ABOUT THE SPEAKER
Faith Jegede Cole - Writer
Writer Faith Jegede Cole draws on her experiences growing up with two autistic brothers in order to spread awareness and understanding about this increasingly common diagnosis.

Why you should listen

Faith Jegede Cole is a British writer, speaker and researcher. She is passionate about the power of storytelling and its ability to shift mindsets. Her TED Talk titled "What I’ve learned from my autistic brothers" has been viewed over a million times and has warmed the hearts of families impacted by autism.

Faith is currently pursuing her PhD in Communication at American University. She has spent the last three years studying identity, reputation and privacy in the world of online communication. Her research specifically explores the tensions between online visibility and online vulnerability that are experienced when seeking to create positive changes in society.

Prior to her PhD, Faith worked within the radio broadcasting industry for seven years. Before moving to America she hosted and produced her own lifestyle show on a national UK station.

Faith is a proud Londoner, but now lives in Washington DC, with her husband Nathaniel Cole and happily calls it home.

More profile about the speaker
Faith Jegede Cole | Speaker | TED.com
TED@London

Faith Jegede Cole: What I've learned from my autistic brothers

Faith Jegede: Apa yang saya belajar daripada adik-adik saya yang autistik

Filmed:
1,325,374 views

Faith Jegede menceritakan kisah yang mengharukan dan lucu ketika dia membesar bersama kedua-dua orang adiknya yang autistik dan luar biasa. Ceramah ini adalah daripada TED Talent Search. Dalam ceramah ini, dia mengingatkan kita agar mengejar kehidupan yang melangkau apa yang dianggap normal.
- Writer
Writer Faith Jegede Cole draws on her experiences growing up with two autistic brothers in order to spread awareness and understanding about this increasingly common diagnosis. Full bio

Double-click the English transcript below to play the video.

00:16
TodayHari ini I have just one requestpermintaan.
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Hari ini,
saya mempunyai satu permintaan.
00:19
Please don't tell me I'm normalnormal.
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Jangan beritahu saya
bahawa saya adalah normal.
00:23
Now I'd like to introducememperkenalkan you to my brothersadik.
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Saya mahu memperkenalkan
adik-adik saya kepada anda.
00:27
RemiMengkhususkan is 22,
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Remi berusia 22 tahun.
00:29
talltinggi and very handsomekacak.
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Dia tinggi dan sangat kacak.
00:32
He's speechlessmembisu, but he communicatesberkomunikasi joykegembiraan
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Dia tidak dapat berkata-kata,
tapi dia mengkomunikasikan kegembiraan
00:36
in a way that some of the bestterbaik oratorsorators cannottidak boleh.
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dengan cara yang mungkin tidak dapat
ditunjukkan oleh ahli pidato terbaik.
00:41
RemiMengkhususkan knowstahu what love is.
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Remi tahu apa itu kasih sayang.
00:43
He sharessaham it unconditionallytanpa syarat and he sharessaham it regardlesstidak kira.
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Dia memberikan kasih sayang tanpa syarat.
00:48
He's not greedytamak. He doesn't see skinkulit colorwarna.
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Dia tidak tamak.
Dia tidak membezakan warna kulit.
00:51
He doesn't carepenjagaan about religiousagama differencesperbezaan, and get this:
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Dia tidak menghiraukan perbezaan agama,
00:54
He has never told a lieberbohong.
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dan dia tidak pernah bercakap bohong.
00:58
When he singsmenyanyi songslagu-lagu from our childhoodzaman kanak-kanak,
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Semasa kecil,
apabila dia cuba menyanyikan
01:00
attemptingcuba wordskata-kata that not even I could rememberingat,
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kata-kata yang saya sendiri sudah lupa,
01:03
he remindsmengingatkan me of one thing:
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dia mengingatkan saya kepada satu perkara:
01:05
how little we know about the mindfikiran, and how wonderfulindah
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betapa kurangnya apa yang kita tahu
tentang minda,
01:08
the unknowntidak diketahui mustmestilah be.
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dan betapa indahnya
apa yang kita tidak tahu.
01:11
SamuelSamuel is 16. He's talltinggi. He's very handsomekacak.
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Samuel berusia 16 tahun.
Dia sangat tinggi. Dia sangat kacak.
01:17
He has the mostpaling banyak impeccablesungguh baik memoryingatan.
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Dia mempunyai ingatan yang sangat baik,
01:21
He has a selectiveterpilih one, thoughwalaupun.
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tapi ingatan dia terpilih.
01:23
He doesn't rememberingat if he stolemencuri my chocolatecoklat barbar,
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Dia tidak ingat jika dia telah
mencuri coklat saya,
01:27
but he remembersmengingati the yeartahun of releasepelepasan for everysetiap songlagu on my iPodiPod,
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tapi dia ingat tahun terbitan
setiap lagu dalam iPod saya,
01:31
conversationsperbualan we had when he was fourempat,
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perbualan kami semasa dia berusia 4 tahun,
01:33
weeingweeing on my armlengan on the first ever episodeepisod of TeletubbiesTeletubbies,
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terkencing dalam pelukan saya
semasa episod pertama Teletubbies,
01:36
and LadyLady Gaga'sGaga di birthdayhari lahir.
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dan hari jadi Lady Gaga.
01:40
Don't they soundbunyi incredibleluar biasa?
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Mereka sangat menakjubkan, kan?
01:43
But mostpaling banyak people don't agreebersetuju.
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Tapi kebanyakan orang tidak setuju.
01:46
And in factfakta, because theirmereka mindsminda don't fitpatut
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Pada hakikatnya,
oleh sebab minda mereka
01:48
into society'smasyarakat versionversi of normalnormal,
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tidak dianggap normal
oleh masyarakat,
01:51
they're oftenselalunya bypassedbypassed and misunderstoodsalah faham.
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mereka selalunya tidak
dipedulikan dan disalahfahami.
01:54
But what lifteddiangkat my hearthati and strengtheneddiperkukuhkan my souljiwa
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Tapi apa yang menggembirakan saya
dan menguatkan jiwa saya ialah,
01:58
was that even thoughwalaupun this was the casekes,
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walaupun ini keadaannya,
02:00
althoughwalaupun they were not seendilihat as ordinarybiasa,
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walaupun mereka tidak dianggap biasa,
02:03
this could only mean one thing:
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ini menunjukkan satu perkara:
02:05
that they were extraordinaryluar biasa --
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Mereka adalah luar biasa -
02:09
autisticautistik and extraordinaryluar biasa.
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autistik dan luar biasa.
02:13
Now, for you who maymungkin be lesskurang familiarbiasa with the termterma "autismautisme,"
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Bagi anda yang tidak biasa
dengan istilah "autisme",
02:18
it's a complexkompleks brainotak disordergangguan that affectsmemberi kesan socialsosial communicationkomunikasi,
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ia merupakan kecelaruan otak
yang mempengaruhi komunikasi sosial,
02:21
learningpembelajaran and sometimeskadang-kadang physicalfizikal skillskemahiran.
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pembelajaran dan kadangkala kemahiran fizikal.
02:25
It manifestsmemanifestasikan in eachsetiap individualindividu differentlyberbeza,
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Ia adalah berbeza bagi setiap orang,
02:28
henceOleh itu why RemiMengkhususkan is so differentberbeza from SamSam.
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sebab itu Remi sangat berbeza
daripada Sam.
02:31
And acrossmerentasi the worlddunia, everysetiap 20 minutesminit, one newbaru personorang
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Di seluruh dunia, setiap 20 minit,
satu orang
02:33
is diagnoseddidiagnosis with autismautisme, and althoughwalaupun it's one of
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didiagnosis dengan autisme.
Walaupun ia merupakan
02:36
the fastest-growingpaling cepat berkembang developmentalPembangunan disordersgangguan in the worlddunia,
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salah satu kecelaruan perkembangan
yang banyak berlaku di dunia,
02:39
there is no knowndiketahui causesebab or curepenawar.
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tiada sebab atau rawatan
yang diketahui tentangnya.
02:42
And I cannottidak boleh rememberingat the first momentmomen I encounteredditemui autismautisme,
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Saya tidak ingat bagaimana
saya tahu tentang autisme,
02:46
but I cannottidak boleh recallingat a day withouttanpa it.
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tapi saya selalu berdepan dengannya.
02:49
I was just threetiga yearstahun oldtua when my brothersaudara lelaki camedatang alongbersama-sama,
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Saya berusia 3 tahun
ketika adik saya lahir.
02:51
and I was so excitedteruja that
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Saya sangat gembira kerana
02:53
I had a newbaru beingmenjadi in my life.
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saya mempunyai ahli keluarga yang baru.
02:57
And after a fewbeberapa monthsbulan wentpergi by,
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Setelah beberapa bulan,
02:59
I realizedsedar that he was differentberbeza.
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saya sedar bahawa dia agak berbeza.
03:02
He screamedmenjerit a lot.
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Dia selalu menjerit-jerit.
03:04
He didn't want to playbermain like the other babiesbayi did,
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Dia tidak bermain
seperti bayi-bayi yang lain.
03:07
and in factfakta, he didn't seemnampaknya
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Sebenarnya, dia nampaknya
tidak berminat pada saya.
03:09
very interestedberminat in me whatsoeverapa sahaja.
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Sebenarnya, dia nampaknya
tidak berminat pada saya.
03:12
RemiMengkhususkan livedhidup and reignedmemerintah in his ownsendiri worlddunia, with his ownsendiri rulesperaturan,
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Remi hidup dalam dunia sendiri,
dengan peraturan sendiri.
03:16
and he founddijumpai pleasurekeseronokan in the smallestterkecil things,
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Dia menemui keseronokan
dalam perkara remeh,
03:18
like lininglapisan up carskereta around the roombilik
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misalnya membariskan kereta
di dalam bilik,
03:20
and staringmerenung at the washingbasuh machinemesin
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merenung mesin basuh,
03:22
and eatingmakan anything that camedatang in betweenantara.
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dan makan apa saja
yang berada di depan dia.
03:26
And as he grewberkembang olderlebih tua, he grewberkembang more differentberbeza,
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Apabila dia semakin besar,
dia menjadi semakin berbeza,
03:29
and the differencesperbezaan becamemenjadi more obviousjelas.
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dan perbezaan dia semakin ketara.
03:32
YetLagi beyonddi luar the tantrumstantrums and the frustrationkekecewaan
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Perangai dan kekecewaan dia,
03:35
and the never-endingbercuti hyperactivityhiperaktiviti
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dan hiperaktiviti yang sering ditunjukkan
03:38
was something really uniqueunik:
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merupakan sesuatu yang unik:
03:41
a puretulen and innocenttidak bersalah naturesifat, a boybudak lelaki who saw the worlddunia
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Sifat yang tulus ikhlas,
seorang budak yang melihat dunia
03:45
withouttanpa prejudiceprejudis, a humanmanusia who had never liedberbohong.
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tanpa prejudis, seorang manusia
yang tidak pernah bercakap bohong.
03:50
ExtraordinaryLuar biasa.
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Luar biasa.
03:53
Now, I cannottidak boleh denymenafikan that there have been
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Saya tidak menafikan bahawa terdapat
03:55
some challengingmencabar momentsmomen in my familykeluarga,
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saat-saat yang mencabar
dalam keluarga saya,
03:58
momentsmomen where I've wishedingin that they were just like me.
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saat-saat di mana saya mengharapkan
bahawa mereka adalah seperti saya.
04:01
But I castpelakon my mindfikiran back to the things that they'vemereka telah taughtdiajar me
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Tapi saya mengimbas perkara
yang mereka mengajar saya
04:04
about individualitykeperibadian and communicationkomunikasi and love,
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tentang keindividuan,
komunikasi dan kasih sayang,
04:08
and I realizesedar that these are things that
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dan saya sedar bahawa saya tidak mahu
04:11
I wouldn'ttidak akan want to changeubah with normalitynormality.
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menukarkan semua ini dengan kenormalan.
04:15
NormalityNormality overlooksmenghadapinya the beautykecantikan that differencesperbezaan give us,
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Kenormalan mengabaikan keindahan perbezaan.
04:21
and the factfakta that we are differentberbeza doesn't mean that one of us is wrongsalah.
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Biarpun kita berbeza, ia tidak bermakna
salah seorang daripada kita salah.
04:24
It just meansbermakna that there's a differentberbeza kindjenis of right.
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Itu cuma bermakna
ia betul dari segi yang berbeza.
04:28
And if I could communicateberkomunikasi just one thing to RemiMengkhususkan
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Jika saya boleh mengkomunikasikan
satu perkara kepada Remi dan Sam,
04:32
and to SamSam
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Jika saya boleh mengkomunikasikan
satu perkara kepada Remi dan Sam,
04:34
and to you,
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dan kepada anda,
04:36
it would be that you don't have to be normalnormal.
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perkara itu ialah,
anda tidak perlu menjadi normal.
04:39
You can be extraordinaryluar biasa.
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Anda boleh menjadi luar biasa.
04:43
Because autisticautistik or not,
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Kerana sama ada autistik atau tidak,
04:46
the differencesperbezaan that we have --
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perbezaan kita --
04:48
We'veKita kena got a gifthadiah! Everyone'sSemua orang got a gifthadiah insidedalam of us,
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Kita merupakan anugerah!
Setiap orang merupakan sebuah anugerah.
04:52
and in all honestykejujuran, the pursuitmengejar of normalitynormality
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Secara jujur,
usaha mengejar kenormalan
04:56
is the ultimatemuktamad sacrificepengorbanan of potentialpotensi.
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akan mengorbankan potensi.
04:59
The chancepeluang for greatnesskehebatan, for progresskemajuan and for changeubah
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Peluang untuk keunggulan,
kemajuan dan perubahan
05:03
diesmati the momentmomen we try to be like someoneseseorang elselain.
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akan hilang ketika kita cuba menjadi orang lain.
05:07
Please -- don't tell me I'm normalnormal.
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Tolonglah, jangan beritahu saya
bahawa saya adalah normal.
05:10
Thank you. (ApplauseTepukan)
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Terima kasih.
05:12
(ApplauseTepukan)
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(Tepukan)
Translated by PF Ng

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ABOUT THE SPEAKER
Faith Jegede Cole - Writer
Writer Faith Jegede Cole draws on her experiences growing up with two autistic brothers in order to spread awareness and understanding about this increasingly common diagnosis.

Why you should listen

Faith Jegede Cole is a British writer, speaker and researcher. She is passionate about the power of storytelling and its ability to shift mindsets. Her TED Talk titled "What I’ve learned from my autistic brothers" has been viewed over a million times and has warmed the hearts of families impacted by autism.

Faith is currently pursuing her PhD in Communication at American University. She has spent the last three years studying identity, reputation and privacy in the world of online communication. Her research specifically explores the tensions between online visibility and online vulnerability that are experienced when seeking to create positive changes in society.

Prior to her PhD, Faith worked within the radio broadcasting industry for seven years. Before moving to America she hosted and produced her own lifestyle show on a national UK station.

Faith is a proud Londoner, but now lives in Washington DC, with her husband Nathaniel Cole and happily calls it home.

More profile about the speaker
Faith Jegede Cole | Speaker | TED.com

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