TEDxRiodelaPlata
Carina Morillo: To understand autism, don't look away
كارينا موريللو: لتفهم التوحد، لا تنظر بعيدا
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كارينا موريللو لم تكن تعرف شيئا عن التوحد عندما تم تشخيص ابنها ,ايفان, به .لم يكن يتكلم او يستجيب لاي احد لذا كان عليها البحث عن سبل اخرى للتواصل معه. تتحدث كارينا عن كيف تعلمت مساعدة ابنها علي النمو عن طريق مشاركته الفضول.
Carina Morillo - Autism advocate
Carina Morillo is an advocate for the social inclusion of people with autism. Full bio
Carina Morillo is an advocate for the social inclusion of people with autism. Full bio
Double-click the English transcript below to play the video.
انظر إلي
00:13
"Look at me!"
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هذه الجملة جعلتني مدربة
في التواصل البصري.
في التواصل البصري.
00:16
That phrase turned me
into an eye-contact coach.
into an eye-contact coach.
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00:22
I'm the mother of Ivan; he's 15 years old.
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انا والدة ايفان البالغ من العمر 15 عامأ.
00:26
Ivan has autism,
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ايفان يعاني من التوحد،
ولا يتكلم،
ولا يتكلم،
00:28
he doesn't speak,
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00:30
and he communicates through an iPad,
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ولكن يتواصل مع الغير عبر جهاز الايباد,
00:32
where his whole universe of words
exists in images.
exists in images.
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حيث تكمن جميع الكلمات بالنسبة له
علي هيئة صور.
علي هيئة صور.
لقد تم تشخيصه عندما بلغ عامين ونصف.
00:37
He was diagnosed
when he was two and a half.
when he was two and a half.
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00:43
I still remember that day painfully.
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ما زلت أتذكر هذا اليوم بألم.
00:49
My husband and I felt really lost;
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لقد شعرنا أنا وزوجي حينها بالضياع،
00:53
we didn't know where to begin.
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لم نعرف من أين نبدأ.
لم يوجد إنترنت وقتها
00:56
There was no internet,
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, لم نستطع البحث عن معلومات عن المرض
00:59
you couldn't Google information,
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01:02
so we made those first steps
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لذا جميع خطواتنا في البداية
كانت نابعه من الحدس.
01:05
out of sheer intuition.
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01:09
Ivan would not maintain eye contact,
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لم يستطع ايفان النظر في العين مباشرة،
01:13
he had lost the words that he did know,
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لقد فقد الكلمات التي كان قد حفظها،
01:16
and he didn't respond to his name
or to anything we asked him,
or to anything we asked him,
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ولم يعد يستجيب عند سماع اسمه
أو شئ يطلب منه.
كما لو أن الكلمات أصبحت ضوضاء بالنسبة له.
01:21
as if words were noise.
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01:25
The only way I could know
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لم استطع معرفة ما ألمَ
01:30
what was going on with him,
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01:32
what he felt,
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أو ما كان يشعر به
01:34
was looking him in the eye.
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إلا بالنظر في عينيه مباشرةً.
ولكن حتي هذا انقطعت السبل إليه.
01:37
But that bridge was broken.
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كيف يمكنني تعليمه دروس الحياة؟
01:42
How could I teach him about life?
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01:47
When I did things he liked,
he would look at me,
he would look at me,
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عندما كنت أفعل شيء يعجبه كان ينظر إلي
ونصبح علي اتصال.
01:51
and we were connected.
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01:53
So I dedicated myself
to working with him on those things,
to working with him on those things,
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لذا كرست نفسي للعمل على تطوير هذا الأمر،
01:57
so we would have more and more
eye-contact moments.
eye-contact moments.
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ليصبح لدينا المزيد من الاتصال عبر النظر.
02:03
We would spend hours and hours playing tag
with his older sister, Alexia,
with his older sister, Alexia,
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كنا نمضي ساعات في لعب الغميضة
مع اخته اليكسيا،
مع اخته اليكسيا،
وعندما كنت أقول"أمسكت بك!"
02:10
and when we said: "I caught you!"
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02:14
he would look around for us,
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كان يبدأ بالبحث عنا،
وفيه هذه اللحظه أحسست أانه حي.
02:16
and at that moment,
I could feel he was alive.
I could feel he was alive.
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02:25
We also hold a record for hours spent
in a swimming pool.
in a swimming pool.
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يمكنه أيضاً كسر الرقم القياسي في
عدد الساعات التي يقضيها في حمام السباحة.
عدد الساعات التي يقضيها في حمام السباحة.
02:31
Ivan always had a passion for water.
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لطالما أحب الماء.
أتذكر عندما كان عمره عامين ونصف،
02:35
I remember when he was two and a half,
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02:39
on a rainy winter day,
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واليوم ممطر في الشتاء،
02:43
I was taking him to an indoor pool,
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كنت اصطحبه إلى لحمام سباحة مغطى،
02:45
because even on rainy days
we'd go swimming.
we'd go swimming.
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لأنه حتى في الأيام الممطرة
كان يحب الذهاب للسباحه.
كان يحب الذهاب للسباحه.
02:49
We were on the highway,
and I took the wrong exit.
and I took the wrong exit.
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كنا علي الطريق السريع وسلكت المخرج الخاطئ.
02:54
He burst into tears and cried
inconsolably, nonstop,
inconsolably, nonstop,
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أجهش بالبكاء وظل يبكي دون توقف
إلا عندما عدت أدراجي مجدداً،
02:58
until I turned back.
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03:00
Only then did he calm down.
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عندها فقط توقف عن البكاء.
كيف يمكن لطفل في الثانية والنصف من العمر
03:03
How was it possible
that a two and a half year old
that a two and a half year old
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ألا يستجيب لاسمه ومع ذلك
03:07
didn't respond to his own name,
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في وجود المطر والضباب
عندما لم استطع رؤية أي شيء
عندما لم استطع رؤية أي شيء
03:09
yet in the middle of the rain and fog,
where I couldn't see anything,
where I couldn't see anything,
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03:13
he knew the exact route?
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تمكن هو من معرفة الطريق ؟
03:21
That's when I realized that Ivan
had an exceptional visual memory,
had an exceptional visual memory,
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حينها أدركت أن لدى ايفان ذاكرة بصرية قوية،
وأن هذا سيكون سبيلي للوصول إليه.
03:25
and that that would be my way in.
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03:29
So I started taking
pictures of everything,
pictures of everything,
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لذا بدأت بالتقاط صوراً لكل شئ،
03:32
and teaching him what life was like,
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وتعليمه ما هي الحياة،
03:35
showing it to him, picture by picture.
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صورة تلو الأخرى أريها إياه.
03:39
Even now, it's the way Ivan communicates
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حتي الآن هذه طريقته في التواصل،
03:44
what he wants,
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ما يريده،
03:46
what he needs
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وما يحتاجه،
وما يشعربه أيضاً.
03:48
and also what he feels.
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ولكن لم يكن المهم فقط التواصل
مع ايفان بالنظر،
مع ايفان بالنظر،
03:54
But it wasn't just
Ivan's eye contact that mattered.
Ivan's eye contact that mattered.
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03:58
Everyone else's did, too.
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ولكن تواصل الغير معه أيضاً.
04:02
How could I make people see
not only his autism,
not only his autism,
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كيف يمكنني أن أجعل الناس ترى
أكثر من التوحد الذي يعانيه،
أكثر من التوحد الذي يعانيه،
04:06
but see him the person
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ولكن رؤيته كشخص
وكل ما يستطيع اعطاؤه،
04:09
and everything he can give;
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04:12
everything he can do;
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ورؤية كل ما يستطيع فعله،
04:15
the things he likes and doesn't like,
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وما يحب وما يكره،
تماماً كالجميع؟
04:18
just like any one of us?
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لتحقيق ذلك كان علي أن أتنازل قليلا،
04:21
But for that, I also had
to give of myself.
to give of myself.
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واستجمع الشجعة لأتركه
04:25
I had to have the strength to let him go,
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04:28
which was extremely difficult.
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وهو الأمر الذي كان في غاية الصعوبة.
04:33
Ivan was 11 years old,
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عندما بلغ ايفان الحادية عشر،
04:35
and he went for treatment
in a neighborhood near our house.
in a neighborhood near our house.
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كان يذهب للعلاج في مركز قريب من البيت.
في أحد الأمسيات عندما كنت في انتظار عودته،
04:40
One afternoon,
while I was waiting for him,
while I was waiting for him,
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04:44
I went into a greengrocer,
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ذهبت لمحل البقالة،
كان متجراً عادياً كغيره
يبيع القليل من هذا وذاك.
يبيع القليل من هذا وذاك.
04:46
a typical neighborhood store
with a little bit of everything.
with a little bit of everything.
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04:50
While doing the shopping,
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وبينما كنت أتبضع،
بدأت بالتكلم مع خوسيه -مالك المتجر.
04:52
I started talking to Jose, the owner.
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04:56
I told him about Ivan,
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وأخبرته عن ايفان،
04:59
that he had autism,
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وأنه يعاني من التوحد،
05:01
and that I wanted him to learn
to walk down the street by himself,
to walk down the street by himself,
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وكم وددت أن أراه يمشي في الطريق بمفرده،
05:05
without anyone holding his hand.
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من دون وجود أحد ليمسك يده.
05:08
So I decided to ask Jose
if Thursdays around 2pm,
if Thursdays around 2pm,
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لذا سألت خوسيه إذا كان الخميس
في الثانيه بعد الظهر
في الثانيه بعد الظهر
05:13
Ivan could come and help him arrange
the water bottles on the shelves,
the water bottles on the shelves,
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وقتا مناسبا لارسال ايفان لمساعدته
في رص زجاجات المياه فوق الارفف
في رص زجاجات المياه فوق الارفف
لأنه كان يحب تنظيم الأشياء.
05:17
because he loved to organize things.
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وكمكافأه له
يمكنه شراء بعض بسكويت الشوكولاته،
يمكنه شراء بعض بسكويت الشوكولاته،
05:19
And as a reward, he could buy
some chocolate cookies,
some chocolate cookies,
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05:23
which were his favorite.
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لأنها المفضلة لديه.
وافق خوسيه علي الفور.
05:27
He said "yes" right away.
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05:30
So that's how it went for a year:
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لذا استمر الأمر لمدة عام؛
كان يذهب ايفان لمحل خوسيه
05:34
Ivan would go to Jose's greengrocer,
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05:37
help him arrange the shelves
of water bottles
of water bottles
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ويساعده في تنظيم أرفف زجاجات المياه
بوضع الملصقات مصطفة بشكل مثالي
على نفس الجانب
على نفس الجانب
05:40
with the labels perfectly
lined up on the same side,
lined up on the same side,
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05:46
and he would leave happy
with his chocolate cookies.
with his chocolate cookies.
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وكان يغادر بسعادة وفي حوزته المكافأه.
لم يكن خوسيه خبيراً في التوحد.
05:56
Jose is not an expert in autism.
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06:01
There is no need to be an expert
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لست بحاجة أن تكون خبيراً،
أو تقوم بأي عمل بطولي لتدخل عالمه.
06:05
nor do anything heroic to include someone.
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كل ما نحتاجه هو أن نتواجد بجانبه.
06:12
We just need to be there --
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06:14
(Applause)
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(تصفيق)
(انتهاء التصفيق)
06:22
(Applause ends)
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06:25
Really, no heroic deed --
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حقا لا عمل بطولي،
06:28
we simply need to be close.
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ببساطة يجب أن نكون قريبين.
06:33
And if we are afraid of something
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وإذا كنا خائفين من شيء ما،
أو لا نستطيع فهم شيء ما،
06:36
or we don't understand something,
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علينا أن نسأل.
06:38
we need to ask.
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لنكن فضوليّين
06:41
Let's be curious
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والابتعاد عن اللامبالاة.
06:44
but never indifferent.
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06:50
Let's have the courage
to look each other in the eye,
to look each other in the eye,
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لتكن لدينا الشجاعه للنظر
في أعين بعض مباشرة،
في أعين بعض مباشرة،
06:56
because by looking,
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لأنه بالنظر
06:58
we can open a whole world to someone else.
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يمكننا فتح عالماً كاملاً لشخص آخر.
(تصفيق)
07:03
(Applause)
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07:05
(Cheers)
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(هتاف)
ABOUT THE SPEAKER
Carina Morillo - Autism advocateCarina Morillo is an advocate for the social inclusion of people with autism.
Why you should listen
Carina Morillo is a founding member and president of Fundación Brincar, a non-profit organization in Argentina that has worked since 2010 for a better quality of life of people with autism and their families.
Morillo started Fundación Brincar -- inspired by her son Ivan, who is currently 16 years old and has autism -- because she strongly believes that although life with autism can be challenging, her family and others like it have the right to be happy. In spite of its high prevalence, most people still don't know what autism is about or how to help someone with autism. The foundation offers support services and training to families and professionals, community awareness programs and art and skills training for children, youth and adults on the autism spectrum. Brincar has trained more than 15,000 professionals and families, and it currently offers support services to more than 3,000 families throughout Argentina. The foundation's free virtual library monthly reaches 400,000 people per month throughout Latin America and Spain. Brincar is also founding member of the Argentina Network of Autism, and has become one of the leading autism references for both families, health professionals and teachers in Argentina and Latin America.
Morillo is actively working on the creation of an adult life platform for living with autism. Like many parents, her main concern is who will take care of her son during his adult life. Around one-third of people with autism remain nonverbal, and one-third have an intellectual disability, requiring 24/7 support throughout their life. Existing facilities and services in Argentina and Latin America are limited to school age, with no residence or occupation solutions for anyone older than 18.
Morillo has been awarded the 2016 US Ambassador in Argentina Entrepreneur Prize and the 2014 Argentine Solidarity Prize. In April 2017, Fundación Brincar was declared of Social Interest by the Congress of the City of Buenos Aires for its open community services. Morillo holds a BS in Business Administration degree of Babson College.
Carina Morillo | Speaker | TED.com