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Faith Jegede Cole: What I've learned from my autistic brothers
Feita Džegīda: Ko es iemācījos no saviem autiskajiem brāļiem
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Feita Džegīda pastāsta aizkustinošu un smieklīgu stāstu par to, kā uzauga kopā ar diviem saviem brāļiem, kuri abi ir autiski un neparasti. Šajā runā no TED Talent Search, viņa mums atgādina tiekties pēc dzīves, kas sniedzas pāri tam, kas ir normāls.
Faith Jegede Cole - Writer
Writer Faith Jegede Cole draws on her experiences growing up with two autistic brothers in order to spread awareness and understanding about this increasingly common diagnosis. Full bio
Writer Faith Jegede Cole draws on her experiences growing up with two autistic brothers in order to spread awareness and understanding about this increasingly common diagnosis. Full bio
Double-click the English transcript below to play the video.
00:16
Today I have just one request.
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Šodien man ir tikai viens lūgums.
00:19
Please don't tell me I'm normal.
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Lūdzu, nesakiet man, ka esmu normāla.
00:23
Now I'd like to introduce you to my brothers.
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Nu es vēlētos jūs iepazīstināt ar maniem brāļiem.
00:27
Remi is 22,
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Remi ir 22 gadus vecs,
00:29
tall and very handsome.
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garš un ļoti glīts.
00:32
He's speechless, but he communicates joy
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Viņš ir mēms, taču pauž prieku tā,
00:36
in a way that some of the best orators cannot.
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kā to nespēj pat daži no labākajiem oratoriem.
00:41
Remi knows what love is.
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Remi zina, kas ir mīlestība.
00:43
He shares it unconditionally and he shares it regardless.
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Viņš ar to dalās bez nosacījuma, neatkarīgi ne no kā.
00:48
He's not greedy. He doesn't see skin color.
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Viņš nav alkatīgs. Viņš nesaskata ādas krāsu.
00:51
He doesn't care about religious differences, and get this:
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Viņam nerūp reliģiskās atšķirības un ziniet ko?
00:54
He has never told a lie.
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Viņš nekad nav melojis.
00:58
When he sings songs from our childhood,
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Viņam dziedot dziesmas no mūsu bērnības,
01:00
attempting words that not even I could remember,
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izdziedot vārdus, kurus pat es nespēju atcerēties,
01:03
he reminds me of one thing:
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viņš man atgādina vienu:
01:05
how little we know about the mind, and how wonderful
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to, cik maz mēs zinām par prātu un to, cik brīnišķīgam
01:08
the unknown must be.
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jābūt nezināmajam.
01:11
Samuel is 16. He's tall. He's very handsome.
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Semjuelam ir 16. Viņš ir garš. Viņš ir ļoti glīts.
01:17
He has the most impeccable memory.
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Viņam ir visnevainojamākā atmiņa.
01:21
He has a selective one, though.
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Viņam tā gan ir selektīva.
01:23
He doesn't remember if he stole my chocolate bar,
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Viņš neatceras vai nočiepa manu šokolādes tāfelīti,
01:27
but he remembers the year of release for every song on my iPod,
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taču atceras izdošanas gadu
katrai dziesmai manā iPod,
katrai dziesmai manā iPod,
01:31
conversations we had when he was four,
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sarunas, kas mums bijušas,
kad viņam bija četri gadi,
kad viņam bija četri gadi,
01:33
weeing on my arm on the first ever episode of Teletubbies,
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mazītiņš atspiedies pret manu roku,
pirmo reizi skatoties Teletūbijus
pirmo reizi skatoties Teletūbijus
01:36
and Lady Gaga's birthday.
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un Lady Gaga dzimšanas dienu.
01:40
Don't they sound incredible?
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Vai viņi neizklausās apbrīnojami?
01:43
But most people don't agree.
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Vairākums cilvēku tam nepiekrīt.
01:46
And in fact, because their minds don't fit
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Faktiski tādēļ, ka viņu prāti neiekļaujas
01:48
into society's version of normal,
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sabiedrības versijā par to, kas ir normāls,
01:51
they're often bypassed and misunderstood.
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viņus bieži atstāj novārtā un nesaprot.
01:54
But what lifted my heart and strengthened my soul
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Taču manu sirdi un dvēseli sasildīja tas,
01:58
was that even though this was the case,
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ka, lai arī tā tas bija šajā gadījumā,
02:00
although they were not seen as ordinary,
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lai arī uz viņiem neskatījās kā parastiem,
02:03
this could only mean one thing:
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tas varēja nozīmēt tikai vienu:
02:05
that they were extraordinary --
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ka viņi bija neparasti,
02:09
autistic and extraordinary.
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autiski un neparasti.
02:13
Now, for you who may be less familiar with the term "autism,"
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Tiem no jums, kuri varbūt ir
mazāk pazīstami ar terminu „autisms”,
mazāk pazīstami ar terminu „autisms”,
02:18
it's a complex brain disorder that affects social communication,
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tie ir sarežģīti smadzeņu traucējumi,
kas ietekmē sociālo saziņu,
kas ietekmē sociālo saziņu,
02:21
learning and sometimes physical skills.
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apguvi un dažreiz fiziskās prasmes.
02:25
It manifests in each individual differently,
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Katrā cilvēkā tas izpaužas citādi,
02:28
hence why Remi is so different from Sam.
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tādēļ arī Remi ir tik atšķirīgs no Sema.
02:31
And across the world, every 20 minutes, one new person
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Visā pasaulē katras 20 minūtes jaunam cilvēkam
02:33
is diagnosed with autism, and although it's one of
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diagnosticē autismu, un lai arī tas ir viens no
02:36
the fastest-growing developmental disorders in the world,
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pasaulē straujāk pieaugošajiem attīstības traucējumiem,
02:39
there is no known cause or cure.
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nav zināmi tā cēloņi vai zāles.
02:42
And I cannot remember the first moment I encountered autism,
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Es nespēju atcerēties pirmo brīdi,
kad sastapos ar autismu,
kad sastapos ar autismu,
02:46
but I cannot recall a day without it.
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taču es nespēju atsaukt atmiņā ne dienu bez tā.
02:49
I was just three years old when my brother came along,
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Es biju vien trīs gadus veca,
kad pasaulē nāca mans brālis,
kad pasaulē nāca mans brālis,
02:51
and I was so excited that
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es biju tik priecīga, ka
02:53
I had a new being in my life.
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manā dzīvē bija jauna būtne.
02:57
And after a few months went by,
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Pēc tam, kad pagāja pāris mēneši,
02:59
I realized that he was different.
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es sapratu, ka viņš bija citādāks.
03:02
He screamed a lot.
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Viņš daudz bļāva.
03:04
He didn't want to play like the other babies did,
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Viņš negribēja spēlēties tā,
kāa to gribēja pārējie zīdaiņi,
kāa to gribēja pārējie zīdaiņi,
03:07
and in fact, he didn't seem
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īstenība viņš neizskatījās
03:09
very interested in me whatsoever.
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īpaši ieinteresēts manī.
03:12
Remi lived and reigned in his own world, with his own rules,
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Remi dzīvoja un valdīja pats savā pasaulē,
ar saviem noteikumiem,
ar saviem noteikumiem,
03:16
and he found pleasure in the smallest things,
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un guva prieku no vismazākajām lietām,
03:18
like lining up cars around the room
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piemēram, mašīnīšu sarindošanas istabā,
03:20
and staring at the washing machine
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veļas mazgājamās mašīnas vērošanas
03:22
and eating anything that came in between.
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un visa ēšanas, kas stājās viņam ceļā.
03:26
And as he grew older, he grew more different,
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Viņam kļūstot vecākam, viņš auga arvien citādāks,
03:29
and the differences became more obvious.
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un atšķirības kļuva ievērojamākas.
03:32
Yet beyond the tantrums and the frustration
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Taču līdzās dusmu lēkmēm, neapmierinātībai
03:35
and the never-ending hyperactivity
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un nekad nebeidzamajai hiperaktivitātei
03:38
was something really unique:
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bija kas patiesi vienreizīgs:
03:41
a pure and innocent nature, a boy who saw the world
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šķīsta un nevainīga daba, zēns, kurš redzēja pasauli
03:45
without prejudice, a human who had never lied.
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bez aizspriedumiem, cilvēks, kurš nekad nebija melojis.
03:50
Extraordinary.
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Neparasts.
03:53
Now, I cannot deny that there have been
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Es nenoliegšu, ka mūsu ģimenei
03:55
some challenging moments in my family,
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ir bijuši izaicinoši mirkļi,
03:58
moments where I've wished that they were just like me.
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mirkļi, kuros es vēlējos kaut viņi būtu tādi paši kā es.
04:01
But I cast my mind back to the things that they've taught me
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Taču es centos atsaukt atmiņā to,
ko viņi bija man iemācījuši
ko viņi bija man iemācījuši
04:04
about individuality and communication and love,
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par individualitāti, saziņu un mīlestību,
04:08
and I realize that these are things that
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es sapratu, ka tās ir lietas,
04:11
I wouldn't want to change with normality.
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kuras es negribētu maināmies līdz ar normālumu.
04:15
Normality overlooks the beauty that differences give us,
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Normālums neievēro skaistumu,
ko rada mūsu atšķirības, un tas,
ko rada mūsu atšķirības, un tas,
04:21
and the fact that we are different doesn't mean that one of us is wrong.
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ka mēs esam atšķirīgi, nenozīmē,
ka ar kādu no mums kaut kas nebūtu kārtībā.
ka ar kādu no mums kaut kas nebūtu kārtībā.
04:24
It just means that there's a different kind of right.
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Tas tikai nozīmē, ka ir cita veida pareizums.
04:28
And if I could communicate just one thing to Remi
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Ja es spētu Remi, Semam un jums
04:32
and to Sam
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nodot tikai
04:34
and to you,
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vienu lietu,
04:36
it would be that you don't have to be normal.
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tā būtu, ka jums nav jābūt normāliem.
04:39
You can be extraordinary.
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Jūs varat būs neparasti.
04:43
Because autistic or not,
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Jo autisks vai nē,
04:46
the differences that we have --
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mūsu atšķirības...
04:48
We've got a gift! Everyone's got a gift inside of us,
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Mums ir dāvana! Ikvienam no mums iekšā ir dāvana,
04:52
and in all honesty, the pursuit of normality
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pavisam godīgi, dzīšanās pēc normāluma
04:56
is the ultimate sacrifice of potential.
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ir vislielākā potenciāla uzupurēšana.
04:59
The chance for greatness, for progress and for change
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Diženuma, attīstības un pārmaiņu iespēja
05:03
dies the moment we try to be like someone else.
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izdziest mirklī, kad mēs cenšamies būt kāds cits.
05:07
Please -- don't tell me I'm normal.
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Lūdzu, nesakiet man, ka esmu normāla.
05:10
Thank you. (Applause)
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Paldies. (Aplausi)
05:12
(Applause)
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(Aplausi)
ABOUT THE SPEAKER
Faith Jegede Cole - WriterWriter Faith Jegede Cole draws on her experiences growing up with two autistic brothers in order to spread awareness and understanding about this increasingly common diagnosis.
Why you should listen
Faith Jegede Cole is a British writer, speaker and researcher. She is passionate about the power of storytelling and its ability to shift mindsets. Her TED Talk titled "What I’ve learned from my autistic brothers" has been viewed over a million times and has warmed the hearts of families impacted by autism.
Faith is currently pursuing her PhD in Communication at American University. She has spent the last three years studying identity, reputation and privacy in the world of online communication. Her research specifically explores the tensions between online visibility and online vulnerability that are experienced when seeking to create positive changes in society.
Prior to her PhD, Faith worked within the radio broadcasting industry for seven years. Before moving to America she hosted and produced her own lifestyle show on a national UK station.
Faith is a proud Londoner, but now lives in Washington DC, with her husband Nathaniel Cole and happily calls it home.
Faith Jegede Cole | Speaker | TED.com