Esha Alwani: What it's like to have Tourette's -- and how music gives me back control
Esha Alwani: Tourette-szindrómával az élet – és ahogy a zene visszaadta felette a kontrollt nekem
Esha Alwani's message to the world is simple: "Music is healing therapy, and we need to make a place for it in our lives." Full bio
Double-click the English transcript below to play the video.
what it would feel like
milyen érzés lehet,
your left arm was continuously flapping,
folyamatosan csapkod,
were about to break,
a loud, high-pitched screech.
éles kiáltást hallassanak.
at the young age of six,
a hét minden napján.
my life literally changed overnight.
az életem hirtelen megváltozott.
see my friends or even eat out,
nem találkozhattam a barátaimmal,
the attention of everyone in the room.
mindenki figyelmét.
neuropsychologist my parents could find.
vizsgáljon meg, akit a szüleim találtak.
the easy remedy we had hoped for.
with an incurable neurological disorder,
idegzavart állapított meg:
an essential and valuable part
alapvető és értékes részét adják
only made things worse.
csak rontottak az állapotomon.
that I couldn't move them.
hogy képtelen voltam mozgatni.
és meginni, mint egy levest.
and drink me as soup.
some sort of relief.
just ended up making things worse.
csak rontott a helyzetemen.
in the United States alone,
and mental illness
és elmebajra felírt gyógyszerekre.
to treat these conditions
nélküli gyógyításukra.
a daily dose of music.
zenét írna fel önöknek minden napra.
my personal experience with music
önökkel a tapasztalataim a zenéről,
on my neurological disorder.
is essentially a series
és hangadást jelent,
what it's like to have Tourette syndrome
milyen Tourette-szindrómásnak lenni,
you're all very familiar with --
amit mindannyian ismernek:
or drink water upside down,
számolnak, vagy ihatnak fejjel lefelé
you can do about it
and the hiccups have taken their course.
after an attack of tics,
feküdtem fáradtan és kétségbeesetten
would attempt to soothe me and herself
feltett valami zenét,
engem – és önmagát is.
to soothe our aching hearts.
kínzó fájdalmat enyhítse.
of the drums to uplift us.
ritmusa fellelkesítsen.
és dallamok kibontakoztak,
our moods would be lighter,
I became an addict of this newfound drug.
ezen újfajta drog rabjává váltam.
into my bouts of sadness and self-pity,
törni a szomorúság és önsajnálat,
and rhythms from each one of those keys
hangok és dallamok
how much music was helping me.
milyen sokat segít a zene.
it wasn't to impress anybody.
nem akartam senkit lenyűgözni.
the less my symptoms surfaced,
tüneteim annál kevésbé jelentkeztek,
these songs were soothing my symptoms.
hogyan enyhítik a dalok a tüneteimet.
any other cases of medicinal music.
példák a muzsika gyógyító hatására.
a highly successful US congresswoman,
amerikai képviselőnőre,
and the ability to sing
music therapists to work with her.
to sing her thoughts,
ha szóban képtelen rá.
to regain her speech.
beszédképességét.
our brains to release a natural painkiller
fájdalomcsillapítót szabadít fel:
for a healthy nervous system
az egészséges idegrendszerhez
érzelmi állapotunkat.
breathing and pulse rate,
légzésünket és pulzusunkat,
our cortisol levels,
for neurological symptoms.
az idegrendszeri tüneteknek.
someone with a neurological disorder.
rendellenességtől szenvedő embert.
and heal us from within.
és belülről gyógyítani bennünket.
for the rest of my life.
excuse myself from my classroom,
mentegetőzöm az óráimon,
can be extremely distracting.
igen zavarók lehetnek.
when I wink my eyes involuntarily,
amikor önkéntelenül kacsintok,
thinks I'm flirting with him,
azt hiszi, flörtölök vele,
"Sorry -- I wasn't trying to flirt."
hogy nem próbáltam flörtölni vele.
and even just listen to music,
esetleg csak zenét hallgatok,
in highly stressful situations,
igen stresszes helyzetekben,
before my performance --
the tics take a back seat.
a tikkek háttérbe szorulnak.
and composed my own music.
írtam, és zenét hoztam létre,
it was the music that composed me.
my mask off too soon
and then you were not
dragged it out
I lose a bit of myself I put it back on
visszaveszem a maszkomat
my own heart in two
míg ketté nem töröm szívemet
to know the real me
I'm not loving you
Nem szeretlek
from me and my mask
a maszkomat és engem
I'm not loving you
Nem szeretlek
just like that
Pontosan úgy
it hurt more than it ever has before
was a little more
a csapásból
to know the real me
I'm not loving you
Nem szeretlek
from me and my mask
a maszkomat és engem
I'm not loving you
Nem szeretlek
ABOUT THE SPEAKER
Esha Alwani - Singer-songwriterEsha Alwani's message to the world is simple: "Music is healing therapy, and we need to make a place for it in our lives."
Why you should listen
Esha Alwani's passion for singing, songwriting and performing started at a young age. It quickly gained priority in her life when she realized that music had the ability to help manage the symptoms of her neurological disorder, Tourette's syndrome. She shares a message of positivity, hope and perseverance to people in similar situations.
A singer-songwriter from the happy island of Aruba, Alwani wrote and recorded her first EP, Beautiful, with a desire to share her music and awareness of the healing effects of music. She quickly found herself in partnerships with the Autism Foundation of Aruba and the Tourette Association of America, and she appeared at the TAA annual conference in 2016 in Arlington, Virginia.
Soon after the release of her second EP, Dangerous, Alwani began performing as the opening act for international superstars on some of Aruba's biggest stages. From arena shows with audiences of 10,000 -- opening for artists like Alicia Keys and Maluma -- to private events with artists like Nicky Jam and companies like Hublot and Cartier. Alwani has also performed at two sold-out performances at the legendary Bluebird Café in Nashville, Tennessee.
Esha Alwani | Speaker | TED.com