Beth Malone: How my dad's dementia changed my idea of death (and life)
Beth Malone: Babamın demansı nasıl ölüm (ve hayat) fikrimi değiştirdi
TED Resident Beth Malone brings bold art to public spaces across the US, encouraging artists to have a sense of humor, to be vulnerable and take creative risks. Full bio
Double-click the English transcript below to play the video.
that hits people in their 50s or 60s.
kafa karıştırıcı bir hastalık.
someone's personality,
değiştirebilir,
yapabilir.
with his own hands.
with the falsetto singing voice
güçlü babam
for round-the-clock care
24 saat bakım için bir tesise
and I made the mistake
hatasına düştük.
and afternoon art classes
sanat dersleri ve
everybody with cutlery.
tehdit etti.
the curtains off the wall,
duvardan hızla çekti
to throw plants out the window.
dışarı atmaya çalıştı.
the old ladies out of their wheelchairs."
tekerlekli sandalyeden düşürdü.
a bunch of state-run facilities
bir tedavi merkezi bulmadan önce
specifically for people with dementia.
birçok tesise götürdük.
girdiğimde
on the ground wearing a onesie --
tulum giymiş bir hâlde buldum --
that zip in the back.
olan kıyafetlerden.
as he yanked at it,
bir yol arayıp bağırırken
-- onun eski kamyoneti--
coming out of the pit of my belly.
karın boşluğumdan geliyordu.
was worth living anymore.
değmediğini düşünmesine inanamadım.
to prioritize productivity.
için programlıyız.
an Adonis in this case --
bu vakada bir Züppe--
in the way we expect him to be,
artık üretken değilse,
was that my dad was being tortured
dövülmesiydi
the vessel of that torture.
I'm going to kill Dad.
babamı öldüreceğim.
to live the rest of your life
hayatının geri kalanını
how to buy heroin."
bile bilmiyorsun."
about his death a lot.
hakkında çok konuşuyoruz.
about death when we were all healthy.
hakkında konuşabilseydik.
and then a support group,
ve sonra bir destek grubuna
when they're worried about loved ones.
endişelendiklerinde beklerler.
and it's OK to go when you're ready.
söyleyin ve hazır olduğunuzda gidin.
on the ground in the onesie.
eğilmiş buldum.
and just kind of looking at the ground.
ama aslında yere bakıyordu.
about nothing in particular,
başladım
he sneezed from the ginger ale.
gazozdan hapşırdı.
it jerked his body upright,
bedenini sarstı,
and sparking, over and over and over again
sarsılmaya devam etti
and he was looking at me,
bana bakıyordu
because I'm just a mess.
bir hâldeydim.
he seemed kind of OK.
görünüyordu.
was still attached to his body.
dolayı minnettarlık duydum.
en iyi yolu
as father and daughter.
sürdürmek.
sessiz ve sakin.
ABOUT THE SPEAKER
Beth Malone - Social entrepreneur, artistTED Resident Beth Malone brings bold art to public spaces across the US, encouraging artists to have a sense of humor, to be vulnerable and take creative risks.
Why you should listen
Beth Malone is executive director and partner at Dashboard US, an award-winning, experimental creative agency. Dashboard has presented exhibitions and special artist projects in cities around the country including New York, New Orleans, Atlanta, and Detroit. Dashboard has commissioned new, nontraditional works from over 200 artists.
Malone encourages artists to have a sense of humor, to be vulnerable and take creative risks, a practice she employed for herself when processing illness, caretaking and death. In 2014, she and her dad were sitting on a couch in a psychiatric hospital in Atlanta, GA. He looked at her and said, "I’m gonna be lost after this. After this, I’m gonna be gone." In August 2017, her dad passed away from frontotemporal lobe dementia -- just two months after she gave her TED Talk. It was a good death.
Beth Malone | Speaker | TED.com