TEDWomen 2015
Alix Generous: How I learned to communicate my inner life with Asperger's
Aliks Dženres (Alix Generous): Kako sam sa Aspergerom naučila da ispoljavam svoj unutrašnji svet
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Aliks Dženres je devojka sa milion i jednom idejom - dobijala je nagrade za bavljenje naukom, pomogla je u razvoju nove tehnologije i zna da ispriča prokleto dobar vic (videćete). Ona ima Aspergera, jedan oblik iz spektra autizma, koji može da podrije osnovne društvene veštine koje su neophodne za komunikaciju i vredno je učila godinama kako bi savladala to kako da podeli svoje misli sa svetom. U ovom duhovitom, ličnom govoru, ona deli sa nama svoju priču - i njenu viziju alata koji bi mogli da pomognu većem broju ljudi da prenesu svoje velike ideje.
Alix Generous - Advocate
Alix Generous is a college student and biology researcher with Asperger syndrome. She stresses the importance of building accepting environments for all kinds of minds. Full bio
Alix Generous is a college student and biology researcher with Asperger syndrome. She stresses the importance of building accepting environments for all kinds of minds. Full bio
Double-click the English transcript below to play the video.
00:12
Today, I want to talk to you about dreams.
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Danas vam želim govoriti o snovima.
00:15
I have been a lucid dreamer my whole life,
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Ja sam čitav život bila lucidni sanjar
00:18
and it's cooler than in the movies.
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i mnogo je bolje nego na filmovima.
00:20
(Laughter)
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(Smeh)
00:22
Beyond flying, breathing fire,
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Pored letenja, bljuvanja vatre
00:25
and making hot men
spontaneously appear ...
spontaneously appear ...
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i spontanog pojavljivanja
zgodnih muškaraca...
zgodnih muškaraca...
00:28
(Laughter)
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(Smeh)
00:30
I can do things like read and write music.
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mogu da radim stvari,
poput čitanja i pisanja muzike.
poput čitanja i pisanja muzike.
00:33
Fun fact is that I wrote
my personal statement to college
my personal statement to college
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Zanimljiva činjenica je da sam
napisala motivaciono pismo za fakultet
napisala motivaciono pismo za fakultet
00:36
in a dream.
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u snu.
00:38
And I did accepted. So, yeah.
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I primljena sam. Bravo ja.
00:41
I am a very visual thinker.
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Ja sam veoma vizuelan mislilac.
00:44
I think in pictures, not words.
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Razmišljam u slikama, ne rečima.
00:47
To me, words are more like
instincts and language.
instincts and language.
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Za mene su reči
više poput instinkta i jezika.
više poput instinkta i jezika.
00:51
There are many people like me;
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Ima mnogo ljudi sličnih meni;
00:53
Nikola Tesla, for example,
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Nikola Tesla, na primer,
00:56
who could visualize, design,
test, and troubleshoot everything --
test, and troubleshoot everything --
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on je mogao da zamisli, osmisli,
testira i rešava sve probleme -
testira i rešava sve probleme -
01:01
all of his inventions --
in his mind, accurately.
in his mind, accurately.
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sve svoje izume - u mislima, precizno.
01:06
Language is kind of exclusive
to our species, anyway.
to our species, anyway.
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Jezik je ionako isključivo vezan
za našu vrstu.
za našu vrstu.
01:09
I am a bit more primitive,
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Ja sam malčice primitivnija,
01:12
like a beta version of Google Translate.
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poput beta verzije Guglovog prevodioca.
01:14
(Laughter)
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(Smeh)
01:18
My brain has the ability
to hyper-focus on things that interest me.
to hyper-focus on things that interest me.
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Moj mozak ima sposobnost da se
jako usredsredi na ono što me interesuje.
jako usredsredi na ono što me interesuje.
01:23
For example, once
I had an affair with calculus
I had an affair with calculus
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Na primer, jednom sam imala
aferu sa proračunom
aferu sa proračunom
01:25
that lasted longer
than some celebrity marriages.
than some celebrity marriages.
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koja je trajala duže
nego neki brakovi slavnih.
nego neki brakovi slavnih.
01:28
(Laughter)
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(Smeh)
01:32
There are some other
unusual things about me.
unusual things about me.
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Postoje još neke neobične
stvari u vezi sa mnom.
stvari u vezi sa mnom.
01:36
You may have noticed
that I don't have much inflection
that I don't have much inflection
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Možda ste primetili da u mom glasu
nema mnogo modulacija.
nema mnogo modulacija.
01:39
in my voice.
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01:40
That's why people
often confuse me with a GPS.
often confuse me with a GPS.
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Zato me ljudi često mešaju sa GPS-om.
01:43
(Laughter)
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(Smeh)
01:48
This can make basic communication
a challenge, unless you need directions.
a challenge, unless you need directions.
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Zbog toga obični razgovor može da bude
izazov, osim ako vam ne trebaju uputstva.
izazov, osim ako vam ne trebaju uputstva.
01:52
(Laughter)
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(Smeh)
01:56
Thank you.
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Hvala vam.
01:57
(Applause)
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(Aplauz)
02:02
A few years ago, when I started
doing presentations,
doing presentations,
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Pre nekoliko godina, kada sam
počela da držim prezentacije,
počela da držim prezentacije,
02:05
I went to get head shots done
for the first time.
for the first time.
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prvi put u životu
su mi radili foto portrete.
su mi radili foto portrete.
02:09
The photographer told me to look flirty.
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Fotografkinja mi je tražila
da izgledam koketno.
da izgledam koketno.
02:12
(Laughter)
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(Smeh)
02:14
And I had no idea
what she was talking about.
what she was talking about.
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A ja nisam imala pojma
o čemu je govrila.
o čemu je govrila.
02:17
(Laughter)
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(Smeh)
02:18
She said, "Do that thing,
you know, with your eyes,
you know, with your eyes,
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Rekla je: "Napravi onaj, znaš,
onaj pogled,
onaj pogled,
02:21
when you're flirting with guys."
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kada koketiraš s momcima."
02:23
"What thing?" I asked.
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"Koji pogled", pitala sam.
02:25
"You know, squint."
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"Znaš, pogled iskosa."
02:27
And so I tried, really.
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Pa sam pokušala, stvarno.
02:29
It looked something like this.
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Izgledalo je nekako ovako.
02:31
(Laughter)
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(Smeh)
02:33
I looked like I was searching for Waldo.
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Izgledalo je kao da tragam za Valdom.
02:36
(Laughter)
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(Smeh)
02:40
There's a reason for this,
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Postoji razlog za to,
02:42
as there is a reason that Waldo is hiding.
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kao što postoji i razlog
zašto se Valdo skriva.
zašto se Valdo skriva.
02:44
(Laughter)
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(Smeh)
02:52
I have Asperger's,
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Imam Aspergera,
02:54
a high-functioning form of autism
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visoko funkcionalan oblik autizma,
koji podriva osnovne društvene veštine
koje bi pojedinac trebalo da ispolji.
koje bi pojedinac trebalo da ispolji.
02:56
that impairs the basic social skills
one is expected to display.
one is expected to display.
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03:02
It's made life difficult in many ways,
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To mi je otežalo život na razne načine
03:05
and growing up,
I struggled to fit in socially.
I struggled to fit in socially.
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i prilikom odrastanja
sam se mučila sa uklapanjem.
sam se mučila sa uklapanjem.
03:09
My friends would tell jokes,
but I didn't understand them.
but I didn't understand them.
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Moji prijatelji bi pričali viceve,
ali ja ih nisam razumela.
ali ja ih nisam razumela.
03:14
My personal heroes were George Carlin
and Stephen Colbert --
and Stephen Colbert --
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Moji lični heroji su bili
Džordž Karlin i Stiven Kolber -
Džordž Karlin i Stiven Kolber -
03:19
and they taught me humor.
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i od njih sam učila o humoru.
03:22
My personality switched
from being shy and awkward
from being shy and awkward
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Moja ličnost se promenila,
od stidljivka i čudaka
od stidljivka i čudaka
03:26
to being defiant and cursing out a storm.
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do prznice i prizivača oluje.
03:30
Needless to say,
I did not have many friends.
I did not have many friends.
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Suvišno je reći da nisam
imala mnogo prijatelja.
imala mnogo prijatelja.
03:33
I was also hypersensitive to texture.
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Takođe sam bila
hiperosetljiva na teksture.
hiperosetljiva na teksture.
03:36
The feel of water on my skin
was like pins and needles,
was like pins and needles,
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Osećaj vode na mojoj koži
je bio poput čioda i igala,
je bio poput čioda i igala,
03:40
and so for years, I refused to shower.
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pa sam godinama odbijala da se tuširam.
03:43
I can assure you that my hygiene routine
is up to standards now, though.
is up to standards now, though.
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Uveravam vas, pak, da je moja higijenska
rutina sada u najboljem redu.
rutina sada u najboljem redu.
03:47
(Laughter)
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(Smeh)
03:50
I had to do a lot to get here,
and my parents --
and my parents --
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Morala sam, zajedno sa roditeljima,
mnogo da se trudim da bih stigla dovde -
mnogo da se trudim da bih stigla dovde -
03:54
things kind of got out of control
when I was sexually assaulted by a peer,
when I was sexually assaulted by a peer,
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sve se nekako otrglo kontroli
kada me je seksualno napastvovao drugar,
kada me je seksualno napastvovao drugar,
03:59
and on top of everything,
it made a difficult situation worse.
it made a difficult situation worse.
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i povrh svega,
moje teško stanje je postalo još gore.
moje teško stanje je postalo još gore.
04:05
And I had to travel 2,000 miles
across the country to get treatment,
across the country to get treatment,
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I morala sam da pređem preko 3000 km
duž države kako bih se izlečila,
duž države kako bih se izlečila,
04:10
but within days of them prescribing
a new medication,
a new medication,
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no nekoliko dana uzimanja
novih propisanih lekova
novih propisanih lekova
04:14
my life turned into an episode
of the Walking Dead.
of the Walking Dead.
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je pretvorilo moj život
u epizodu "Okružen mrtvima".
u epizodu "Okružen mrtvima".
04:18
I became paranoid,
and began to hallucinate
and began to hallucinate
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Postala sam paranoična
i počela sam da haluciniram
i počela sam da haluciniram
04:21
that rotting corpses
were coming towards me.
were coming towards me.
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o istrulelim leševima
kako mi se približavaju.
kako mi se približavaju.
04:24
My family finally rescued me,
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Porodica me je konačno spasila,
04:27
but by that time, I had lost 19 pounds
in those three weeks,
in those three weeks,
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ali do tad sam izgubila
8,5 kilograma za tri nedelje,
8,5 kilograma za tri nedelje,
04:32
as well as developing severe anemia,
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uz to sam dobila ozbiljnu anemiju
04:34
and was on the verge of suicide.
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i bila sam na ivici samoubistva.
04:38
I transferred to a new treatment center
that understood my aversions,
that understood my aversions,
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Prebacili su me u novi zdravstveni centar
gde su razumeli moje averzije,
gde su razumeli moje averzije,
04:42
my trauma, and my social anxiety,
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moju traumu i moj društveni nespokoj
04:46
and they knew how to treat it,
and I got the help I finally needed.
and I got the help I finally needed.
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i znali su kako da to leče
i konačno sam dobila željenu pomoć.
i konačno sam dobila željenu pomoć.
04:50
And after 18 months of hard work,
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I nakon 18 meseci vrednog rada,
04:52
I went on to do incredible things.
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postigla sam neverovatne stvari.
04:56
One of the things with Asperger's
is that oftentimes,
is that oftentimes,
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Jedna od stvari kod Aspergera
je da ovi ljudi
je da ovi ljudi
često imaju izuzetno
složene unutrašnje živote
složene unutrašnje živote
05:00
these people have
a very complex inner life,
a very complex inner life,
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05:02
and I know for myself,
I have a very colorful personality,
I have a very colorful personality,
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i znam po sebi jer imam
veoma šarenoliku ličnost,
veoma šarenoliku ličnost,
05:05
rich ideas, and just a lot
going on in my mind.
going on in my mind.
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bogatstvo ideja, prosto
mnogo toga se dešava u mom umu.
mnogo toga se dešava u mom umu.
05:08
But there's a gap
between where that stands,
between where that stands,
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Ali postoji jaz između svega toga
05:12
and how I communicate it
with the rest of the world.
with the rest of the world.
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i kako ja to saopštavam ostatku sveta.
05:15
And this can make
basic communication a challenge.
basic communication a challenge.
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A zbog ovoga običan razgovor
može da bude izazov.
može da bude izazov.
05:20
Not many places would hire me,
due to my lack of social skills,
due to my lack of social skills,
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Mnogi me ne bi zaposlili
zbog toga što imam loše društvene veštine,
zbog toga što imam loše društvene veštine,
05:23
which is why I applied to Waffle House.
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zato sam aplicirala u Kuću vafli.
05:25
(Laughter)
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(Smeh)
05:32
Waffle House is an exceptional
24-hour diner --
24-hour diner --
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Kuća vafli je izuzetan restoran
koji non-stop radi -
koji non-stop radi -
05:35
(Laughter)
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(Smeh)
05:37
(Applause)
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(Aplauz)
05:41
thank you --
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hvala vam -
05:42
where you can order your hash browns
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gde možete da poručite heš brauns
05:44
the many ways that someone
would dispose of a human corpse ...
would dispose of a human corpse ...
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na onoliko načina na koliko bi se
neko rešio ljudskog leša...
neko rešio ljudskog leša...
05:47
(Laughter)
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(Smeh)
05:49
Sliced, diced, peppered, chunked,
topped, capped, and covered.
topped, capped, and covered.
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Narezan, iseckan, pobiberen, iskomadan,
filovan, pohovan i preliven.
filovan, pohovan i preliven.
05:54
(Laughter)
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(Smeh)
05:56
As social norms would have it,
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Kako društvene norme nalažu,
05:57
you should only go to Waffle House
at an ungodly hour in the night.
at an ungodly hour in the night.
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jedino idete u Kuću vafli u kasne sate.
06:01
(Laughter)
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(Smeh)
06:02
So one time, at 2 am, I was chatting
with a waitress, and I asked her,
with a waitress, and I asked her,
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Pa sam jednom, u dva sata ujutru,
ćaskala sa konobaricom i pitala sam je:
ćaskala sa konobaricom i pitala sam je:
06:07
"What's the most ridiculous thing
that's happened to you on the job?"
that's happened to you on the job?"
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"Šta je najbizarnije
što ti se desilo na poslu?"
što ti se desilo na poslu?"
06:10
And she told me that one time,
a man walked in completely naked.
a man walked in completely naked.
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I rekla mi je da je jednom
ušao čovek potpuno go.
ušao čovek potpuno go.
06:14
(Laughter)
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(Smeh)
06:15
I said, "Great! Sign me up
for the graveyard shift!"
for the graveyard shift!"
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Rekla sam: "Sjajno!
Upišite me u treću smenu!"
Upišite me u treću smenu!"
06:18
(Laughter)
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(Smeh)
06:20
Needless to say,
Waffle House did not hire me.
Waffle House did not hire me.
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Suvišno je reći
da me nisu primili u Kuću vafli.
da me nisu primili u Kuću vafli.
06:25
So in terms of having Asperger's,
it can be viewed as a disadvantage,
it can be viewed as a disadvantage,
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Pa život sa Aspergerom
može da bude shvaćen kao hendikep
može da bude shvaćen kao hendikep
06:30
and sometimes it is
a real pain in the butt,
a real pain in the butt,
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i ponekad i jeste istinska nelagodnost,
06:32
but it's also the opposite.
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ali je takođe i sve nasuprot tome.
06:34
It's a gift, and it allows me
to think innovatively.
to think innovatively.
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To je dar i pomaže mi
da razmišljam inovativno.
da razmišljam inovativno.
06:38
At 19, I won a research competition
for my research on coral reefs,
for my research on coral reefs,
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Sa 19 sam pobedila na takmičenju
za svoje istraživanje o koralnim grebenima
za svoje istraživanje o koralnim grebenima
06:45
and I ended up speaking
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i zatekla sam se kao govornik
06:47
at the UN Convention
of Biological Diversity,
of Biological Diversity,
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na UN-ovoj konvenciji o biodiverzitetu,
predstaviljajući ovo istraživanje.
06:49
presenting this research.
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06:50
(Applause)
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(Aplauz)
06:52
Thank you.
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Hvala vam.
06:53
(Applause)
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(Aplauz)
06:58
And at 22, I'm getting ready
to graduate college,
to graduate college,
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A u 22. godini, spremam se
da diplomiram na fakultetu
da diplomiram na fakultetu
07:02
and I am a co-founder of a biotech
company called AutismSees.
company called AutismSees.
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i suosnivač sam biotehničke firme
pod nazivom AutismSees.
pod nazivom AutismSees.
07:08
(Applause)
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(Aplauz)
07:09
Thank you.
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Hvala vam.
07:10
(Applause)
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(Aplauz)
07:13
But consider what I had to do to get here:
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Ali razmotrite kroz šta sam
morala da prođem da bih bila ovde:
morala da prođem da bih bila ovde:
07:16
25 therapists, 11 misdiagnoses,
and years of pain and trauma.
and years of pain and trauma.
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25 terapeuta, 11 pogrešnih dijagnoza
i godine bola i trauma.
i godine bola i trauma.
07:22
I spent a lot of time thinking
if there's a better way,
if there's a better way,
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Provela sam mnogo vremena
razmišljajući da li postoji bolji način
razmišljajući da li postoji bolji način
07:25
and I think there is:
autism-assistive technology.
autism-assistive technology.
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i mislim da postoji:
tehnologija u službi autizma.
tehnologija u službi autizma.
Ova tehnologija bi mogla
da igra ključnu ulogu
da igra ključnu ulogu
07:30
This technology
could play an integral role
could play an integral role
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07:32
in helping people
with autistic spectrum disorder,
with autistic spectrum disorder,
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u pomaganju ljudima sa
spektrom autističnih poremećaja
spektrom autističnih poremećaja
07:35
or ASD.
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iliti SAP.
07:38
The app Podium, released
by my company, AutismSees,
by my company, AutismSees,
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Aplikacija Podium,
koju je objavila moja firma, AutismSees,
koju je objavila moja firma, AutismSees,
07:43
has the ability to independently assess
and help develop communication skills.
and help develop communication skills.
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može nezavisno da procenjuje
i pomaže u razvoju veština komunikacije.
i pomaže u razvoju veština komunikacije.
07:49
In addition to this, it tracks
eye contact through camera
eye contact through camera
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Uz sve to, kamerom prati kontakt očima
07:53
and simulates a public-speaking
and job-interview experience.
and job-interview experience.
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i simulira obraćanje u javnosti
i iskustvo razgovora za posao.
i iskustvo razgovora za posao.
08:00
And so maybe one day,
Waffle House will hire me,
Waffle House will hire me,
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Pa će me možda, jednog dana,
Kuća vafli zaposliti,
Kuća vafli zaposliti,
08:03
after practicing on it some more.
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nakon što se još malo
izvežbam na aplikaciji.
izvežbam na aplikaciji.
08:05
(Laughter)
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(Smeh)
08:09
And one of the great things
is that I've used Podium
is that I've used Podium
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A sjajna stvar je što sam koristila Podium
08:14
to help me prepare for today,
and it's been a great help.
and it's been a great help.
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kako bih se pripremila za današnji govor
i bio je odlična pomoć.
i bio je odlična pomoć.
08:19
But it's more than that.
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Ali on je više od toga.
08:21
There's more that can be done.
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Ima tu još mnogo da se učini.
08:24
For people with ASD --
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Za ljude sa SAP-om -
08:27
it has been speculated
that many innovative scientists,
that many innovative scientists,
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pretpostavlja se da ga imaju
mnogi inovativni naučnici,
mnogi inovativni naučnici,
08:31
researchers, artists,
and engineers have it;
and engineers have it;
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istraživači, umetnici i inženjeri;
08:36
like, for example, Emily Dickinson,
Jane Austen, Isaac Newton, and Bill Gates
Jane Austen, Isaac Newton, and Bill Gates
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poput, na primer: Emili Dikinson,
Džejn Ostin, Isaka Njutna i Bil Gejtsa.
Džejn Ostin, Isaka Njutna i Bil Gejtsa.
08:42
are some examples.
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To su samo neki primeri.
08:44
But the problem that's encountered
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Ali problem na koji nailazimo
08:46
is that these brilliant ideas
often can't be shared
often can't be shared
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je da ove briljantne ideje
često ne mogu da se prenesu,
često ne mogu da se prenesu,
08:49
if there are communication roadblocks.
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ako postoje prepreke u komunikaciji.
08:53
And so, many people with autism
are being overlooked every day,
are being overlooked every day,
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Pa tako mnoge ljude sa autizmom
svakodnevno zapostavljamo
svakodnevno zapostavljamo
08:57
and they're being taken advantage of.
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i iskorišćavamo.
09:01
So my dream for people with autism
is to change that,
is to change that,
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Pa je moj san za ljude s autizmom
da se to promeni,
da se to promeni,
09:08
to remove the roadblocks
that prevent them from succeeding.
that prevent them from succeeding.
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da se uklone barijere
koje ih sprečavaju da uspeju.
koje ih sprečavaju da uspeju.
09:11
One of the reasons I love lucid dreaming
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Jedan od razloga zašto volim lucidne snove
09:14
is because it allows me to be free,
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je to što mi omogućavaju
da budem slobodna,
da budem slobodna,
09:17
without judgment of social
and physical consequences.
and physical consequences.
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bez društvene osude i fizičkih posledica.
09:21
When I'm flying over scenes
that I create in my mind,
that I create in my mind,
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Kada prelećem predele
koje stvaram u svom umu,
koje stvaram u svom umu,
09:24
I am at peace.
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ja sam spokojna.
09:27
I am free from judgment,
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Oslobođena osuda
09:29
and so I can do whatever I want, you know?
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i tako mogu da radim šta želim, znate?
09:31
I'm making out with Brad Pitt,
and Angelina is totally cool with it.
and Angelina is totally cool with it.
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Ljubim se s Bredom Pitom,
a Anđelini to uopšte ne smeta.
a Anđelini to uopšte ne smeta.
09:36
(Laughter)
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(Smeh)
09:39
But the goal of autism-assistive
technology is bigger than that,
technology is bigger than that,
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Ali cilj tehnologije u službi autizma
je veći od toga
je veći od toga
09:43
and more important.
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i važniji.
09:45
My goal is to shift people's perspective
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Moj cilj je da promenim to kako ljudi vide
09:49
of autism and people
with higher-functioning Asperger's
with higher-functioning Asperger's
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autizam i ljude sa
visoko funkcionalnim Aspergerom
visoko funkcionalnim Aspergerom
09:54
because there is a lot they can do.
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jer oni mogu toliko toga da postignu.
09:58
I mean, look at
Temple Grandin, for example.
Temple Grandin, for example.
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Mislim, pogledajte Templ Grandin,
na primer.
na primer.
10:02
And by doing so, we allow people
to share their talents with this world
to share their talents with this world
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Na taj način omogućujemo ljudima
da podele svoje talente sa svetom
da podele svoje talente sa svetom
10:07
and move this world forward.
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i da pokreću ovaj svet napred.
10:09
In addition, we give them the courage
to pursue their dreams
to pursue their dreams
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Uz to ih ohrabrujemo da slede svoje snove
10:12
in the real world, in real time.
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u stvarnom svetu, u realnom vremenu.
10:15
Thank you.
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Hvala vam.
10:16
(Applause)
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(Aplauz)
10:19
Thank you.
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Hvala vam.
10:21
(Applause)
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(Aplauz)
ABOUT THE SPEAKER
Alix Generous - AdvocateAlix Generous is a college student and biology researcher with Asperger syndrome. She stresses the importance of building accepting environments for all kinds of minds.
Why you should listen
Alix Generous has Asperger syndrome, but was misdiagnosed for years. A student and researcher who is passionate about molecular biology and neuroscience, she encourages people like her to share their intelligence and insights. She is a co-owner of the startup AutismSees, which develops technology tools to help all kinds of people give presentations.
At 19, Generous won first place in a nationwide competition for her work in quorum sensing and coral reefs. Her paper titled "Environmental Threats on the Symbiotic Relationship of Coral Reefs and Quorum Sensing," was published in Consilience. In November 2013, she was a youth delegate for the UN Convention of Climate Change (COP19), where she negotiated technology transfers and issues of medical importance. She has assisted neuroscience researchers at the Medical University of South Carolina, Tufts University School of Medicine, and the University of Vermont.
Alix Generous | Speaker | TED.com