TEDMED 2016
Carolyn Jones: A tribute to nurses
Carolyn Jones: Un homenaje a los enfermeros
Filmed:
Readability: 3.4
1,375,400 views
Carolyn Jones pasó cinco años entrevistando, fotografiando y filmando a enfermeros a través de EE.UU., viajando a los lugares que se enfrentan a algunos de los problemas de salud pública más importantes de esa nación. Ella comparte historias personales de atención dedicada en este homenaje a los héroes cotidianos que trabajan en las primeras líneas de la atención de la salud.
Carolyn Jones - Photographic ethnographer
Carolyn Jones creates projects that point our attention towards issues of global concern. Full bio
Carolyn Jones creates projects that point our attention towards issues of global concern. Full bio
Double-click the English transcript below to play the video.
00:12
As patients,
0
640
1215
Como pacientes,
00:13
we usually remember
the names of our doctors,
the names of our doctors,
1
1880
3616
por lo general recordamos
los nombres de nuestros médicos,
los nombres de nuestros médicos,
00:17
but often we forget
the names of our nurses.
the names of our nurses.
2
5520
3320
pero a menudo olvidamos
los nombres de nuestros enfermeros.
los nombres de nuestros enfermeros.
00:21
I remember one.
3
9600
1200
Yo recuerdo una.
00:23
I had breast cancer a few years ago,
4
11400
2216
Hace unos años, tuve cáncer de mama
00:25
and somehow I managed
to get through the surgeries
to get through the surgeries
5
13640
3456
y de alguna manera logré
superar las cirugías
superar las cirugías
00:29
and the beginning
of the treatment just fine.
of the treatment just fine.
6
17120
2280
y el comienzo del tratamiento muy bien.
00:31
I could hide what was going on.
7
19840
2256
Podía ocultar lo que estaba pasando.
00:34
Everybody didn't really have to know.
8
22120
2216
Nadie tenía por qué saberlo.
00:36
I could walk my daughter to school,
9
24360
2216
Podía llevar a mi hija a la escuela,
00:38
I could go out to dinner with my husband;
10
26600
1976
podía salir a cenar con mi marido;
00:40
I could fool people.
11
28600
1200
podía engañar a la gente.
00:42
But then my chemo was scheduled to begin
12
30720
2336
Pero luego llegó la quimio
00:45
and that terrified me
13
33080
1736
y eso me aterraba
00:46
because I knew that I was going to lose
every single hair on my body
every single hair on my body
14
34840
4536
porque sabía que iba a perder
todo el cabello
todo el cabello
00:51
because of the kind of chemo
that I was going to have.
that I was going to have.
15
39400
2560
por el tipo de quimio que tendría.
00:54
I wasn't going to be able
to pretend anymore
to pretend anymore
16
42480
2296
Ya no podría fingir
00:56
as though everything was normal.
17
44800
1800
que todo estaba normal.
00:59
I was scared.
18
47440
1296
Estaba asustada.
01:00
I knew what it felt like to have
everybody treating me with kid gloves,
everybody treating me with kid gloves,
19
48760
3576
Sabía lo que era que todos
me trataran con pinzas
me trataran con pinzas
01:04
and I just wanted to feel normal.
20
52360
2376
y sencillamente quería sentirme normal.
01:06
I had a port installed in my chest.
21
54760
2176
Tenía un catéter en el pecho.
01:08
I went to my first day of chemotherapy,
22
56960
2776
Fui a mi primer día de quimioterapia
01:11
and I was an emotional wreck.
23
59760
2336
y estaba muy mal de ánimo.
01:14
My nurse, Joanne, walked in the door,
24
62120
3015
Mi enfermera, Joanne, entró por la puerta
01:17
and every bone in my body was telling
me to get up out of that chair
me to get up out of that chair
25
65160
3976
y cada hueso de mi cuerpo me pedía
que me levantara
de aquella silla y huyera.
de aquella silla y huyera.
01:21
and take for the hills.
26
69160
1496
01:22
But Joanne looked at me and talked
to me like we were old friends.
to me like we were old friends.
27
70680
3760
Pero Joanne me miró y me habló
como si fuéramos viejas amigas.
como si fuéramos viejas amigas.
01:27
And then she asked me,
28
75240
1416
Luego me preguntó:
01:28
"Where'd you get your highlights done?"
29
76680
2096
"¿Dónde te hiciste las mechas?"
01:30
(Laughter)
30
78800
1096
(Risas)
01:31
And I was like, are you kidding me?
31
79920
1936
Me dije: ¿Es una broma?
01:33
You're going to talk to me about my hair
when I'm on the verge of losing it?
when I'm on the verge of losing it?
32
81880
4856
¿Me hablará de mi cabello
cuando estoy a punto de perderlo?
cuando estoy a punto de perderlo?
01:38
I was kind of angry,
33
86760
1736
Me enojó un poco
01:40
and I said, "Really? Hair?"
34
88520
2560
y le dije: "¿En serio, el cabello?"
01:43
And with a shrug
of her shoulders she said,
of her shoulders she said,
35
91640
2336
Y encogiendo los hombros me dijo:
01:46
"It's gonna grow back."
36
94000
1360
"Volverá a crecer".
01:48
And in that moment she said
the one thing I had overlooked,
the one thing I had overlooked,
37
96280
3256
En ese momento me dijo algo
que yo había pasado por alto,
que yo había pasado por alto,
01:51
and that was that at some point,
my life would get back to normal.
my life would get back to normal.
38
99560
3816
concretamente que mi vida
volvería a la normalidad algún día.
volvería a la normalidad algún día.
01:55
She really believed that.
39
103400
1696
Ella realmente lo creía.
01:57
And so I believed it, too.
40
105120
1680
Así que yo lo creí también.
01:59
Now, worrying about losing your hair
when you're fighting cancer
when you're fighting cancer
41
107520
4776
Preocuparse por la pérdida del cabello
cuando uno lucha contra el cáncer
cuando uno lucha contra el cáncer
02:04
may seem silly at first,
42
112320
1616
puede parecer una tontería al principio,
02:05
but it's not just that you're worried
about how you're going to look.
about how you're going to look.
43
113960
4136
pero no es que uno solo
se preocupe por el aspecto,
se preocupe por el aspecto,
02:10
It's that you're worried that everybody's
going to treat you so carefully.
going to treat you so carefully.
44
118120
3920
sino porque todo el mundo
lo tratará con demasiado cuidado.
lo tratará con demasiado cuidado.
02:14
Joanne made me feel normal
for the first time in six months.
for the first time in six months.
45
122760
3536
Joanne me hizo sentir normal
por primera vez en seis meses.
por primera vez en seis meses.
02:18
We talked about her boyfriends,
46
126320
1855
Hablamos de sus novios,
02:20
we talked about looking
for apartments in New York City,
for apartments in New York City,
47
128199
2737
hablamos de buscar
apartamento en Nueva York
apartamento en Nueva York
02:22
and we talked about my reaction
to the chemotherapy --
to the chemotherapy --
48
130960
2856
y hablamos de mi reacción
a la quimioterapia...
a la quimioterapia...
02:25
all kind of mixed in together.
49
133840
1960
todo mezclado.
02:28
And I always wondered,
50
136360
1976
Y siempre me preguntaba,
02:30
how did she so instinctively
know just how to talk to me?
know just how to talk to me?
51
138360
4640
¿cómo supo tan instintivamente
cómo hablarme?
cómo hablarme?
02:35
Joanne Staha and my admiration for her
52
143480
3416
Joanne Staha y mi admiración para ella
02:38
marked the beginning of my journey
into the world of nurses.
into the world of nurses.
53
146920
3800
marcaron el comienzo de mi viaje
en el mundo de la enfermería.
en el mundo de la enfermería.
Unos años después, me pidieron
que hiciera un proyecto
que hiciera un proyecto
02:43
A few years later,
I was asked to do a project
I was asked to do a project
54
151360
2416
02:45
that would celebrate
the work that nurses do.
the work that nurses do.
55
153800
2680
para celebrar el trabajo
realizado por los enfermeros.
realizado por los enfermeros.
02:49
I started with Joanne,
56
157120
1496
Empecé con Joanne
02:50
and I met over 100 nurses
across the country.
across the country.
57
158640
3000
y conocí a más de 100 enfermeros
en todo el país.
en todo el país.
02:54
I spent five years interviewing,
photographing and filming nurses
photographing and filming nurses
58
162320
5056
Pasé cinco años entrevistando,
fotografiando y filmando enfermeros
fotografiando y filmando enfermeros
02:59
for a book and a documentary film.
59
167400
2160
para un libro y un documental.
03:02
With my team,
60
170560
1216
Planifiqué con mi equipo
un viaje por EE.UU.
un viaje por EE.UU.
03:03
we mapped a trip across America
that would take us to places
that would take us to places
61
171800
3336
que nos llevaría a lugares que enfrentan
03:07
dealing with some of the biggest
public health issues facing our nation --
public health issues facing our nation --
62
175160
4936
algunos de los problemas más grandes
de salud pública de la nación:
de salud pública de la nación:
03:12
aging, war, poverty, prisons.
63
180120
4080
el envejecimiento, la guerra,
la pobreza, el encarcelamiento.
la pobreza, el encarcelamiento.
Y luego nos fuimos a lugares
03:16
And then we went places
64
184840
1256
03:18
where we would find
the largest concentration of patients
the largest concentration of patients
65
186120
3856
donde encontraríamos
la mayor concentración de pacientes
la mayor concentración de pacientes
03:22
dealing with those issues.
66
190000
1520
que enfrentan esos problemas.
03:24
Then we asked hospitals and facilities
to nominate nurses
to nominate nurses
67
192280
4056
Luego les pedimos a hospitales
y centros nominar a los enfermeros
y centros nominar a los enfermeros
03:28
who would best represent them.
68
196360
1520
que mejor los representarían.
Una de las primeras enfermeras
que conocí fue Bridget Kumbella.
que conocí fue Bridget Kumbella.
03:30
One of the first nurses I met
was Bridget Kumbella.
was Bridget Kumbella.
69
198800
2840
03:34
Bridget was born in Cameroon,
70
202200
1616
Bridget nació en Camerún,
03:35
the oldest of four children.
71
203840
1840
es la mayor de cuatro hijos.
03:38
Her father was at work
when he had fallen from the fourth floor
when he had fallen from the fourth floor
72
206400
3856
Su padre estaba trabajando
y cayó de un cuarto piso
y cayó de un cuarto piso
03:42
and really hurt his back.
73
210280
1976
y se lesionó gravemente la espalda.
03:44
And he talked a lot about what it was like
to be flat on your back
to be flat on your back
74
212280
4136
Y habló mucho de lo que era
estar acostado boca arriba
y no recibir el tratamiento necesario.
y no recibir el tratamiento necesario.
03:48
and not get the kind
of care that you need.
of care that you need.
75
216440
2440
03:51
And that propelled Bridget
to go into the profession of nursing.
to go into the profession of nursing.
76
219400
3760
Eso impulsó a Bridget hacia la enfermería.
03:56
Now, as a nurse in the Bronx,
77
224000
1616
Ahora, como enfermera en el Bronx,
cuida a un grupo muy diverso de pacientes,
cuida a un grupo muy diverso de pacientes,
03:57
she has a really diverse group
of patients that she cares for,
of patients that she cares for,
78
225640
3416
04:01
from all walks of life,
79
229080
1896
de todos los orígenes y religiones.
04:03
and from all different religions.
80
231000
1960
04:05
And she's devoted her career
to understanding the impact
to understanding the impact
81
233400
4176
Y ha dedicado su carrera
a entender el impacto
a entender el impacto
04:09
of our cultural differences
when it comes to our health.
when it comes to our health.
82
237600
3600
de las diferencias culturales
en materia de salud.
en materia de salud.
04:14
She spoke of a patient --
83
242280
1336
Ella habló de un paciente
04:15
a Native American patient that she had --
84
243640
2696
- un paciente aborigen -
04:18
that wanted to bring
a bunch of feathers into the ICU.
a bunch of feathers into the ICU.
85
246360
3720
que quería ingresar a la UCI
con un puñado de plumas
con un puñado de plumas
04:23
That's how he found spiritual comfort.
86
251080
3016
porque le daba consuelo espiritual.
04:26
And she spoke of advocating for him
87
254120
2216
Y habló de cómo lo apoyó
04:28
and said that patients come
from all different religions
from all different religions
88
256360
2776
y dijo que los pacientes
tienen distintas religiones
tienen distintas religiones
04:31
and use all different kinds
of objects for comfort;
of objects for comfort;
89
259160
3896
y usan todo tipo de objetos
como consuelo espiritual;
como consuelo espiritual;
04:35
whether it's a holy rosary
or a symbolic feather,
or a symbolic feather,
90
263080
3256
sea un santo rosario
o una pluma simbólica,
o una pluma simbólica,
04:38
it all needs to be supported.
91
266360
1760
todo debe apoyarse.
04:41
This is Jason Short.
92
269200
1816
Este es Jason Short.
04:43
Jason is a home health nurse
in the Appalachian mountains,
in the Appalachian mountains,
93
271040
3056
Jason se desplaza a los hogares
de las montañas de los Apalaches,
de las montañas de los Apalaches,
04:46
and his dad had a gas station
and a repair shop when he was growing up.
and a repair shop when he was growing up.
94
274120
4376
y su padre tenía una gasolinera
y un taller de reparación en su infancia.
y un taller de reparación en su infancia.
04:50
So he worked on cars in the community
that he now serves as a nurse.
that he now serves as a nurse.
95
278520
4320
Así que antes de trabajar como enfermero
en la comunidad se ocupaba de automóviles.
en la comunidad se ocupaba de automóviles.
Cuando estaba en la universidad,
04:55
When he was in college,
96
283600
1256
04:56
it was just not macho at all
to become a nurse,
to become a nurse,
97
284880
3656
no tuvo el coraje suficiente
para ser enfermero,
para ser enfermero,
05:00
so he avoided it for years.
98
288560
2176
así que evitó esa ocupación durante años.
05:02
He drove trucks for a little while,
99
290760
1936
Durante un tiempo condujo camiones,
05:04
but his life path was always
pulling him back to nursing.
pulling him back to nursing.
100
292720
3480
pero los caminos de la vida
lo llevaron de nuevo a la enfermería.
lo llevaron de nuevo a la enfermería.
05:10
As a nurse in the Appalachian mountains,
101
298240
1976
Como enfermero en los Apalaches,
05:12
Jason goes places
that an ambulance can't even get to.
that an ambulance can't even get to.
102
300240
3816
Jason va a lugares a los que ni siquiera
una ambulancia puede llegar.
una ambulancia puede llegar.
05:16
In this photograph,
he's standing in what used to be a road.
he's standing in what used to be a road.
103
304080
3440
En esta foto, está posando en medio
de lo que solía ser un camino.
de lo que solía ser un camino.
05:20
Top of the mountain mining
flooded that road,
flooded that road,
104
308080
2816
La minería de montaña inundó ese camino
05:22
and now the only way
for Jason to get to the patient
for Jason to get to the patient
105
310920
3296
y la única manera que tiene
Jason ahora de llegar al paciente
Jason ahora de llegar al paciente
05:26
living in that house
with black lung disease
with black lung disease
106
314240
2896
que vive en esa casa con neumoconiosis
05:29
is to drive his SUV
against the current up that creek.
against the current up that creek.
107
317160
4320
es conducir su todoterreno
contracorriente por ese arroyo.
contracorriente por ese arroyo.
05:34
The day I was with him,
we ripped the front fender off the car.
we ripped the front fender off the car.
108
322360
3080
El día que fui con él, arrancamos
el parachoques delantero del auto.
el parachoques delantero del auto.
05:38
The next morning he got up,
put the car on the lift,
put the car on the lift,
109
326160
3216
A la mañana siguiente se levantó,
puso el auto en la fosa,
reparó el parachoques
reparó el parachoques
05:41
fixed the fender,
110
329400
1256
05:42
and then headed out
to meet his next patient.
to meet his next patient.
111
330680
2096
y luego se fue a ver
a su próximo paciente.
a su próximo paciente.
05:45
I witnessed Jason
caring for this gentleman
caring for this gentleman
112
333680
3256
Fui testigo de cómo Jason
cuidó a este caballero
cuidó a este caballero
05:48
with such enormous compassion,
113
336960
2816
con enorme compasión
05:51
and I was struck again by how intimate
the work of nursing really is.
the work of nursing really is.
114
339800
5000
y me sorprendió de nuevo lo íntimo
que es en realidad la enfermería.
que es en realidad la enfermería.
05:58
When I met Brian McMillion, he was raw.
115
346040
3096
Cuando conocí a Brian McMillion,
era un novato.
era un novato.
06:01
He had just come back from a deployment
116
349160
2616
Regresaba por baja del ejército
06:03
and he hadn't really settled back in
to life in San Diego yet.
to life in San Diego yet.
117
351800
4576
y todavía no se había acomodado
de nuevo a la vida en San Diego.
de nuevo a la vida en San Diego.
06:08
He talked about his experience
of being a nurse in Germany
of being a nurse in Germany
118
356400
3536
Habló de su experiencia
como enfermero en Alemania
como enfermero en Alemania
06:11
and taking care of the soldiers
coming right off the battlefield.
coming right off the battlefield.
119
359960
3976
y de cómo cuidó a los soldados
que regresaban del campo de batalla.
que regresaban del campo de batalla.
06:15
Very often, he would be
the first person they would see
the first person they would see
120
363960
3776
Muy a menudo, él sería
la primera persona que verían
la primera persona que verían
06:19
when they opened
their eyes in the hospital.
their eyes in the hospital.
121
367760
2080
al abrir los ojos en el hospital.
06:22
And they would look at him
as they were lying there,
as they were lying there,
122
370480
2576
En cama y con miembros amputados,
al verle, lo primero que le decían era:
al verle, lo primero que le decían era:
06:25
missing limbs,
123
373080
1656
06:26
and the first thing they would say is,
124
374760
2616
"¿Cuándo puedo volver?
Dejé a mis compañeros allí".
Dejé a mis compañeros allí".
06:29
"When can I go back?
I left my brothers out there."
I left my brothers out there."
125
377400
3720
06:34
And Brian would have to say,
126
382080
1536
Y Brian les decía:
06:35
"You're not going anywhere.
127
383640
1576
"No vas a ninguna parte.
Ya has dado suficiente, hermano".
Ya has dado suficiente, hermano".
06:37
You've already given enough, brother."
128
385240
1840
06:40
Brian is both a nurse and a soldier
who's seen combat.
who's seen combat.
129
388000
4760
Brian es a la vez un enfermero
y un soldado que ha estado en combate.
y un soldado que ha estado en combate.
06:45
So that puts him in a unique position
130
393280
2056
Tiene una posición privilegiada
06:47
to be able to relate to and help heal
the veterans in his care.
the veterans in his care.
131
395360
4360
que le permite empatizar y ayudar
a sanar a los veteranos que atiende.
a sanar a los veteranos que atiende.
06:53
This is Sister Stephen,
132
401560
1496
Esta es la hermana Stephen.
06:55
and she runs a nursing home
in Wisconsin called Villa Loretto.
in Wisconsin called Villa Loretto.
133
403080
4216
Ella dirige un hogar de ancianos
en Wisconsin llamado Villa Loretto.
en Wisconsin llamado Villa Loretto.
06:59
And the entire circle of life
can be found under her roof.
can be found under her roof.
134
407320
4456
Y bajo su techo se puede
encontrar todo tipo de vida.
encontrar todo tipo de vida.
07:03
She grew up wishing they lived on a farm,
135
411800
2456
Creció deseando vivir en una granja,
07:06
so given the opportunity
to adopt local farm animals,
to adopt local farm animals,
136
414280
4696
así que al tener la oportunidad
de adoptar animales de granja,
de adoptar animales de granja,
07:11
she enthusiastically brings them in.
137
419000
3056
los acogió entusiasmada.
07:14
And in the springtime,
those animals have babies.
those animals have babies.
138
422080
3536
Y en primavera, esos animales
tienen cachorros.
tienen cachorros.
07:17
And Sister Stephen uses
those baby ducks, goats and lambs
those baby ducks, goats and lambs
139
425640
5176
Y la hermana Stephen usa
esos patitos, cabritas y corderos
esos patitos, cabritas y corderos
07:22
as animal therapy
for the residents at Villa Loretto
for the residents at Villa Loretto
140
430840
4256
como zooterapia para
los residentes de Villa Loretto
los residentes de Villa Loretto
07:27
who sometimes can't
remember their own name,
remember their own name,
141
435120
3336
que a veces no pueden recordar
sus propios nombres,
sus propios nombres,
07:30
but they do rejoice
in the holding of a baby lamb.
in the holding of a baby lamb.
142
438480
3560
pero se alegran de sostener
en sus manos un corderito.
en sus manos un corderito.
El día que estuve con la hermana Stephen,
07:35
The day I was with Sister Stephen,
143
443400
1816
07:37
I needed to take her away
from Villa Loretto
from Villa Loretto
144
445240
2096
tenía que sacarla de Villa Loretto
para rodar parte de su historia.
para rodar parte de su historia.
07:39
to film part of her story.
145
447360
2096
07:41
And before we left,
146
449480
1256
Y antes de irnos entró en la habitación
de un paciente moribundo.
de un paciente moribundo.
07:42
she went into the room of a dying patient.
147
450760
2480
07:46
And she leaned over and she said,
148
454000
2776
Y se inclinó y dijo:
07:48
"I have to go away for the day,
149
456800
1920
"Tengo que irme durante el día,
07:51
but if Jesus calls you,
150
459520
1696
pero si Jesús te llama,
07:53
you go.
151
461240
1216
tú ve.
07:54
You go straight home to Jesus."
152
462480
2160
Ve directo a la casa de Jesús".
07:57
I was standing there and thinking
153
465280
2576
Me quedé allí pensando
07:59
it was the first time in my life
154
467880
2016
que era la primera vez en mi vida
08:01
I witnessed that you could show
someone you love them completely
someone you love them completely
155
469920
4296
que fui testigo de que se podía mostrar
amor incondicional a alguien
amor incondicional a alguien
08:06
by letting go.
156
474240
1200
dejándole ir.
08:08
We don't have to hold on so tightly.
157
476040
2320
No tenemos que aferrarnos tanto.
08:11
I saw more life rolled up at Villa Loretto
158
479400
3576
Vi más vida en Villa Loretto
08:15
than I have ever seen at any other time
at any other place in my life.
at any other place in my life.
159
483000
5040
que en ningún otro momento
y en ningún otro lugar en mi vida.
y en ningún otro lugar en mi vida.
08:21
We live in a complicated time
when it comes to our health care.
when it comes to our health care.
160
489320
4056
Vivimos tiempos complicados
en lo que a la salud respecta.
en lo que a la salud respecta.
08:25
It's easy to lose sight
of the need for quality of life,
of the need for quality of life,
161
493400
4176
Es fácil perder de vista la necesidad
de cuidar cuánto vivimos
sino con qué calidad lo hacemos.
sino con qué calidad lo hacemos.
08:29
not just quantity of life.
162
497600
1720
08:32
As new life-saving
technologies are created,
technologies are created,
163
500120
3416
Conforme se creen
nuevas tecnologías que salven vidas,
nuevas tecnologías que salven vidas,
08:35
we're going to have really
complicated decisions to make.
complicated decisions to make.
164
503560
3000
tendremos que tomar
decisiones complicadas.
decisiones complicadas.
08:39
These technologies often save lives,
165
507280
2856
Estas tecnologías a menudo salvan vidas,
08:42
but they can also prolong pain
and the dying process.
and the dying process.
166
510160
3920
pero también pueden prolongar
el dolor y la agonía de la muerte.
el dolor y la agonía de la muerte.
08:47
How in the world are we supposed
to navigate these waters?
to navigate these waters?
167
515919
2897
¿Cómo se supone que lidiaremos con esto?
08:50
We're going to need
all the help we can get.
all the help we can get.
168
518840
2048
Necesitaremos toda la ayuda posible.
08:53
Nurses have a really unique
relationship with us
relationship with us
169
521760
3576
Los enfermeros tienen
una relación única con nosotros
una relación única con nosotros
08:57
because of the time spent at bedside.
170
525360
2480
porque pasan tiempo junto a nuestra cama.
09:00
During that time,
171
528760
1216
Durante ese tiempo se crea
una cierta intimidad emocional.
una cierta intimidad emocional.
09:02
a kind of emotional intimacy develops.
172
530000
2520
09:06
This past summer, on August 9,
173
534640
2576
El pasado verano, el 9 de agosto,
09:09
my father died of a heart attack.
174
537240
1920
mi padre murió de un ataque al corazón.
09:12
My mother was devastated,
175
540600
1656
Mi madre estaba devastada
09:14
and she couldn't imagine
her world without him in it.
her world without him in it.
176
542280
3960
y no podía imaginar su mundo sin él.
09:19
Four days later she fell,
177
547360
1936
Cuatro días después se cayó,
se quebró la cadera,
se quebró la cadera,
09:21
she broke her hip,
178
549320
1856
09:23
she needed surgery
179
551200
1496
necesitaba cirugía y se encontró
luchando por su propia vida.
luchando por su propia vida.
09:24
and she found herself
fighting for her own life.
fighting for her own life.
180
552720
2920
09:28
Once again I found myself
181
556880
1736
Una vez más me encontré
09:30
on the receiving end
of the care of nurses --
of the care of nurses --
182
558640
2976
recibiendo el cuidado de los enfermeros...
09:33
this time for my mom.
183
561640
1440
esta vez para mi mamá.
09:36
My brother and my sister and I
stayed by her side
stayed by her side
184
564200
2536
Mi hermano, mi hermana y yo
nos quedamos a su lado
nos quedamos a su lado
09:38
for the next three days in the ICU.
185
566760
2440
los siguientes tres días en la UCI.
09:41
And as we tried
to make the right decisions
to make the right decisions
186
569960
3136
Mientras tratábamos de tomar
las decisiones correctas
las decisiones correctas
09:45
and follow my mother's wishes,
187
573120
2376
y seguir los deseos de mi madre,
09:47
we found that we were depending
upon the guidance of nurses.
upon the guidance of nurses.
188
575520
3920
descubrimos que dependíamos
de los consejos de los enfermeros.
de los consejos de los enfermeros.
09:52
And once again,
189
580200
1456
Y una vez más,
09:53
they didn't let us down.
190
581680
1520
no nos defraudaron.
09:56
They had an amazing insight
in terms of how to care for my mom
in terms of how to care for my mom
191
584600
4776
Tuvieron una visión increíble
sobre cómo cuidar a mi mamá
en sus últimos cuatro días de vida.
en sus últimos cuatro días de vida.
10:01
in the last four days of her life.
192
589400
2256
10:03
They brought her comfort
and relief from pain.
and relief from pain.
193
591680
3160
Le ofrecieron consuelo
y le aliviaron el dolor.
y le aliviaron el dolor.
10:08
They knew to encourage my sister and I
to put a pretty nightgown on my mom,
to put a pretty nightgown on my mom,
194
596320
5256
Supieron animarnos a mi hermana y a mí
para ponerle un camisón bonito a mamá,
para ponerle un camisón bonito a mamá,
10:13
long after it mattered to her,
195
601600
1896
mucho después de que ya no le importara
10:15
but it sure meant a lot to us.
196
603520
1800
pero sí y mucho a nosotros.
10:19
And they knew to come and wake me up
just in time for my mom's last breath.
just in time for my mom's last breath.
197
607000
5760
Y supieron despertarme justo a tiempo
para el último aliento de mi madre.
para el último aliento de mi madre.
Y luego supieron cuánto tiempo
dejarme en la habitación con ella
dejarme en la habitación con ella
10:25
And then they knew
how long to leave me in the room
how long to leave me in the room
198
613600
2416
10:28
with my mother after she died.
199
616040
1680
luego de su muerte.
10:30
I have no idea how they know these things,
200
618960
3736
No tengo idea de cómo saben esas cosas,
10:34
but I do know that I am eternally grateful
201
622720
3136
pero sí sé que les estoy
eternamente agradecida
eternamente agradecida
10:37
that they've guided me once again.
202
625880
1800
por guiarme una vez más.
10:40
Thank you so very much.
203
628920
1496
Muchas gracias.
10:42
(Applause)
204
630440
4997
(Aplausos)
ABOUT THE SPEAKER
Carolyn Jones - Photographic ethnographerCarolyn Jones creates projects that point our attention towards issues of global concern.
Why you should listen
Best known for her socially proactive photographs and documentary films, Carolyn Jones creates projects that point our attention towards issues of global concern. From people "living positively" with AIDS to women artisans supporting entire communities and nurses on the front lines of our health care system, Carolyn Jones has devoted her career to celebrating invisible populations and breaking down barriers.
Jones has spent the past five years interviewing more than 150 nurses from every corner of the US in an effort to better understand the role of nurses in this country's healthcare system. She published the critically-acclaimed book The American Nurse: Photographs and Interviews by Carolyn Jones, for which she was interviewed on PBS NewsHour and featured in the New York Times, the Washington Post and USA Today. She directed and executive-produced the follow-up documentary film The American Nurse: Healing America, which was released in theaters nationwide and was an official selection of the 2015 American Film Showcase, a cultural diplomacy program of the US Department of State.
Jones has spent her career focused on telling personal stories, and her first introduction to nursing was through a very personal experience of her own, when it was a nurse who helped her get through breast cancer. That experience stuck with her, so when she started working on the American Nurse Project in 2011, she was determined to paint a rich and dynamic portrait of the profession. The goal was to cover as much territory as possible, with the hope that along the way she would capture stories touching on the kinds of issues that nurses are dealing with in every corner of the country. The project explores the American experiences of health care, poverty, childbirth, war, imprisonment and the end of life through the lens of nursing.
Prior to The American Nurse, her most widely acclaimed book, Living Proof: Courage in the Face of AIDS, was published by Abbeville Press and was accompanied by shows in Tokyo, Berlin, the USA, and at the United Nations World AIDS Conference. In addition to her multiple exhibitions, book and magazine publications, Jones has collaborated on projects with Oxygen Media, PBS and the Girl Scouts of the USA. She founded the non-profit 100 People Foundation for which she travels the world telling stories that celebrate our global neighbors. As a lecturer, Jones has spoken at conferences, universities and events around the globe. In 2012 she was honored as one of 50 "Everyday Heroes" in the book of that title for her work with the 100 People Foundation.
Jones' career was punctuated by two brushes with death: first, running out of gas in the Sahara as a racecar driver, and second, a breast cancer diagnosis. Her newest project, the forthcoming documentary Defining Hope, is the culmination of a journey investigating how we can make better end-of-life choices.
Carolyn Jones | Speaker | TED.com