Beth Malone: How my dad's dementia changed my idea of death (and life)
ベス・マローン: 私の生死観を変えた父の認知症
TED Resident Beth Malone brings bold art to public spaces across the US, encouraging artists to have a sense of humor, to be vulnerable and take creative risks. Full bio
Double-click the English transcript below to play the video.
FTDを患っています
FTDを患っています
that hits people in their 50s or 60s.
症状は多彩です
someone's personality,
すっかり変わってしまったり
暴力的になることもあります
引越させなければならなくなりました
with his own hands.
with the falsetto singing voice
ファルセットの歌声を持つ私の父が
for round-the-clock care
移らねばならなくなったんです
and I made the mistake
and afternoon art classes
午後にアート教室があり
everybody with cutlery.
みんなを脅したんです
the curtains off the wall,
to throw plants out the window.
the old ladies out of their wheelchairs."
車椅子から引きずり下ろしたんです
a bunch of state-run facilities
父を入所させましたが
specifically for people with dementia.
治療センターを見つけました
on the ground wearing a onesie --
地べたに前かがみに座っていました
that zip in the back.
as he yanked at it,
なんとか脱ごうとするのを
トラックの中で
coming out of the pit of my belly.
was worth living anymore.
感じているとは思えませんでした
to prioritize productivity.
プログラムされています
an Adonis in this case --
この場合は 理想の男性ですが
in the way we expect him to be,
そして 本人が考えるような
言えるでしょうか?
was that my dad was being tortured
the vessel of that torture.
思えませんでした
I'm going to kill Dad.
父を殺そう —
to live the rest of your life
意思表示ができないんだから
how to buy heroin."
知らないくせに」
about his death a lot.
たくさん話しあいました
どんな死に方をするのか?
about death when we were all healthy.
話せたら良かったのにと思います
どんなものだろう?
どんなものだろう?
考えが及びませんでした
殺すわけにはいきません
解放してあげる必要はありました
and then a support group,
訪ねましたが
when they're worried about loved ones.
ご家族はワラにもすがる思いですからね
and it's OK to go when you're ready.
―大丈夫だよ良いと思った時に 逝っていいよ」
on the ground in the onesie.
地べたに前かがみに座っていました
and just kind of looking at the ground.
地面でも見つめているようでした
about nothing in particular,
he sneezed from the ginger ale.
ジンジャーエールでくしゃみをしたんです
it jerked his body upright,
and sparking, over and over and over again
息を吹き返すのを何度も繰り返して
and he was looking at me,
こう言おうとしたんです
because I'm just a mess.
その場にうずくまりました
he seemed kind of OK.
父が はっきりした様子だったからです
was still attached to his body.
とても感謝の気持ちでいっぱいでした
一番役に立つことは
as father and daughter.
静かに穏やかに過ごしました
ABOUT THE SPEAKER
Beth Malone - Social entrepreneur, artistTED Resident Beth Malone brings bold art to public spaces across the US, encouraging artists to have a sense of humor, to be vulnerable and take creative risks.
Why you should listen
Beth Malone is executive director and partner at Dashboard US, an award-winning, experimental creative agency. Dashboard has presented exhibitions and special artist projects in cities around the country including New York, New Orleans, Atlanta, and Detroit. Dashboard has commissioned new, nontraditional works from over 200 artists.
Malone encourages artists to have a sense of humor, to be vulnerable and take creative risks, a practice she employed for herself when processing illness, caretaking and death. In 2014, she and her dad were sitting on a couch in a psychiatric hospital in Atlanta, GA. He looked at her and said, "I’m gonna be lost after this. After this, I’m gonna be gone." In August 2017, her dad passed away from frontotemporal lobe dementia -- just two months after she gave her TED Talk. It was a good death.
Beth Malone | Speaker | TED.com