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Faith Jegede Cole: What I've learned from my autistic brothers
Faith Jegede: Čo som sa naučila od svojich autistických bratov.
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Faith Jegede nám rozpovie hlboký a vtipný príbeh o svojom detstve s bratmi, ktorí sú autisti a obidvaja sú výnimoční. V tejto prednáške na TED Talent Search nám pripomína, aby sme žili za hranicami toho, čo je považované za normálne.
Faith Jegede Cole - Writer
Writer Faith Jegede Cole draws on her experiences growing up with two autistic brothers in order to spread awareness and understanding about this increasingly common diagnosis. Full bio
Writer Faith Jegede Cole draws on her experiences growing up with two autistic brothers in order to spread awareness and understanding about this increasingly common diagnosis. Full bio
Double-click the English transcript below to play the video.
00:16
Today I have just one request.
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Dnes by som vás chcela požiadať len o jediné.
00:19
Please don't tell me I'm normal.
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Prosím, nehovorte mi, že som normálna.
00:23
Now I'd like to introduce you to my brothers.
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Rada by som vám predstavila mojich bratov.
00:27
Remi is 22,
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Remi má 22 rokov,
00:29
tall and very handsome.
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je vysoký a je veľký fešák.
00:32
He's speechless, but he communicates joy
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Nerozpráva, ale vie vyjadriť svoju radosť
00:36
in a way that some of the best orators cannot.
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spôsobom, akým by ho nevyjadrili ani tí najlepší rečníci.
00:41
Remi knows what love is.
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Remi vie, čo je láska.
00:43
He shares it unconditionally and he shares it regardless.
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Delí sa o ňu bezpodmienečne a bez ohľadu na to, či to niekoho zaujíma.
00:48
He's not greedy. He doesn't see skin color.
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Nie je chamtivý a nezaujíma ho farba pleti.
00:51
He doesn't care about religious differences, and get this:
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Nezáleží mu na rozdieloch vo vyznaní viery a vypočujte si toto:
00:54
He has never told a lie.
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Nikdy neklamal.
00:58
When he sings songs from our childhood,
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Keď spieva pesničky z nášho detstva,
01:00
attempting words that not even I could remember,
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pamätá si z nich slová, na ktoré si ani ja sama nemôžem spomenúť
01:03
he reminds me of one thing:
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a to mi pripomína len jediné:
01:05
how little we know about the mind, and how wonderful
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ako veľmi málo vieme o ľudskej mysli a aké úžasné musí
01:08
the unknown must be.
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byť to dosiaľ nepoznané.
01:11
Samuel is 16. He's tall. He's very handsome.
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Samuel má 16. Je vysoký a je to tiež veľký fešák.
01:17
He has the most impeccable memory.
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Má dokonalú pamäť.
01:21
He has a selective one, though.
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Aj napriek tomu, že je značne selektívna.
01:23
He doesn't remember if he stole my chocolate bar,
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Nepamätá si, či mu ukradol tabličku čokolády,
01:27
but he remembers the year of release for every song on my iPod,
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ale pamätá si rok vydania každej pesničky v mojom iPode
01:31
conversations we had when he was four,
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a o čom sme sa rozprávali, keď mal štyri roky,
01:33
weeing on my arm on the first ever episode of Teletubbies,
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ako mi plakal na ramene po úplne prvej časti Teletubies
01:36
and Lady Gaga's birthday.
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a tiež si pamätá, kedy má narodeniny Lady Gaga.
01:40
Don't they sound incredible?
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Neznie to neuveriteľne?
01:43
But most people don't agree.
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Ale väčšina ľudí si to nemyslí.
01:46
And in fact, because their minds don't fit
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V podstate preto, že ich mysle nezapadajú do definície
01:48
into society's version of normal,
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normálnosti v spoločnosti,
01:51
they're often bypassed and misunderstood.
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veľakrát zostávajú prehliadaní a nepochopení.
01:54
But what lifted my heart and strengthened my soul
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Ale to, čo ma skutočne povzbudilo na duchu a zohrialo na srdiečku,
01:58
was that even though this was the case,
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je, že aj keby toto bol ten prípad,
02:00
although they were not seen as ordinary,
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a aj keby ich nikto nikdy nevidel ako obyčajných,
02:03
this could only mean one thing:
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môže to znamenať len jediné:
02:05
that they were extraordinary --
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že sú neobyčajnými -
02:09
autistic and extraordinary.
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autistickí a neobyčajní.
02:13
Now, for you who may be less familiar with the term "autism,"
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Pre tých, ktorí nevedia presne, čo autizmus vlastne znamená:
02:18
it's a complex brain disorder that affects social communication,
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je to zložitá porucha v mozgu, ktorá ovplyvňuje komunikáciu s okolím,
02:21
learning and sometimes physical skills.
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učenie sa a niekedy aj motorické schopnosti.
02:25
It manifests in each individual differently,
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U každého človeka sa to prejavuje inak,
02:28
hence why Remi is so different from Sam.
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práve kvôli tomu sú Remi a Sam od seba takí odlišní.
02:31
And across the world, every 20 minutes, one new person
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Po celom svete je každých 20 minút diagnostikovaný
02:33
is diagnosed with autism, and although it's one of
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jeden človek s autizmom a aj napriek tomu, že je to
02:36
the fastest-growing developmental disorders in the world,
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jedna z najrýchlejšie sa rozširujúcich vývojových porúch na svete,
02:39
there is no known cause or cure.
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doposiaľ nepoznáme na ňu žiadnu liečbu, ani dôvod, prečo vzniká.
02:42
And I cannot remember the first moment I encountered autism,
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Nespomínam si, kedy som sa vlastne s autizmom prvýkrát stretla
02:46
but I cannot recall a day without it.
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a takisto si nemôžem vybaviť deň, keď by nebol súčasťou môjho života.
02:49
I was just three years old when my brother came along,
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Mala som iba 3 roky, keď sa narodil môj brat
02:51
and I was so excited that
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a bola som veľmi nadšená,
02:53
I had a new being in my life.
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že mám v živote o jednu živú bytosť viac.
02:57
And after a few months went by,
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A o niekoľko mesiacov
02:59
I realized that he was different.
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som si uvedomila, že je iný.
03:02
He screamed a lot.
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Zvykol veľa kričať.
03:04
He didn't want to play like the other babies did,
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Nehcel sa hrať, tak ako ostatné bábätká
03:07
and in fact, he didn't seem
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a v podstate ani ja som ho
03:09
very interested in me whatsoever.
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vôbec nezaujímala.
03:12
Remi lived and reigned in his own world, with his own rules,
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Remi si žil a vládol vo svojom vlastnom svete, ktorý mal svoje vlastné pravidlá
03:16
and he found pleasure in the smallest things,
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a tešil sa z maličkostí,
03:18
like lining up cars around the room
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ako napríklad rozostavenie autíčok pozdĺž stien izby
03:20
and staring at the washing machine
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a civenie na práčku
03:22
and eating anything that came in between.
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a jedenie všetkého, čo mu prišlo do cesty.
03:26
And as he grew older, he grew more different,
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A ako rástol, bol čoraz viac iný
03:29
and the differences became more obvious.
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a tieto odlišnosti začali byť čoraz viac viditeľné.
03:32
Yet beyond the tantrums and the frustration
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Aj napriek veľkým výbuchom zlosti, frustrácii
03:35
and the never-ending hyperactivity
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a nikdy nekončiacej hyperaktivite
03:38
was something really unique:
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sa za tým všetkým skrývalo niečo jedinečné:
03:41
a pure and innocent nature, a boy who saw the world
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čistá a nevinná povaha, chlapec, ktorý videl svet bez
03:45
without prejudice, a human who had never lied.
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predsudkov, človek, ktorý nikdy nezaklamal.
03:50
Extraordinary.
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Neobyčajný.
03:53
Now, I cannot deny that there have been
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Nemôžem povedať, že v našej
03:55
some challenging moments in my family,
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rodine neboli chvíle, ktoré nám dali zabrať,
03:58
moments where I've wished that they were just like me.
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chvíle, keď som si želala, aby boli takí, ako som ja.
04:01
But I cast my mind back to the things that they've taught me
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Ale radšej som si pripomenula veci, ktoré ma skutočne naučili
04:04
about individuality and communication and love,
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o jedinečnosti, komunikácii a láske
04:08
and I realize that these are things that
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a vtedy som si uvedomila, že by som tieto veci
04:11
I wouldn't want to change with normality.
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nevymenila za nejakú normálnosť.
04:15
Normality overlooks the beauty that differences give us,
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Normálnosť prehliada krásu, ktorú nám dávajú rozdiely
04:21
and the fact that we are different doesn't mean that one of us is wrong.
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a to, že sme od seba odlišní, neznamená, že jeden z nás je ten nesprávny.
04:24
It just means that there's a different kind of right.
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Znamená to len, že existujú rôzne spôsoby, ako byť tým správnym.
04:28
And if I could communicate just one thing to Remi
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A ak by som mohla povedať len jednu vec Remimu,
04:32
and to Sam
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Samovi
04:34
and to you,
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a vám,
04:36
it would be that you don't have to be normal.
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bolo by to, že nemusíte byť normálny.
04:39
You can be extraordinary.
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Môžte byť výnimočný.
04:43
Because autistic or not,
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Či už autistický alebo nie,
04:46
the differences that we have --
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rozdiely, ktoré medzi nami sú --
04:48
We've got a gift! Everyone's got a gift inside of us,
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Sú darom! Každý z nás má v sebe dar.
04:52
and in all honesty, the pursuit of normality
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A úprimne povedané, ponížiť sa k normálnosti
04:56
is the ultimate sacrifice of potential.
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je tou najväčšou obetou ľudského potenciálu.
04:59
The chance for greatness, for progress and for change
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Šancu na to, byť niekým úžasným, na pokrok a zmenu,
05:03
dies the moment we try to be like someone else.
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strácame v momente, keď sa snažíme byť ako niekto iný.
05:07
Please -- don't tell me I'm normal.
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Prosím, len mi nehovorte, že som normálna.
05:10
Thank you. (Applause)
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Ďakujem. (Potlesk)
05:12
(Applause)
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(Potlesk)
ABOUT THE SPEAKER
Faith Jegede Cole - WriterWriter Faith Jegede Cole draws on her experiences growing up with two autistic brothers in order to spread awareness and understanding about this increasingly common diagnosis.
Why you should listen
Faith Jegede Cole is a British writer, speaker and researcher. She is passionate about the power of storytelling and its ability to shift mindsets. Her TED Talk titled "What I’ve learned from my autistic brothers" has been viewed over a million times and has warmed the hearts of families impacted by autism.
Faith is currently pursuing her PhD in Communication at American University. She has spent the last three years studying identity, reputation and privacy in the world of online communication. Her research specifically explores the tensions between online visibility and online vulnerability that are experienced when seeking to create positive changes in society.
Prior to her PhD, Faith worked within the radio broadcasting industry for seven years. Before moving to America she hosted and produced her own lifestyle show on a national UK station.
Faith is a proud Londoner, but now lives in Washington DC, with her husband Nathaniel Cole and happily calls it home.
Faith Jegede Cole | Speaker | TED.com