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Faith Jegede Cole: What I've learned from my autistic brothers
Fejt Džegede (Faith Jegede): Šta sam naučila od moje autistične braće
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Fejt Džegede govori potresnu i čudnu priču o odrastanju sa svoja dva brata, oba autistična -- i oba izuzetna. U ovom govoru sa TED Talent Search-a, ona nas podseća da tragamo za životom koji je izvan prosečnog.
Faith Jegede Cole - Writer
Writer Faith Jegede Cole draws on her experiences growing up with two autistic brothers in order to spread awareness and understanding about this increasingly common diagnosis. Full bio
Writer Faith Jegede Cole draws on her experiences growing up with two autistic brothers in order to spread awareness and understanding about this increasingly common diagnosis. Full bio
Double-click the English transcript below to play the video.
00:16
Today I have just one request.
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Danas imam samo jednu molbu.
00:19
Please don't tell me I'm normal.
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Molim vas, nemojte mi reći da sam normalna.
00:23
Now I'd like to introduce you to my brothers.
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Sad bih volela da vas upoznam sa svojom braćom.
00:27
Remi is 22,
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Remi ima 22 godine,
00:29
tall and very handsome.
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visok je i zgodan.
00:32
He's speechless, but he communicates joy
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Ne ume da govori, ali prenosi radost
00:36
in a way that some of the best orators cannot.
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na takav način, na koji ni najbolji govornici ne znaju.
00:41
Remi knows what love is.
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Remi zna šta je ljubav.
00:43
He shares it unconditionally and he shares it regardless.
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On je deli bezuslovno i bez obzira.
00:48
He's not greedy. He doesn't see skin color.
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Nije pohlepan. On ne prepoznaje boju kože.
00:51
He doesn't care about religious differences, and get this:
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On ne mari za razlike u religijama, a vidite ovo:
00:54
He has never told a lie.
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nikad nije lagao.
00:58
When he sings songs from our childhood,
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Kada peva pesme iz našeg detinjstva,
01:00
attempting words that not even I could remember,
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pokušavajući sa rečima kojih se ni ja ne sećam,
01:03
he reminds me of one thing:
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podseća me na jednu stvar:
01:05
how little we know about the mind, and how wonderful
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kako malo znamo o svesti i mora da je divno
01:08
the unknown must be.
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ono što je nepoznato.
01:11
Samuel is 16. He's tall. He's very handsome.
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Semjuel ima 16 godina. Visok je. Zgodan je.
01:17
He has the most impeccable memory.
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Poseduje besprekornu memoriju.
01:21
He has a selective one, though.
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I to selektivnu.
01:23
He doesn't remember if he stole my chocolate bar,
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Ne seća se da je ukrao moju čokoladu,
01:27
but he remembers the year of release for every song on my iPod,
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ali se seća kada je izdata svaka pesma
koja je na mom iPodu,
koja je na mom iPodu,
01:31
conversations we had when he was four,
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seća se razgovora koje smo vodili sa 4 godine,
01:33
weeing on my arm on the first ever episode of Teletubbies,
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on malecni u mojoj ruci,
gledajući prvu epizodu Teletabisa
gledajući prvu epizodu Teletabisa
01:36
and Lady Gaga's birthday.
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i rođendan Lejdi Gage.
01:40
Don't they sound incredible?
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Zar nisu neverovatni?
01:43
But most people don't agree.
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Većina ljudi ne misli tako.
01:46
And in fact, because their minds don't fit
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U stvari, zato što se njihova svest ne uklapa
01:48
into society's version of normal,
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u društveno prihvatljiv oblik normalnog,
01:51
they're often bypassed and misunderstood.
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njih često zaobilaze i ne shvataju.
01:54
But what lifted my heart and strengthened my soul
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Ono što mi je uzdiglo srce i ojačalo dušu
01:58
was that even though this was the case,
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bez obzira na činjenice,
02:00
although they were not seen as ordinary,
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mada nisu izgledali obično,
02:03
this could only mean one thing:
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ovo je moglo značiti samo jednu stvar:
02:05
that they were extraordinary --
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da su oni izuzetni --
02:09
autistic and extraordinary.
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autistični i izuzetni.
02:13
Now, for you who may be less familiar with the term "autism,"
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Za one kojima je termin "autizam" manje poznat,
02:18
it's a complex brain disorder that affects social communication,
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to je složeni poremećaj mozga, koji utiče na sporazumevanje,
02:21
learning and sometimes physical skills.
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učenje i ponekad na fizičke veštine.
02:25
It manifests in each individual differently,
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Kod svake osobe se drugačije manifestuje,
02:28
hence why Remi is so different from Sam.
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zato je Remi toliko različit od Sema.
02:31
And across the world, every 20 minutes, one new person
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U celom svetu, svakih 20 minuta se dijagnostikuje
02:33
is diagnosed with autism, and although it's one of
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jedan slučaj autizma i mada je to
02:36
the fastest-growing developmental disorders in the world,
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jedan od poremećaja u razvoju koji se najbrže razvija,
02:39
there is no known cause or cure.
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uzrok i lek su nepoznati.
02:42
And I cannot remember the first moment I encountered autism,
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Ne sećam se prvog momenta
kada sam se susrela sa autizmom,
kada sam se susrela sa autizmom,
02:46
but I cannot recall a day without it.
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ali ne sećam se ni jednog dana bez njega.
02:49
I was just three years old when my brother came along,
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Imala sam samo tri godine kad mi se rodio brat
02:51
and I was so excited that
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i bila sam veoma uzbuđena
02:53
I had a new being in my life.
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što imam jedno novo biće u mom životu.
02:57
And after a few months went by,
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Posle nekoliko meseci
02:59
I realized that he was different.
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shvatila sam da je drugačiji.
03:02
He screamed a lot.
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Mnogo je vrištao.
03:04
He didn't want to play like the other babies did,
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Nije hteo da se igra kao druge bebe,
03:07
and in fact, he didn't seem
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u stvari, činilo se
03:09
very interested in me whatsoever.
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da nije zainteresovan ni za šta.
03:12
Remi lived and reigned in his own world, with his own rules,
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Remi je živeo i vladao u svom svetu, po svojim pravilima
03:16
and he found pleasure in the smallest things,
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i nalazio je zadovoljstvo i u najmanjim stvarima,
03:18
like lining up cars around the room
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kao što je ređanje autića po sobi
03:20
and staring at the washing machine
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i zurenje u veš mašinu
03:22
and eating anything that came in between.
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i u jelu između.
03:26
And as he grew older, he grew more different,
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Kako je odrastao, sve se više razlikovao
03:29
and the differences became more obvious.
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i razlike su postale sve očiglednije.
03:32
Yet beyond the tantrums and the frustration
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Izvan nastupa besa i frustracije
03:35
and the never-ending hyperactivity
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i beskrajne hiperaktivnosti
03:38
was something really unique:
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on je bio zaista jedinstven:
03:41
a pure and innocent nature, a boy who saw the world
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čiste i nevine naravi, dečak koji je video svet
03:45
without prejudice, a human who had never lied.
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bez predrasuda, ljudsko biće koje nikad nije lagalo.
03:50
Extraordinary.
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Izuzetan.
03:53
Now, I cannot deny that there have been
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Ne mogu da poreknem da je bilo
03:55
some challenging moments in my family,
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teških momenata u mojoj porodici,
03:58
moments where I've wished that they were just like me.
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momenata kada sam poželela da su i oni kao ja.
04:01
But I cast my mind back to the things that they've taught me
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Vratila sam misli na stvari kojima su me učili
04:04
about individuality and communication and love,
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o individualnosti, komunikaciji i ljubavi
04:08
and I realize that these are things that
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i shvatila sam da su ovo stvari
04:11
I wouldn't want to change with normality.
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koje ne bih zamenila sa normalnošću.
04:15
Normality overlooks the beauty that differences give us,
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Normalnost previđa lepotu koju nam pružaju razlike
04:21
and the fact that we are different doesn't mean that one of us is wrong.
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i činjenica da smo različiti ne znači
da jedan od nas nije u pravu.
da jedan od nas nije u pravu.
04:24
It just means that there's a different kind of right.
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Ovo samo znači da smo na različite načine u pravu.
04:28
And if I could communicate just one thing to Remi
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Kada bih mogla da saopštim samo jednu stvar Remiju
04:32
and to Sam
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i Semu
04:34
and to you,
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i vama
04:36
it would be that you don't have to be normal.
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to je da ne morate biti prosečni.
04:39
You can be extraordinary.
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Možete biti izuzetni.
04:43
Because autistic or not,
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Jer autistični ili ne,
04:46
the differences that we have --
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razlike koje imamo --
04:48
We've got a gift! Everyone's got a gift inside of us,
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Imamo dar! Svako ima unutar sebe dara
04:52
and in all honesty, the pursuit of normality
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i iskreno, težnja za normalnošću
04:56
is the ultimate sacrifice of potential.
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je krajnje žrtvovanje potencijala.
04:59
The chance for greatness, for progress and for change
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Šansa za veličanstvenost, napredak i promene
05:03
dies the moment we try to be like someone else.
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umire onog trenutka kada pokušavamo
da ličimo na nekog drugog.
da ličimo na nekog drugog.
05:07
Please -- don't tell me I'm normal.
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Molim vas, nemojte mi reći da sam prosečna.
05:10
Thank you. (Applause)
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Hvala. (Aplauz)
05:12
(Applause)
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(Aplauz)
ABOUT THE SPEAKER
Faith Jegede Cole - WriterWriter Faith Jegede Cole draws on her experiences growing up with two autistic brothers in order to spread awareness and understanding about this increasingly common diagnosis.
Why you should listen
Faith Jegede Cole is a British writer, speaker and researcher. She is passionate about the power of storytelling and its ability to shift mindsets. Her TED Talk titled "What I’ve learned from my autistic brothers" has been viewed over a million times and has warmed the hearts of families impacted by autism.
Faith is currently pursuing her PhD in Communication at American University. She has spent the last three years studying identity, reputation and privacy in the world of online communication. Her research specifically explores the tensions between online visibility and online vulnerability that are experienced when seeking to create positive changes in society.
Prior to her PhD, Faith worked within the radio broadcasting industry for seven years. Before moving to America she hosted and produced her own lifestyle show on a national UK station.
Faith is a proud Londoner, but now lives in Washington DC, with her husband Nathaniel Cole and happily calls it home.
Faith Jegede Cole | Speaker | TED.com