ABOUT THE SPEAKER
Carolyn Jones - Photographic ethnographer
Carolyn Jones creates projects that point our attention towards issues of global concern.

Why you should listen

Best known for her socially proactive photographs and documentary films, Carolyn Jones creates projects that point our attention towards issues of global concern. From people "living positively" with AIDS to women artisans supporting entire communities and nurses on the front lines of our health care system, Carolyn Jones has devoted her career to celebrating invisible populations and breaking down barriers.

Jones has spent the past five years interviewing more than 150 nurses from every corner of the US in an effort to better understand the role of nurses in this country's healthcare system. She published the critically-acclaimed book The American Nurse: Photographs and Interviews by Carolyn Jones, for which she was interviewed on PBS NewsHour and featured in the New York Times, the Washington Post and USA Today. She directed and executive-produced the follow-up documentary film The American Nurse: Healing America, which was released in theaters nationwide and was an official selection of the 2015 American Film Showcase, a cultural diplomacy program of the US Department of State.

Jones has spent her career focused on telling personal stories, and her first introduction to nursing was through a very personal experience of her own, when it was a nurse who helped her get through breast cancer. That experience stuck with her, so when she started working on the American Nurse Project in 2011, she was determined to paint a rich and dynamic portrait of the profession. The goal was to cover as much territory as possible, with the hope that along the way she would capture stories touching on the kinds of issues that nurses are dealing with in every corner of the country. The project explores the American experiences of health care, poverty, childbirth, war, imprisonment and the end of life through the lens of nursing.

Prior to The American Nurse, her most widely acclaimed book, Living Proof: Courage in the Face of AIDS, was published by Abbeville Press and was accompanied by shows in Tokyo, Berlin, the USA, and at the United Nations World AIDS Conference. In addition to her multiple exhibitions, book and magazine publications, Jones has collaborated on projects with Oxygen Media, PBS and the Girl Scouts of the USA. She founded the non-profit 100 People Foundation for which she travels the world telling stories that celebrate our global neighbors. As a lecturer, Jones has spoken at conferences, universities and events around the globe. In 2012 she was honored as one of 50 "Everyday Heroes" in the book of that title for her work with the 100 People Foundation.

Jones' career was punctuated by two brushes with death: first, running out of gas in the Sahara as a racecar driver, and second, a breast cancer diagnosis. Her newest project, the forthcoming documentary Defining Hope, is the culmination of a journey investigating how we can make better end-of-life choices. 

More profile about the speaker
Carolyn Jones | Speaker | TED.com
TEDMED 2016

Carolyn Jones: A tribute to nurses

Carolyn Jones: Sebuah penghargaan untuk perawat

Filmed:
1,375,400 views

Lima tahun Caroly Jones mewawancarai, memfoto dan memfilmkan para perawat di seluruh Amerika, mengunjungi tempat-tempat yang memiliki masalah kesehatan masyarakat terbesar di negara tersebut. Dia berbagi tentang kisah pribadi dari pahlawan yang sangat berdedikasi yang bekerja di lini terdepan dalam pelayanan kesehatan.
- Photographic ethnographer
Carolyn Jones creates projects that point our attention towards issues of global concern. Full bio

Double-click the English transcript below to play the video.

00:12
As patientspasien,
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Sebagai pasien,
00:13
we usuallybiasanya rememberingat
the namesnama of our doctorsdokter,
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kita biasanya ingat nama dokter
yang merawat kita,
00:17
but oftensering we forgetlupa
the namesnama of our nursesperawat.
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tapi seringkali kita lupa nama
perawat yang merawat kita.
00:21
I rememberingat one.
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Saya ingat namanya.
00:23
I had breastpayudara cancerkanker a fewbeberapa yearstahun agolalu,
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Saya sakit kanker payudara
beberapa tahun lalu
00:25
and somehowentah bagaimana I managedberhasil
to get throughmelalui the surgeriesoperasi
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dan entah bagaimana saya berhasil
melewati operasi
00:29
and the beginningawal
of the treatmentpengobatan just fine.
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dan awal perawatan berjalan lancar.
00:31
I could hidemenyembunyikan what was going on.
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Saya dapat menyembunyikan
apa yang terjadi.
00:34
EverybodySemua orang didn't really have to know.
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Semua orang tidak perlu tahu.
00:36
I could walkberjalan my daughterputri to schoolsekolah,
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Saya bisa mengantar putri saya ke sekolah,
00:38
I could go out to dinnermakan malam with my husbandSuami;
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Saya bisa makan malam bersama suami;
00:40
I could foolmenipu people.
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Saya bisa mengelabui orang-orang.
00:42
But then my chemokemoterapi was scheduleddijadwalkan to beginmulai
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Namun saat jadwal kemoterapi saya dimulai
00:45
and that terrifiedketakutan me
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itu membuat saya takut
00:46
because I knewtahu that I was going to losekalah
everysetiap singletunggal hairrambut on my bodytubuh
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karena saya tahu rambut saya akan rontok
00:51
because of the kindjenis of chemokemoterapi
that I was going to have.
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akibat kemoterapi yang akan saya jalani.
00:54
I wasn'ttidak going to be ablesanggup
to pretendberpura-pura anymorelagi
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Saya tidak bisa berpura-pura lagi
00:56
as thoughmeskipun everything was normalnormal.
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seolah-olah segalanya normal.
00:59
I was scaredtakut.
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Saya takut.
01:00
I knewtahu what it feltmerasa like to have
everybodysemua orang treatingmengobati me with kidanak glovessarung tangan,
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Saya tahu rasanya setiap orang
mengasihani saya,
01:04
and I just wanted to feel normalnormal.
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dan saya hanya ingin merasa normal.
01:06
I had a portpelabuhan installedterinstal in my chestdada.
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Ada alat yang dipasang di dada saya.
01:08
I wentpergi to my first day of chemotherapykemoterapi,
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Saya menjalani hari pertama kemoterapi,
01:11
and I was an emotionalemosional wreckkecelakaan.
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dan saya sangat terguncang.
01:14
My nurseperawat, JoanneJoanne, walkedberjalan in the doorpintu,
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Perawat saya, Joanne, masuk pintu
01:17
and everysetiap bonetulang in my bodytubuh was tellingpemberitaan
me to get up out of that chairkursi
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dan anggota tubuh saya meminta saya untuk
bangkit dari kursi
01:21
and take for the hillsbukit.
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dan lari sejauh mungkin.
01:22
But JoanneJoanne lookedtampak at me and talkedberbicara
to me like we were oldtua friendsteman.
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Tapi Joanne bersikap seolah-olah kami
teman lama.
01:27
And then she askedtanya me,
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Kemudian dia bertanya,
01:28
"Where'dMana telah you get your highlightshighlight doneselesai?"
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"Di mana kamu menyemir rambutmu?"
01:30
(LaughterTawa)
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(Tertawa)
01:31
And I was like, are you kiddingbercanda me?
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Apakah Anda bercanda?
01:33
You're going to talk to me about my hairrambut
when I'm on the vergeambang of losingkekalahan it?
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Anda bicara tentang rambut saya ketika
saya akan segera kehilangannya?
01:38
I was kindjenis of angrymarah,
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Saya agak marah,
01:40
and I said, "Really? HairRambut?"
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dan saya jawab, "Benarkah? Rambut?"
01:43
And with a shrugmengangkat bahu
of her shouldersbahu she said,
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Sambil mengangkat bahu, dia berkata,
01:46
"It's gonna growtumbuh back."
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"Itu akan tumbuh lagi."
01:48
And in that momentsaat she said
the one thing I had overlookeddiabaikan,
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Saat dia mengatakan itu, satu hal
yang saya lupakan,
01:51
and that was that at some pointtitik,
my life would get back to normalnormal.
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bahwa pada suatu saat,
hidup saya akan kembali normal.
01:55
She really believedpercaya that.
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Dia sangat yakin akan hal itu.
01:57
And so I believedpercaya it, too.
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Dan saya juga meyakininya.
01:59
Now, worryingmengkhawatirkan about losingkekalahan your hairrambut
when you're fightingberjuang cancerkanker
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Sekarang, khawatir kehilangan rambut
saat melawan kanker
02:04
maymungkin seemterlihat sillybodoh at first,
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mungkin tampak konyol pada awalnya
02:05
but it's not just that you're worriedcemas
about how you're going to look.
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tetapi tidak hanya penampilan yang
membuat Anda khawatir,
02:10
It's that you're worriedcemas that everybody'ssemua orang
going to treatmemperlakukan you so carefullyhati-hati.
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tapi bagaimana sikap orang terhadap anda
yang Anda khawatirkan.
02:14
JoanneJoanne madeterbuat me feel normalnormal
for the first time in sixenam monthsbulan.
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Joanne membuat saya merasa normal
untuk pertama kalinya sejak enam bulan.
02:18
We talkedberbicara about her boyfriendspacar,
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Kami berbincang tentang pacarnya,
02:20
we talkedberbicara about looking
for apartmentsapartemen in NewBaru YorkYork CityKota,
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kami bicara tentang mencari apartemen di
kota New York,
02:22
and we talkedberbicara about my reactionreaksi
to the chemotherapykemoterapi --
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kami bicara tentang reaksi saya terhadap
kemoterapi --
02:25
all kindjenis of mixedcampur aduk in togetherbersama.
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segala sesuatu yang campur aduk.
02:28
And I always wonderedbertanya-tanya,
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Saya selalu bertanya-tanya,
02:30
how did she so instinctivelysecara naluriah
know just how to talk to me?
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bagaimana dia tahu cara berbicara
dengan saya?
02:35
JoanneJoanne StahaStaha and my admirationkekaguman for her
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Joanne Staha dan kekaguman saya kepadanya
02:38
markedditandai the beginningawal of my journeyperjalanan
into the worlddunia of nursesperawat.
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menandai dimulainya perjalanan saya
ke dunia perawat.
02:43
A fewbeberapa yearstahun laterkemudian,
I was askedtanya to do a projectproyek
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Beberapa tahun kemudian,
saya punya proyek
02:45
that would celebratemerayakan
the work that nursesperawat do.
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untuk merayakan kiprah para perawat.
02:49
I starteddimulai with JoanneJoanne,
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Saya mulai dengan Joanne,
02:50
and I metbertemu over 100 nursesperawat
acrossmenyeberang the countrynegara.
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dan saya berjumpa dengan lebih dari
100 perawat di Amerika.
02:54
I spentmenghabiskan fivelima yearstahun interviewingwawancara,
photographingmemotret and filmingfilm nursesperawat
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Lima tahun saya mewawancarai, memfoto dan
memfilmkan perawat
02:59
for a bookBook and a documentarydokumenter filmfilm.
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untuk sebuah buku dan film dokumenter.
03:02
With my teamtim,
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Dengan tim saya,
03:03
we mappeddipetakan a tripperjalanan acrossmenyeberang AmericaAmerika
that would take us to placestempat
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kami memetakan perjalanan melintasi
Amerika yang akan membawa kami
03:07
dealingberurusan with some of the biggestterbesar
publicpublik healthkesehatan issuesMasalah facingmenghadapi our nationbangsa --
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berurusan dengan masalah kesehatan
masyarakat terbesar di negara kita --
03:12
agingpenuaan, warperang, povertykemiskinan, prisonspenjara.
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penuaan, peperangan, kemiskinan, penjara.
03:16
And then we wentpergi placestempat
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Kemudian kami pergi ke
03:18
where we would find
the largestterbesar concentrationkonsentrasi of patientspasien
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tempat di mana kami akan menemukan
konsentrasi terbesar pasien
03:22
dealingberurusan with those issuesMasalah.
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yang menghadapi masalah itu.
03:24
Then we askedtanya hospitalsrumah sakit and facilitiesfasilitas
to nominatemencalonkan nursesperawat
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Kami meminta rumah sakit dan fasilitas
untuk menunjuk perawat
03:28
who would bestterbaik representmewakili them.
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yang akan mewakili mereka.
03:30
One of the first nursesperawat I metbertemu
was BridgetBridget KumbellaKumbella.
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Perawat pertama yang saya temui
adalah Bridget Kumbella.
03:34
BridgetBridget was bornlahir in CameroonKamerun,
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Bridget dilahirkan di Kamerun,
03:35
the oldesttertua of fourempat childrenanak-anak.
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anak tertua dari empat saudara.
03:38
Her fatherayah was at work
when he had fallenjatuh from the fourthkeempat floorlantai
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Ayahnya terjatuh dari lantai empat
tempat kerjanya
03:42
and really hurtmenyakiti his back.
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dan sangat mencederai punggungnya.
03:44
And he talkedberbicara a lot about what it was like
to be flatdatar on your back
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Dan dia banyak bicara tentang
bagaimana rasanya terbaring telentang
03:48
and not get the kindjenis
of carepeduli that you need.
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dan tidak mendapatkan perawatan
yang memadai.
03:51
And that propelleddidorong BridgetBridget
to go into the professionprofesi of nursingKeperawatan.
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Hal itu yang mendorong Bridget untuk
menekuni profesi perawat.
03:56
Now, as a nurseperawat in the BronxBronx,
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Sekarang, sebagai perawat di Bronx
03:57
she has a really diverseberbeda groupkelompok
of patientspasien that she careskekuatiran for,
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dia melayani berbagai kelompok pasien,
04:01
from all walksberjalan of life,
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dari semua lapisan masyarakat,
04:03
and from all differentberbeda religionsagama.
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dan dari agama yang berbeda.
04:05
And she's devoteddikhususkan her careerkarier
to understandingpengertian the impactdampak
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Dan dia mengabdikan karirnya
untuk mengerti dampak
04:09
of our culturalkultural differencesperbedaan
when it comesdatang to our healthkesehatan.
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dari perbedaan budaya
terhadap kesehatan.
04:14
She spokeberbicara of a patientsabar --
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Dia berbicara tentang pasien
04:15
a NativeAsli AmericanAmerika Serikat patientsabar that she had --
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-- seorang pribumi Amerika --
04:18
that wanted to bringmembawa
a bunchbanyak of feathersbulu into the ICUICU.
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yang ingin membawa seikat bulu ke ICU.
04:23
That's how he foundditemukan spiritualrohani comfortkenyamanan.
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Begitulah ia menemukan ketenangan spritual
04:26
And she spokeberbicara of advocatingadvokasi for him
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Dan dia membelanya
04:28
and said that patientspasien come
from all differentberbeda religionsagama
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dan mengatakan para pasien
berasal dari agama yang berbeda
04:31
and use all differentberbeda kindsmacam
of objectsbenda for comfortkenyamanan;
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dan menggunakan berbagai objek
untuk menenangkan,
04:35
whetherapakah it's a holyKudus rosaryRosario
or a symbolicsimbolis featherbulu,
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apakah itu tasbih atau bulu simbolis,
04:38
it all needskebutuhan to be supporteddidukung.
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semuanya perlu didukung.
04:41
This is JasonJason ShortPendek.
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Ini adalah Jason Short.
04:43
JasonJason is a home healthkesehatan nurseperawat
in the AppalachianAppalachian mountainsgunung,
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Jason adalah perawat kesehatan rumah di
pegunungan Appalachian,
04:46
and his dadayah had a gasgas stationstasiun
and a repairperbaikan shoptoko when he was growingpertumbuhan up.
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dan ayahnya memiliki pom bensin
dan bengkel ketika dia kecil.
04:50
So he workedbekerja on carsmobil in the communitymasyarakat
that he now servesmelayani as a nurseperawat.
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Dulu dia memperbaiki mobil di komunitasnya
yang sekarang dia layani sebagai perawat.
04:55
When he was in collegeperguruan tinggi,
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Ketika dia di universitas,
04:56
it was just not machomacho at all
to becomemenjadi a nurseperawat,
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sama sekali tidak macho
jika menjadi perawat,
05:00
so he avoideddihindari it for yearstahun.
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sehingga ia mengabaikannya bertahun-tahun.
05:02
He drovemelaju truckstruk for a little while,
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Dia pernah jadi supir truk,
05:04
but his life pathjalan was always
pullingmenarik him back to nursingKeperawatan.
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tapi jalan hidupnya selalu mengembalikan
dirinya ke perawat.
05:10
As a nurseperawat in the AppalachianAppalachian mountainsgunung,
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Sebagai perawat di pegunungan Appalachia,
05:12
JasonJason goespergi placestempat
that an ambulanceambulans can't even get to.
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Jason pergi ke tempat yang tidak bisa
dijangkau oleh ambulans.
05:16
In this photographfoto,
he's standingkedudukan in what used to be a roadjalan.
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Dalam foto ini, dia berdiri di tempat yang
dulunya adalah jalan.
05:20
TopAtas of the mountaingunung miningpertambangan
floodedbanjir that roadjalan,
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Penambangan di puncak gunung
membanjiri jalan itu,
05:22
and now the only way
for JasonJason to get to the patientsabar
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dan sekarang satu-satunya jalan bagi
Jason untuk mengunjungi pasien
05:26
livinghidup in that houserumah
with blackhitam lungparu-paru diseasepenyakit
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yang tinggal di rumah itu dengan
penyakit paru-paru hitam
05:29
is to drivemendorong his SUVSUV
againstmelawan the currentarus up that creekCreek.
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adalah mengendarai SUV-nya melewati
sungai kecil itu.
05:34
The day I was with him,
we rippedrobek the frontdepan fenderFender off the carmobil.
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Saat saya bersamanya,
bemper depan mobil itu robek.
05:38
The nextberikutnya morningpagi he got up,
put the carmobil on the liftmengangkat,
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Keesokan paginya dia bangun,
mengangkat mobilnya,
05:41
fixedtetap the fenderFender,
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dan memperbaiki bemper,
05:42
and then headedmenuju out
to meetmemenuhi his nextberikutnya patientsabar.
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dan kemudian menemui pasien berikutnya.
05:45
I witnesseddisaksikan JasonJason
caringpeduli for this gentlemanpria
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Saya menyaksikan Jason merawat pria ini
05:48
with suchseperti itu enormousbesar sekali compassionbelas kasihan,
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dengan penuh kasih sayang,
05:51
and I was struckmemukul again by how intimateintim
the work of nursingKeperawatan really is.
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dan saya sangat terkesan dengan
bagaimana intimnya kerja perawat.
05:58
When I metbertemu BrianBrian McMillionMcMillion, he was rawmentah.
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Ketika saya bertemu Brian McMillion,
06:01
He had just come back from a deploymentpenggunaan
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dia baru pulang dari penempatan
06:03
and he hadn'ttidak really settledmenetap back in
to life in SanSan DiegoDiego yetnamun.
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dan dia belum benar-benar
kembali bekerja di San Diego.
06:08
He talkedberbicara about his experiencepengalaman
of beingmakhluk a nurseperawat in GermanyJerman
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Dia cerita tentang pengalamannya
menjadi perawat di Jerman
06:11
and takingpengambilan carepeduli of the soldierstentara
comingkedatangan right off the battlefieldmedan perang.
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dan merawat tentara
yang kembali dari medan perang.
06:15
Very oftensering, he would be
the first personorang they would see
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Seringkali dia adalah orang pertama
yang akan mereka lihat
06:19
when they openeddibuka
theirmereka eyesmata in the hospitalRSUD.
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ketika mereka terbangun di rumah sakit.
06:22
And they would look at him
as they were lyingbohong there,
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Dan mereka akan melihat
saat mereka terbaring di sana
06:25
missinghilang limbstungkai,
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kehilangan anggota tubuh,
06:26
and the first thing they would say is,
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ucapan pertama mereka adalah,
06:29
"When can I go back?
I left my brotherskakak beradik out there."
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"Kapan saya bisa kembali?
Saya meninggalkan saudara saya di sana."
06:34
And BrianBrian would have to say,
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Dan Brian akan mengatakan,
06:35
"You're not going anywheredimana saja.
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"Anda tidak akan ke mana-mana.
06:37
You've alreadysudah givendiberikan enoughcukup, brothersaudara."
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Anda sudah cukup mengabdi."
06:40
BrianBrian is bothkedua a nurseperawat and a soldiertentara
who'ssiapa seenterlihat combattempur.
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Brian adalah perawat dan tentara
yang menyaksikan perang.
06:45
So that putsmenempatkan him in a uniqueunik positionposisi
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Jadi dia berada pada posisi yang unik
06:47
to be ablesanggup to relateberhubungan to and help healmenyembuhkan
the veteransveteran in his carepeduli.
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untuk menghubungkan dan membantu
menyembuhkan veteran dalam perawatannya.
06:53
This is SisterAdik StephenStephen,
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Ini adalah Suster Stephen,
06:55
and she runsberjalan a nursingKeperawatan home
in WisconsinWisconsin calledbernama VillaVilla LorettoLoretto.
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dia mengelola rumah jompo
di Wisconsin, namanya Villa Loretto.
06:59
And the entireseluruh circlelingkaran of life
can be foundditemukan underdibawah her roofatap.
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Dan seluruh siklus kehidupan dapat
ditemukan di sana.
07:03
She grewtumbuh up wishingberharap they livedhidup on a farmtanah pertanian,
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Dia bercita-cita ingin tinggal
di sebuah peternakan
07:06
so givendiberikan the opportunitykesempatan
to adoptmengambil locallokal farmtanah pertanian animalshewan,
136
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sehingga punya kesempatan untuk
mengadopsi hewan ternak setempat,
07:11
she enthusiasticallyantusias bringsmembawa them in.
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dia sangat antusias membawa mereka,
07:14
And in the springtimemusim semi,
those animalshewan have babiesbayi.
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Pada musim semi, ternak tersebut beranak.
07:17
And SisterAdik StephenStephen usesmenggunakan
those babybayi ducksBebek, goatskambing and lambsdomba
139
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5176
Dan Suster Stephen menggunakan
anak-anak bebek, kambing, dan domba
07:22
as animalhewan therapyterapi
for the residentspenduduk at VillaVilla LorettoLoretto
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sebagai terapi hewan
bagi penghuni Villa Loretto
07:27
who sometimesterkadang can't
rememberingat theirmereka ownsendiri namenama,
141
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3336
yang terkadang tidak ingat lagi
nama mereka sendiri,
07:30
but they do rejoicebersukacita
in the holdingmemegang of a babybayi lambdomba.
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3560
tetapi mereka menikmati
saat mendekap anak domba.
07:35
The day I was with SisterAdik StephenStephen,
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Saat saya bersama Suster Stephen,
07:37
I neededdibutuhkan to take her away
from VillaVilla LorettoLoretto
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Saya membawa dia pergi dari
Villa Loretto
07:39
to filmfilm partbagian of her storycerita.
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untuk memfilmkan ceritanya.
07:41
And before we left,
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Dan sebelum kami pergi,
07:42
she wentpergi into the roomkamar of a dyingsekarat patientsabar.
147
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dia pergi ke ruang pasien
yang sedang sekarat
07:46
And she leanedbersandar over and she said,
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Dia membungkuk dan berkata,
07:48
"I have to go away for the day,
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1920
"Saya akan pergi seharian,
07:51
but if JesusYesus callspanggilan you,
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jika Yesus memanggilmu,
07:53
you go.
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kamu pergi.
07:54
You go straightlurus home to JesusYesus."
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Kamu pergi langsung ke Yesus."
07:57
I was standingkedudukan there and thinkingberpikir
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Saya berdiri di sana dan berpikir,
07:59
it was the first time in my life
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2016
ini pertama kalinya dalam hidup saya,
08:01
I witnesseddisaksikan that you could showmenunjukkan
someonesome one you love them completelysama sekali
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saya menyaksikan bahwa Anda bisa mencintai
seseorang secara penuh
08:06
by lettingmembiarkan go.
156
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1200
dengan merelakannya pergi
08:08
We don't have to holdmemegang on so tightlyrapat.
157
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Kita tidak harus memegangnya begitu erat.
08:11
I saw more life rolleddigulung up at VillaVilla LorettoLoretto
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3576
Saya melihat begitu banyak kehidupan
berlangsung di Villa Loretto
08:15
than I have ever seenterlihat at any other time
at any other placetempat in my life.
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dibandingkan tempat-tempat lain yang
pernah saya lihat dalam kehidupan saya.
08:21
We livehidup in a complicatedrumit time
when it comesdatang to our healthkesehatan carepeduli.
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4056
Kita hidup dalam zaman yang kompleks bila
terkait dengan pelayanan kesehatan kita.
08:25
It's easymudah to losekalah sightmelihat
of the need for qualitykualitas of life,
161
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4176
Kita mudah mengabaikan kebutuhan
akan kualitas hidup,
08:29
not just quantitykuantitas of life.
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tidak hanya kuantitas hidup.
08:32
As newbaru life-savingmenyelamatkan nyawa
technologiesteknologi are createddiciptakan,
163
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3416
Seiring teknologi terbaru
penyelamat jiwa dibuat,
08:35
we're going to have really
complicatedrumit decisionskeputusan to make.
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3000
kita harus mengambil keputusan yang sulit.
08:39
These technologiesteknologi oftensering savemenyimpan liveshidup,
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Teknologi ini sering menyelamatkan jiwa,
08:42
but they can alsojuga prolongmemperpanjang painrasa sakit
and the dyingsekarat processproses.
166
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3920
tetapi mereka juga memperlama penderitaan
dan proses kematian.
08:47
How in the worlddunia are we supposedseharusnya
to navigatearahkan these watersair?
167
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2897
Bagaimana seharusnya kita
mengarahkan arus ini?
08:50
We're going to need
all the help we can get.
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2048
Kita memerlukan semua sumber daya.
08:53
NursesPerawat have a really uniqueunik
relationshiphubungan with us
169
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3576
Perawat memiliki hubungan
yang unik dengan kita
08:57
because of the time spentmenghabiskan at bedsidedi samping tempat tidur.
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saat mendampingi di tempat tidur.
09:00
DuringSelama that time,
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1216
Selama itu,
09:02
a kindjenis of emotionalemosional intimacykeintiman developsberkembang.
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2520
berkembang hubungan emosi.
09:06
This pastlalu summermusim panas, on AugustAgustus 9,
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2576
Tanggal 9 Agustus musim panas yang lalu,
09:09
my fatherayah diedmeninggal of a heartjantung attackmenyerang.
174
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1920
ayah saya meninggal
kena serangan jantung
09:12
My motheribu was devastatedhancur,
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1656
Ibu saya sangat sedih,
09:14
and she couldn'ttidak bisa imaginemembayangkan
her worlddunia withouttanpa him in it.
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dia tidak dapat membayangkan
kehidupannya tanpa ayah saya.
09:19
FourEmpat dayshari laterkemudian she felljatuh,
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1936
Empat hari kemudian dia jatuh,
09:21
she brokebangkrut her hippanggul,
178
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1856
panggulnya patah,
09:23
she neededdibutuhkan surgeryoperasi
179
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1496
dia harus dibedah
09:24
and she foundditemukan herselfdiri
fightingberjuang for her ownsendiri life.
180
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dia berjuang untuk tetap hidup.
09:28
OnceSekali again I foundditemukan myselfdiri
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Sekali lagi saya menemukan diri saya
09:30
on the receivingmenerima endakhir
of the carepeduli of nursesperawat --
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menerima perawatan dari
para perawat --
09:33
this time for my momibu.
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kali ini untuk ibu saya.
09:36
My brothersaudara and my sistersaudara and I
stayedtinggal by her sidesisi
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Saudara saya dan saya mendampingi ibu
09:38
for the nextberikutnya threetiga dayshari in the ICUICU.
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di ICU selama tiga hari.
09:41
And as we triedmencoba
to make the right decisionskeputusan
186
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3136
Dan kami mencoba untuk membuat
keputusan yang benar
09:45
and followmengikuti my mother'sibu wisheskeinginan,
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dan mengikuti keinginan ibu,
09:47
we foundditemukan that we were dependingtergantung
uponatas the guidancebimbingan of nursesperawat.
188
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kami sangat bergantung pada
bimbingan dari perawat.
09:52
And oncesekali again,
189
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1456
Dan sekali lagi,
09:53
they didn't let us down.
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mereka tidak mengecewakan kami.
09:56
They had an amazingmenakjubkan insightwawasan
in termsistilah of how to carepeduli for my momibu
191
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4776
Mereka memiliki pandangan yang luar biasa
menyangkut perawatan ibu saya
10:01
in the last fourempat dayshari of her life.
192
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2256
dalam empat hari terakhir kehidupannya.
10:03
They broughtdibawa her comfortkenyamanan
and reliefbantuan from painrasa sakit.
193
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3160
Mereka menenangkan dan
menghilangkan nyerinya.
10:08
They knewtahu to encouragemendorong my sistersaudara and I
to put a prettycantik nightgownbaju tidur on my momibu,
194
596320
5256
Mereka menyarankan kami untuk mengenakan
gaun malam untuk ibu kami,
10:13
long after it matteredpenting to her,
195
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1896
karena itu sangat berarti baginya,
10:15
but it sure meantberarti a lot to us.
196
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1800
dan bagi kami tentunya.
10:19
And they knewtahu to come and wakebangun me up
just in time for my mom'sibu last breathnafas.
197
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5760
Mereka membangunkan kami saat ibu
menghembuskan napas terakhir.
10:25
And then they knewtahu
how long to leavemeninggalkan me in the roomkamar
198
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2416
Mereka membiarkan kami
berkabung di ruangan
10:28
with my motheribu after she diedmeninggal.
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1680
dengan ibu setelah meninggalnya.
10:30
I have no ideaide how they know these things,
200
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3736
Saya tidak tahu, bagaimana mereka
mengetahui hal-hal ini,
10:34
but I do know that I am eternallyselamanya gratefulberterimakasih
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3136
tapi saya tahu bahwa saya sangat bersyukur
10:37
that they'vemereka sudah guideddipandu me oncesekali again.
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bahwa mereka membimbing kami lagi.
10:40
Thank you so very much.
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Terima kasih banyak.
10:42
(ApplauseTepuk tangan)
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(Tepuk tangan)
Translated by Jum'atil Fajar
Reviewed by Sarmoko Sarmoko

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ABOUT THE SPEAKER
Carolyn Jones - Photographic ethnographer
Carolyn Jones creates projects that point our attention towards issues of global concern.

Why you should listen

Best known for her socially proactive photographs and documentary films, Carolyn Jones creates projects that point our attention towards issues of global concern. From people "living positively" with AIDS to women artisans supporting entire communities and nurses on the front lines of our health care system, Carolyn Jones has devoted her career to celebrating invisible populations and breaking down barriers.

Jones has spent the past five years interviewing more than 150 nurses from every corner of the US in an effort to better understand the role of nurses in this country's healthcare system. She published the critically-acclaimed book The American Nurse: Photographs and Interviews by Carolyn Jones, for which she was interviewed on PBS NewsHour and featured in the New York Times, the Washington Post and USA Today. She directed and executive-produced the follow-up documentary film The American Nurse: Healing America, which was released in theaters nationwide and was an official selection of the 2015 American Film Showcase, a cultural diplomacy program of the US Department of State.

Jones has spent her career focused on telling personal stories, and her first introduction to nursing was through a very personal experience of her own, when it was a nurse who helped her get through breast cancer. That experience stuck with her, so when she started working on the American Nurse Project in 2011, she was determined to paint a rich and dynamic portrait of the profession. The goal was to cover as much territory as possible, with the hope that along the way she would capture stories touching on the kinds of issues that nurses are dealing with in every corner of the country. The project explores the American experiences of health care, poverty, childbirth, war, imprisonment and the end of life through the lens of nursing.

Prior to The American Nurse, her most widely acclaimed book, Living Proof: Courage in the Face of AIDS, was published by Abbeville Press and was accompanied by shows in Tokyo, Berlin, the USA, and at the United Nations World AIDS Conference. In addition to her multiple exhibitions, book and magazine publications, Jones has collaborated on projects with Oxygen Media, PBS and the Girl Scouts of the USA. She founded the non-profit 100 People Foundation for which she travels the world telling stories that celebrate our global neighbors. As a lecturer, Jones has spoken at conferences, universities and events around the globe. In 2012 she was honored as one of 50 "Everyday Heroes" in the book of that title for her work with the 100 People Foundation.

Jones' career was punctuated by two brushes with death: first, running out of gas in the Sahara as a racecar driver, and second, a breast cancer diagnosis. Her newest project, the forthcoming documentary Defining Hope, is the culmination of a journey investigating how we can make better end-of-life choices. 

More profile about the speaker
Carolyn Jones | Speaker | TED.com

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