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Faith Jegede Cole: What I've learned from my autistic brothers
Faith Jegede: El que he après gràcies als meus germans autistes
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Faith Jegede ens explica una història conmovedora i també divertida sobre com va ser crèixer amb els seus dos germans, autistes tots dos, i tots dos extraordinaris. En aquest vídeo de TED Talent Search (Recerca de talents), Faith ens anima a cercar una vida més enllà del que és normal.
Faith Jegede Cole - Writer
Writer Faith Jegede Cole draws on her experiences growing up with two autistic brothers in order to spread awareness and understanding about this increasingly common diagnosis. Full bio
Writer Faith Jegede Cole draws on her experiences growing up with two autistic brothers in order to spread awareness and understanding about this increasingly common diagnosis. Full bio
Double-click the English transcript below to play the video.
00:16
Today I have just one request.
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Avui només us vull demanar una cosa.
00:19
Please don't tell me I'm normal.
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Si us plau, no em digueu que sóc normal.
00:23
Now I'd like to introduce you to my brothers.
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M'agradaria presentar-vos als meus germans.
00:27
Remi is 22,
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En Remi té 22 anys,
00:29
tall and very handsome.
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és alt i molt guapo.
00:32
He's speechless, but he communicates joy
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No parla, però transmet alegria
00:36
in a way that some of the best orators cannot.
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d'una manera que ni alguns dels millors oradors poden.
00:41
Remi knows what love is.
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En Remi sap què és l'amor.
00:43
He shares it unconditionally and he shares it regardless.
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El comparteix sigui com sigui, de manera incondicional.
00:48
He's not greedy. He doesn't see skin color.
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No és cobdiciós. No es fixa en el color de la pell.
00:51
He doesn't care about religious differences, and get this:
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No li preocupen les diferències religioses, i fixeu-vos en això:
00:54
He has never told a lie.
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no ha dit mai una mentida.
00:58
When he sings songs from our childhood,
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Quan canta cançons de quan érem petits,
01:00
attempting words that not even I could remember,
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empra paraules que ni tan sols jo puc recordar,
01:03
he reminds me of one thing:
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i em recorda una cosa:
01:05
how little we know about the mind, and how wonderful
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que poc sabem sobre la ment i com de meravellós
01:08
the unknown must be.
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és allò que és desconegut.
01:11
Samuel is 16. He's tall. He's very handsome.
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En Samuel té 16 anys. És alt. És molt guapo.
01:17
He has the most impeccable memory.
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Té una memòria impecable.
01:21
He has a selective one, though.
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Selectiva, però.
01:23
He doesn't remember if he stole my chocolate bar,
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No recorda si em va prendre una xocolatina,
01:27
but he remembers the year of release for every song on my iPod,
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però recorda l'any en què va sortir cadascuna de les cançons que tinc en el meu iPod,
01:31
conversations we had when he was four,
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recorda converses que vàrem tenir quan ell tenia quatre anys,
01:33
weeing on my arm on the first ever episode of Teletubbies,
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com es va fer pipi al meu braç quan es va emetre el primer episodi dels Teletubbies,
01:36
and Lady Gaga's birthday.
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i l'aniversari de Lady Gaga.
01:40
Don't they sound incredible?
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No és increïble?
01:43
But most people don't agree.
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Però la majoria de la gent no hi està d'acord .
01:46
And in fact, because their minds don't fit
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I, de fet, com que les seves ments no s'ajusten
01:48
into society's version of normal,
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a allò que la societat entén per normalitat,
01:51
they're often bypassed and misunderstood.
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sovint es prescindeix d'ells i se'ls malinterpreta.
01:54
But what lifted my heart and strengthened my soul
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Però el que m'animava i m'enfortia
01:58
was that even though this was the case,
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era que tot i que això fos cert,
02:00
although they were not seen as ordinary,
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tot i que no se'ls considerés gent normal,
02:03
this could only mean one thing:
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això només podia significar una cosa:
02:05
that they were extraordinary --
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que eren extraordinaris,
02:09
autistic and extraordinary.
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autistes i extraordinaris.
02:13
Now, for you who may be less familiar with the term "autism,"
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Bé, per a aquells qui esteu poc familiaritzats amb el terme "autisme",
02:18
it's a complex brain disorder that affects social communication,
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diré que és un trastorn complex del cervell, que afecta la comunicació social,
02:21
learning and sometimes physical skills.
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l'aprenentatge i de vegades algunes habilitats físiques.
02:25
It manifests in each individual differently,
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Es manifesta de forma diferent en cada individu,
02:28
hence why Remi is so different from Sam.
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per això en Remi és tan diferent d'en Sam.
02:31
And across the world, every 20 minutes, one new person
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I a tot el món, cada 20 minuts, una persona
02:33
is diagnosed with autism, and although it's one of
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és diagnosticada amb autisme, i tot i que és un dels
02:36
the fastest-growing developmental disorders in the world,
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trastorns del desenvolupament que creix més ràpidament al món,
02:39
there is no known cause or cure.
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no es coneixen les causes, ni tampoc la cura.
02:42
And I cannot remember the first moment I encountered autism,
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I no m'enrecordo del primer moment què vaig saber de l'autisme,
02:46
but I cannot recall a day without it.
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però tampoc puc recordar un dia sense que hi estigués present.
02:49
I was just three years old when my brother came along,
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Tenia només tres anys quan va nèixer el meu germà,
02:51
and I was so excited that
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i estava molt emocionada perquè
02:53
I had a new being in my life.
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hi havia un nou ésser en la meva vida.
02:57
And after a few months went by,
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Després de passar uns quants mesos,
02:59
I realized that he was different.
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em vaig adonar que era diferent.
03:02
He screamed a lot.
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Cridava molt.
03:04
He didn't want to play like the other babies did,
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A diferència dels altres nadons, no volia jugar
03:07
and in fact, he didn't seem
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i, de fet, tampoc no semblava
03:09
very interested in me whatsoever.
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gaire interessat en mi.
03:12
Remi lived and reigned in his own world, with his own rules,
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En Remi vivia i regnava en el seu propi món, tenia les seves pròpies normes,
03:16
and he found pleasure in the smallest things,
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i trobava plaer en les coses més petites,
03:18
like lining up cars around the room
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coses com alinear cotxes al voltant de l'habitació
03:20
and staring at the washing machine
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o mirar fixament la rentadora
03:22
and eating anything that came in between.
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i menjar qualsevol cosa que li caigués a les mans.
03:26
And as he grew older, he grew more different,
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I a mesura que es feia gran, també es feia més diferent,
03:29
and the differences became more obvious.
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i les diferències eren més evidents.
03:32
Yet beyond the tantrums and the frustration
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Però més enllà de les rebequeries i la frustració,
03:35
and the never-ending hyperactivity
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i de la hiperactivitat interminable
03:38
was something really unique:
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hi havia quelcom realment únic:
03:41
a pure and innocent nature, a boy who saw the world
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una naturalesa pura i innocent, un noi que veia el món
03:45
without prejudice, a human who had never lied.
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sense prejudicis, un ésser humà que mai no havia mentit.
03:50
Extraordinary.
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Extraordinari.
03:53
Now, I cannot deny that there have been
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Ara bé, no negaré que hi ha hagut
03:55
some challenging moments in my family,
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alguns moments difícils a la meva família,
03:58
moments where I've wished that they were just like me.
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moments en què he desitjat que els meus germans fossin com jo.
04:01
But I cast my mind back to the things that they've taught me
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Però faig memòria de les coses que ells m'han ensenyat
04:04
about individuality and communication and love,
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sobre la individualitat i la comunicació i l'amor,
04:08
and I realize that these are things that
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i m'adono que aquestes són coses que
04:11
I wouldn't want to change with normality.
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no voldria canviar per la normalitat.
04:15
Normality overlooks the beauty that differences give us,
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La normalitat no ens permet veure la bellesa que les diferències ens donen
04:21
and the fact that we are different doesn't mean that one of us is wrong.
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i el fet que siguem diferents no significa que un de nosaltres estigui malament.
04:24
It just means that there's a different kind of right.
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Simplement vol dir que hi ha un altre tipus de "normalitat".
04:28
And if I could communicate just one thing to Remi
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I si pogués comunicar una sola cosa a en Remi
04:32
and to Sam
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i a en Sam
04:34
and to you,
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i a vosaltres,
04:36
it would be that you don't have to be normal.
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seria que no s'ha de ser normal.
04:39
You can be extraordinary.
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Podeu ser extraordinaris.
04:43
Because autistic or not,
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Perquè autistes o no,
04:46
the differences that we have --
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les diferències que tenim...
04:48
We've got a gift! Everyone's got a gift inside of us,
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Tenim un do! Tothom té un do dins seu,
04:52
and in all honesty, the pursuit of normality
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i essent totalment honesta, la recerca de la normalitat
04:56
is the ultimate sacrifice of potential.
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és el sacrifici final del nostre potencial.
04:59
The chance for greatness, for progress and for change
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L'oportunitat de ser grans, de progressar i canviar
05:03
dies the moment we try to be like someone else.
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mor en el moment que intentem ser com algú altre.
05:07
Please -- don't tell me I'm normal.
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Si us plau - no em digueu que sóc normal.
05:10
Thank you. (Applause)
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Gràcies. (Aplaudiments)
05:12
(Applause)
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(Aplaudiments)
ABOUT THE SPEAKER
Faith Jegede Cole - WriterWriter Faith Jegede Cole draws on her experiences growing up with two autistic brothers in order to spread awareness and understanding about this increasingly common diagnosis.
Why you should listen
Faith Jegede Cole is a British writer, speaker and researcher. She is passionate about the power of storytelling and its ability to shift mindsets. Her TED Talk titled "What I’ve learned from my autistic brothers" has been viewed over a million times and has warmed the hearts of families impacted by autism.
Faith is currently pursuing her PhD in Communication at American University. She has spent the last three years studying identity, reputation and privacy in the world of online communication. Her research specifically explores the tensions between online visibility and online vulnerability that are experienced when seeking to create positive changes in society.
Prior to her PhD, Faith worked within the radio broadcasting industry for seven years. Before moving to America she hosted and produced her own lifestyle show on a national UK station.
Faith is a proud Londoner, but now lives in Washington DC, with her husband Nathaniel Cole and happily calls it home.
Faith Jegede Cole | Speaker | TED.com