Esha Alwani: What it's like to have Tourette's -- and how music gives me back control
اسحا الوانی: سندروم توره چگونه است -- و چطور با موسیقی کنترل خود را باز مییابم
Esha Alwani's message to the world is simple: "Music is healing therapy, and we need to make a place for it in our lives." Full bio
Double-click the English transcript below to play the video.
what it would feel like
your left arm was continuously flapping,
دست چپتان یکسره تکان میخورد،
were about to break,
که دندانهایتان بشکند،
a loud, high-pitched screech.
از خودتان درمیآوردید.
at the young age of six,
my life literally changed overnight.
زندگی من یک شبه عوض شد.
see my friends or even eat out,
دوستانم را ببینم یا حتی بیرون غذا بخورم.
the attention of everyone in the room.
که در آنجا بودند را به خود جلب میکرد.
neuropsychologist my parents could find.
که مادر و پدرم پیدا کرده بودند، ببینیم.
the easy remedy we had hoped for.
را به ما نداد.
with an incurable neurological disorder,
من نوعی اختلال عصبی لاعلاج دارم،
an essential and valuable part
only made things worse.
فقط وضع را بدتر میکردند.
that I couldn't move them.
که نمیتوانستم حرکتشان بدهم.
که دنبالم میدویدند.
and drink me as soup.
میجوشانند و مثل سوپ میخورند.
some sort of relief.
بتواند من را آرام کند.
just ended up making things worse.
in the United States alone,
تنها در ایالات متحده آمریکا
and mental illness
بوده است.
to treat these conditions
برای درمان این مشکلات
a daily dose of music.
روزانه موسیقی تجویز میکرد.
my personal experience with music
شخصی خودم را در مورد موسیقی و
on my neurological disorder.
با شما به اشتراک بگذارم.
is essentially a series
what it's like to have Tourette syndrome
سندروم توره شبیه به چیست باید بگویم شبیه
you're all very familiar with --
همه شما با آن آشنا هستید --
or drink water upside down,
یا در حالت سروته آب بخورید.
you can do about it
and the hiccups have taken their course.
هیچ کار دیگری نمیتوان کرد.
after an attack of tics,
اغلب در اتاقم دراز میکشم
would attempt to soothe me and herself
ناراحت است سعی می کند با گذاشتن آهنگ
to soothe our aching hearts.
تا قلب های دردمندمان را آرام کند.
of the drums to uplift us.
our moods would be lighter,
حس سبکباری پیدا میکنیم،
I became an addict of this newfound drug.
به این داروی جدید اعتیاد پیدا کردم.
into my bouts of sadness and self-pity,
و ترحم به خود میدیدم،
and rhythms from each one of those keys
نتها و ریتمهای هرکدام از آنها
how much music was helping me.
که موسیقی چقدر به من کمک میکرد
انجام میدادم.
it wasn't to impress anybody.
برای تحت تاثیر قرار دادن کسی نبود
the less my symptoms surfaced,
علائم بیماری کمتر ظاهر میشد،
these songs were soothing my symptoms.
علائم بیماریام را فرومینشاند.
any other cases of medicinal music.
از موسیقی درمانی وجود دارد یا نه.
a highly successful US congresswoman,
به نام گبی گیفوردز بوده
and the ability to sing
music therapists to work with her.
تا با او کار کند.
to sing her thoughts,
افکارش را آواز بخواند
تا افکارش را به زبان بیاورد.
to regain her speech.
دوباره به دست آورد.
our brains to release a natural painkiller
که مغز ما مسکنی طبیعی
به نام دوپامین ترشح کند.
for a healthy nervous system
breathing and pulse rate,
موسیقی روی ضربان قلب
our cortisol levels,
میزان کلسترل را پایین میآورد
for neurological symptoms.
someone with a neurological disorder.
مبتلا به اختلالات عصبی برخورد کردهایم.
and heal us from within.
تعالی ببخشد و ما را درمان کند.
for the rest of my life.
excuse myself from my classroom,
کلاسهایم مرخصی بگیرم،
can be extremely distracting.
به شدت حواس همه را پرت کند.
when I wink my eyes involuntarily,
thinks I'm flirting with him,
که من دارم دلربایی میکنم.
"Sorry -- I wasn't trying to flirt."
«ببخشید -- من قصد عشوهگری نداشتم.»
and even just listen to music,
یا حتی به موسیقی گوش میدهم،
in highly stressful situations,
before my performance --
the tics take a back seat.
تیکها از کار افتادند.
and composed my own music.
و آهنگهایم را خودم ساختهام.
it was the music that composed me.
موسیقی بوده که من را ساخته است.
my mask off too soon
and then you were not
و بعد آنجا نبودی
dragged it out
I lose a bit of myself I put it back on
گم میکنم باز نقابم را میزنم
my own heart in two
تا جایی که قلبم به دو نیمه شود
to know the real me
من واقعیِ را بشناسی
I'm not loving you
دیگر دوستت ندارم
from me and my mask
I'm not loving you
دیگر دوستت ندارم
just like that
به همین سادگی
it hurt more than it ever has before
از تمام دفعات پیش بیشتر لطمه زد
was a little more
یک کم محکمتر بود
to know the real me
من واقعیِ را ببینی
I'm not loving you
دیگر دوستت ندارم
from me and my mask
I'm not loving you
دیگر دوستت ندارم
ABOUT THE SPEAKER
Esha Alwani - Singer-songwriterEsha Alwani's message to the world is simple: "Music is healing therapy, and we need to make a place for it in our lives."
Why you should listen
Esha Alwani's passion for singing, songwriting and performing started at a young age. It quickly gained priority in her life when she realized that music had the ability to help manage the symptoms of her neurological disorder, Tourette's syndrome. She shares a message of positivity, hope and perseverance to people in similar situations.
A singer-songwriter from the happy island of Aruba, Alwani wrote and recorded her first EP, Beautiful, with a desire to share her music and awareness of the healing effects of music. She quickly found herself in partnerships with the Autism Foundation of Aruba and the Tourette Association of America, and she appeared at the TAA annual conference in 2016 in Arlington, Virginia.
Soon after the release of her second EP, Dangerous, Alwani began performing as the opening act for international superstars on some of Aruba's biggest stages. From arena shows with audiences of 10,000 -- opening for artists like Alicia Keys and Maluma -- to private events with artists like Nicky Jam and companies like Hublot and Cartier. Alwani has also performed at two sold-out performances at the legendary Bluebird Café in Nashville, Tennessee.
Esha Alwani | Speaker | TED.com