter)
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(Smijeh)
01:56
Thank you.
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Hvala vam.
01:57
(Applause)
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(Pljesak)
02:02
A few years ago, when I started
doing presentations,
doing presentations,
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Kad sam prije nekoliko godina
počela raditi prezentacije,
počela raditi prezentacije,
02:05
I went to get head shots done
for the first time.
for the first time.
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otišla sam po prvi put izraditi portret.
02:09
The photographer told me to look flirty.
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Fotografkinja mi je rekla
da izgledam koketno.
da izgledam koketno.
02:12
(Laughter)
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(Smijeh)
02:14
And I had no idea
what she was talking about.
what she was talking about.
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Nisam imala pojma o čemu priča.
02:17
(Laughter)
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(Smijeh)
02:18
She said, "Do that thing,
you know, with your eyes,
you know, with your eyes,
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Rekla je: "Napravi ono,
znaš ono, ono s očima
znaš ono, ono s očima
02:21
when you're flirting with guys."
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kao kad očijukaš s frajerima."
02:23
"What thing?" I asked.
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"Što to?" - upitah.
02:25
"You know, squint."
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"Ma znaš, škilji."
02:27
And so I tried, really.
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I pokušala sam, zaista jesam.
02:29
It looked something like this.
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To je izgledalo ovako nekako.
02:31
(Laughter)
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(Smijeh)
02:33
I looked like I was searching for Waldo.
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Izgledala sam kao da tražim Walda.
02:36
(Laughter)
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(Smijeh)
02:40
There's a reason for this,
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Za to postoji razlog,
02:42
as there is a reason that Waldo is hiding.
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baš kao što postoji razlog
zašto se Waldo skriva.
zašto se Waldo skriva.
02:44
(Laughter)
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(Smijeh)
02:52
I have Asperger's,
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Imam Aspergerov sindrom,
02:54
a high-functioning form of autism
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visokofunkcionalni oblik autizma
02:56
that impairs the basic social skills
one is expected to display.
one is expected to display.
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koji onemogućuje pokazivanje
osnovnih društvenih vještina.
osnovnih društvenih vještina.
03:02
It's made life difficult in many ways,
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Moj je život otežao na mnoge načine
03:05
and growing up,
I struggled to fit in socially.
I struggled to fit in socially.
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i kako sam odrastala, imala sam
problema s uklapanjem u društvo.
problema s uklapanjem u društvo.
03:09
My friends would tell jokes,
but I didn't understand them.
but I didn't understand them.
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Moji bi prijatelji zbijali šale,
a ja ih nisam razumjela.
a ja ih nisam razumjela.
03:14
My personal heroes were George Carlin
and Stephen Colbert --
and Stephen Colbert --
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Osobni junaci bili su mi
George Carlin i Stephen Colbert
George Carlin i Stephen Colbert
03:19
and they taught me humor.
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i oni su me naučili humoru.
03:22
My personality switched
from being shy and awkward
from being shy and awkward
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Osobnost mi se promijenila
od sramežljive i neprilagođene
od sramežljive i neprilagođene
03:26
to being defiant and cursing out a storm.
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do prkosne i sklone psovanju kao kočijaš.
03:30
Needless to say,
I did not have many friends.
I did not have many friends.
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Naravno, nisam imala puno prijatelja.
03:33
I was also hypersensitive to texture.
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Bila sam i preosjetljiva na teksturu.
03:36
The feel of water on my skin
was like pins and needles,
was like pins and needles,
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Voda na koži djelovala je poput igala
03:40
and so for years, I refused to shower.
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i tako sam godinama izbjegavala tuš.
03:43
I can assure you that my hygiene routine
is up to standards now, though.
is up to standards now, though.
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Uvjeravam vas da je sada moja
osobna higijena zadovoljavajuća.
osobna higijena zadovoljavajuća.
03:47
(Laughter)
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(Smijeh)
03:50
I had to do a lot to get here,
and my parents --
and my parents --
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Da dođem do toga, trebali smo se
jako potruditi i ja i moji roditelji.
jako potruditi i ja i moji roditelji.
03:54
things kind of got out of control
when I was sexually assaulted by a peer,
when I was sexually assaulted by a peer,
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Stvari su malo izmakle kontroli
kad me je vršnjak seksualno napastvovao,
kad me je vršnjak seksualno napastvovao,
03:59
and on top of everything,
it made a difficult situation worse.
it made a difficult situation worse.
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što je već dovoljno tešku
situaciju učinilo još težom.
situaciju učinilo još težom.
04:05
And I had to travel 2,000 miles
across the country to get treatment,
across the country to get treatment,
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Morala sam prijeći 3000 km radi terapije,
04:10
but within days of them prescribing
a new medication,
a new medication,
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ali tek nekoliko dana
nakon što su me stavili na novi lijek,
nakon što su me stavili na novi lijek,
04:14
my life turned into an episode
of the Walking Dead.
of the Walking Dead.
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život mi se pretvorio
u epizodu "Živih mrtvaca".
u epizodu "Živih mrtvaca".
04:18
I became paranoid,
and began to hallucinate
and began to hallucinate
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Postala sam paranoična
i počela sam halucinirati
i počela sam halucinirati
04:21
that rotting corpses
were coming towards me.
were coming towards me.
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da trupla u raspadu idu prema meni.
04:24
My family finally rescued me,
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Obitelj me na kraju spasila,
04:27
but by that time, I had lost 19 pounds
in those three weeks,
in those three weeks,
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ali u ta tri tjedna već sam izgubila 7 kg,
04:32
as well as developing severe anemia,
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a i oboljela sam od teške anemije
04:34
and was on the verge of suicide.
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te sam bila nadomak samoubojstva.
04:38
I transferred to a new treatment center
that understood my aversions,
that understood my aversions,
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Premjestila sam se u novi terapijski
centar koji je shvaćao moje averzije,
centar koji je shvaćao moje averzije,
04:42
my trauma, and my social anxiety,
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moje traume i društvenu anksioznost.
04:46
and they knew how to treat it,
and I got the help I finally needed.
and I got the help I finally needed.
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Znali su je liječiti i konačno sam
dobila potrebnu pomoć.
dobila potrebnu pomoć.
04:50
And after 18 months of hard work,
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Nakon 18 mjeseci napornog rada,
04:52
I went on to do incredible things.
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počela sam se baviti
nevjerojatnim stvarima.
nevjerojatnim stvarima.
04:56
One of the things with Asperger's
is that oftentimes,
is that oftentimes,
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Ljudi s Aspergerovim sindromom
05:00
these people have
a very complex inner life,
a very complex inner life,
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često imaju kompleksne unutrašnje živote,
05:02
and I know for myself,
I have a very colorful personality,
I have a very colorful personality,
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znam po sebi - imam
jako šaroliku osobnost,
jako šaroliku osobnost,
05:05
rich ideas, and just a lot
going on in my mind.
going on in my mind.
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bogate ideje i puno se toga
događa u mojoj glavi.
događa u mojoj glavi.
05:08
But there's a gap
between where that stands,
between where that stands,
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Postoji nesrazmjer između toga
05:12
and how I communicate it
with the rest of the world.
with the rest of the world.
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i načina na koji komuniciramo sa svijetom,
05:15
And this can make
basic communication a challenge.
basic communication a challenge.
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što može otežati osnovnu komunikaciju.
05:20
Not many places would hire me,
due to my lack of social skills,
due to my lack of social skills,
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Na malo bi me radnih mjesta primili
zbog manjka socijalnih vještina.
zbog manjka socijalnih vještina.
05:23
which is why I applied to Waffle House.
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Zato sam se prijavila
za posao u "Waffle House".
za posao u "Waffle House".
05:25
(Laughter)
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(Smijeh)
05:32
Waffle House is an exceptional
24-hour diner --
24-hour diner --
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Super je to restoran
koji radi 24 sata na dan.
koji radi 24 sata na dan.
05:35
(Laughter)
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(Smijeh)
05:37
(Applause)
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(Pljesak)
05:41
thank you --
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Hvala vam.
05:42
where you can order your hash browns
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Tu možete naručiti pržene krumpiriće
05:44
the many ways that someone
would dispose of a human corpse ...
would dispose of a human corpse ...
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na sve načine na koje
biste se mogli i riješiti trupla.
biste se mogli i riješiti trupla.
05:47
(Laughter)
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(Smijeh)
05:49
Sliced, diced, peppered, chunked,
topped, capped, and covered.
topped, capped, and covered.
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Nasjeckane, popaprene, iskomadane
prelivene, prekrivene, pokrivene.
prelivene, prekrivene, pokrivene.
05:54
(Laughter)
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(Smijeh)
05:56
As social norms would have it,
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Društvene norme nalažu da se
05:57
you should only go to Waffle House
at an ungodly hour in the night.
at an ungodly hour in the night.
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u Waffle House ide samo u sitne sate.
06:01
(Laughter)
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(Smijeh)
06:02
So one time, at 2 am, I was chatting
with a waitress, and I asked her,
with a waitress, and I asked her,
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Jednom sam u dva ujutro čavrljala
s konobaricom i upitala je:
s konobaricom i upitala je:
06:07
"What's the most ridiculous thing
that's happened to you on the job?"
that's happened to you on the job?"
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"Što je najčudnija stvar
koja ti se dogodila na poslu?"
koja ti se dogodila na poslu?"
06:10
And she told me that one time,
a man walked in completely naked.
a man walked in completely naked.
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Rekla mi je da joj je jednom čovjek
u restoran ušao potpuno gol.
u restoran ušao potpuno gol.
06:14
(Laughter)
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(Smijeh)
06:15
I said, "Great! Sign me up
for the graveyard shift!"
for the graveyard shift!"
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Rekoh: "Odlično, piši me za treću smjenu!"
06:18
(Laughter)
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(Smijeh)
06:20
Needless to say,
Waffle House did not hire me.
Waffle House did not hire me.
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Ne moram ni reći da me
Waffle House nije zaposlio.
Waffle House nije zaposlio.
06:25
So in terms of having Asperger's,
it can be viewed as a disadvantage,
it can be viewed as a disadvantage,
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Život s Aspergerovim sindromom
može izgledati kao nepogoda.
može izgledati kao nepogoda.
06:30
and sometimes it is
a real pain in the butt,
a real pain in the butt,
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Nekada je to uistinu gnjavaža,
06:32
but it's also the opposite.
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ali je i čista suprotnost tome.
06:34
It's a gift, and it allows me
to think innovatively.
to think innovatively.
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To je dar koji mi omogućava
da razmišljam inovativno.
da razmišljam inovativno.
06:38
At 19, I won a research competition
for my research on coral reefs,
for my research on coral reefs,
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S 19 g. pobijedila sam na istraživačkom
natjecanju projektom o koraljnim grebenima
natjecanju projektom o koraljnim grebenima
06:45
and I ended up speaking
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i na kraju sam držala govor
06:47
at the UN Convention
of Biological Diversity,
of Biological Diversity,
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na UN-ovoj konvenciji
bioloških raznolikosti
bioloških raznolikosti
06:49
presenting this research.
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gdje sam predstavila svoje istraživanje.
06:50
(Applause)
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(Pljesak)
06:52
Thank you.
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Hvala vam.
06:53
(Applause)
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(Pljesak)
06:58
And at 22, I'm getting ready
to graduate college,
to graduate college,
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S 22 godine pripremam se diplomirati
07:02
and I am a co-founder of a biotech
company called AutismSees.
company called AutismSees.
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i suosnivačica sam
biotehnološke tvrtke "AutismSees".
biotehnološke tvrtke "AutismSees".
07:08
(Applause)
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(Pljesak)
07:09
Thank you.
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Hvala vam.
07:10
(Applause)
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(Pljesak)
07:13
But consider what I had to do to get here:
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Razmislite o tome što sam sve
trebala proći da dođem do toga:
trebala proći da dođem do toga:
07:16
25 therapists, 11 misdiagnoses,
and years of pain and trauma.
and years of pain and trauma.
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25 terapeuta, 11 pogrešnih dijagnoza
i godine boli i trauma.
i godine boli i trauma.
07:22
I spent a lot of time thinking
if there's a better way,
if there's a better way,
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Dugo sam razmišljala o tome
postoji li bolji način
postoji li bolji način
07:25
and I think there is:
autism-assistive technology.
autism-assistive technology.
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i mislim da postoji:
tehnologija za pomoć autistima.
tehnologija za pomoć autistima.
07:30
This technology
could play an integral role
could play an integral role
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Ta bi tehnologija
mogla igrati ključnu ulogu
mogla igrati ključnu ulogu
07:32
in helping people
with autistic spectrum disorder,
with autistic spectrum disorder,
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u pomaganju ljudima s autističnog spektra,
07:35
or ASD.
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odnosno s ASD-a.
07:38
The app Podium, released
by my company, AutismSees,
by my company, AutismSees,
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Podium, aplikaciju koju je osmislila
moja tvrtka AutismSees,
moja tvrtka AutismSees,
07:43
has the ability to independently assess
and help develop communication skills.
and help develop communication skills.
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može neovisno procijeniti komunikacijske
vještine i pomoći u njihovu razvoju
vještine i pomoći u njihovu razvoju
07:49
In addition to this, it tracks
eye contact through camera
eye contact through camera
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te prati kontakt očima preko kamere
07:53
and simulates a public-speaking
and job-interview experience.
and job-interview experience.
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i simulira okolnosti javnog govorenja
i razgovora za posao.
i razgovora za posao.
08:00
And so maybe one day,
Waffle House will hire me,
Waffle House will hire me,
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Možda me Waffle House jednog dana zaposli
08:03
after practicing on it some more.
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nakon što se još malo izvježbam.
08:05
(Laughter)
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(Smijeh)
08:09
And one of the great things
is that I've used Podium
is that I've used Podium
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Koristila sam Podium
08:14
to help me prepare for today,
and it's been a great help.
and it's been a great help.
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kako bih se pripremila za danas
i bio mi je od velike pomoći.
i bio mi je od velike pomoći.
08:19
But it's more than that.
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Ali to nije sve!
08:21
There's more that can be done.
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Puno se toga još može učiniti.
08:24
For people with ASD --
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Za nas s autističnog spektra --
08:27
it has been speculated
that many innovative scientists,
that many innovative scientists,
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pretpostavlja se da su ga
mnogi inovativni znanstvenici,
mnogi inovativni znanstvenici,
08:31
researchers, artists,
and engineers have it;
and engineers have it;
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istraživači, umjetnici i inženjeri imali;
08:36
like, for example, Emily Dickinson,
Jane Austen, Isaac Newton, and Bill Gates
Jane Austen, Isaac Newton, and Bill Gates
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npr. Emily Dickinson, Jane Austen,
Isaac Newton i Bill Gates
Isaac Newton i Bill Gates
08:42
are some examples.
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tek su neki od primjera.
08:44
But the problem that's encountered
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No, problem s kojim se suočavamo
08:46
is that these brilliant ideas
often can't be shared
often can't be shared
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jest taj da se ove briljantne ideje
često ne mogu podijeliti s drugima
često ne mogu podijeliti s drugima
08:49
if there are communication roadblocks.
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ako postoje zapreke u komunikaciji.
08:53
And so, many people with autism
are being overlooked every day,
are being overlooked every day,
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Na taj način osobe s autizmom
u svakodnevnom životu bivaju zanemarene
u svakodnevnom životu bivaju zanemarene
08:57
and they're being taken advantage of.
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i iskorištavane.
09:01
So my dream for people with autism
is to change that,
is to change that,
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Ja sanjam o tome da ću
to promijeniti za ljude s autizmom,
to promijeniti za ljude s autizmom,
09:08
to remove the roadblocks
that prevent them from succeeding.
that prevent them from succeeding.
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da ću ukloniti zapreke
koje im stoje na putu do uspjeha.
koje im stoje na putu do uspjeha.
09:11
One of the reasons I love lucid dreaming
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Jedan od razloga
zašto volim lucidno sanjanje
zašto volim lucidno sanjanje
09:14
is because it allows me to be free,
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jest taj što mi omogućava
da budem slobodna,
da budem slobodna,
09:17
without judgment of social
and physical consequences.
and physical consequences.
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bez društvenih i fizičkih posljedica.
09:21
When I'm flying over scenes
that I create in my mind,
that I create in my mind,
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Kad letim pejzažima
koje stvorim u vlastitom umu,
koje stvorim u vlastitom umu,
09:24
I am at peace.
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mirna sam.
09:27
I am free from judgment,
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Nitko me ne osuđuje
09:29
and so I can do whatever I want, you know?
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i mogu raditi što god hoću, znate?
09:31
I'm making out with Brad Pitt,
and Angelina is totally cool with it.
and Angelina is totally cool with it.
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Drpam se s Bradom PIttom
i Angelina nema ništa protiv.
i Angelina nema ništa protiv.
09:36
(Laughter)
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(Smijeh)
09:39
But the goal of autism-assistive
technology is bigger than that,
technology is bigger than that,
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No, cilj tehnologije za pomoć
autistima ipak je nešto viši
autistima ipak je nešto viši
09:43
and more important.
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i važniji.
09:45
My goal is to shift people's perspective
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Moj je cilj ljudima promijeniti pogled
09:49
of autism and people
with higher-functioning Asperger's
with higher-functioning Asperger's
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na autizam i ljude
s visokofunkcionalnim Aspergerom
s visokofunkcionalnim Aspergerom
09:54
because there is a lot they can do.
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jer puno toga mogu napraviti.
09:58
I mean, look at
Temple Grandin, for example.
Temple Grandin, for example.
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Npr. pogledajte samo Temple Grandin.
10:02
And by doing so, we allow people
to share their talents with this world
to share their talents with this world
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Na taj način omogućavamo ljudima
da dijele svoje talente sa svijetom
da dijele svoje talente sa svijetom
10:07
and move this world forward.
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i da ga pomognu razviti.
10:09
In addition, we give them the courage
to pursue their dreams
to pursue their dreams
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Osim toga, dajemo im hrabrost
da slijede svoje snove.
da slijede svoje snove.
10:12
in the real world, in real time.
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U stvarnom svijetu, u stvarnom vremenu.
10:15
Thank you.
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Hvala vam.
10:16
(Applause)
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(Pljesak)
10:19
Thank you.
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Hvala vam.
10:21
(Applause)
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(Pljesak)
ABOUT THE SPEAKER
Alix Generous - AdvocateAlix Generous is a college student and biology researcher with Asperger syndrome. She stresses the importance of building accepting environments for all kinds of minds.
Why you should listen
Alix Generous has Asperger syndrome, but was misdiagnosed for years. A student and researcher who is passionate about molecular biology and neuroscience, she encourages people like her to share their intelligence and insights. She is a co-owner of the startup AutismSees, which develops technology tools to help all kinds of people give presentations.
At 19, Generous won first place in a nationwide competition for her work in quorum sensing and coral reefs. Her paper titled "Environmental Threats on the Symbiotic Relationship of Coral Reefs and Quorum Sensing," was published in Consilience. In November 2013, she was a youth delegate for the UN Convention of Climate Change (COP19), where she negotiated technology transfers and issues of medical importance. She has assisted neuroscience researchers at the Medical University of South Carolina, Tufts University School of Medicine, and the University of Vermont.
Alix Generous | Speaker | TED.com