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Faith Jegede Cole: What I've learned from my autistic brothers
Faith Jegede: Što sam naučila od svoje autistične braće
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Faith Jegede ispričala je dirljivu i zabavnu priču o odrastanju s dvojicom braće. Obojica su autistična i obojica su iznimna. U ovom govoru u sklopu TED-ove potrage za talentima, ona nas podsjeća da tragamo za životom izvan granica normalnoga.
Faith Jegede Cole - Writer
Writer Faith Jegede Cole draws on her experiences growing up with two autistic brothers in order to spread awareness and understanding about this increasingly common diagnosis. Full bio
Writer Faith Jegede Cole draws on her experiences growing up with two autistic brothers in order to spread awareness and understanding about this increasingly common diagnosis. Full bio
Double-click the English transcript below to play the video.
00:16
Today I have just one request.
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Danas imam samo jednu molbu.
00:19
Please don't tell me I'm normal.
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Nemojte mi govoriti da sam normalna.
00:23
Now I'd like to introduce you to my brothers.
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Htjela bih vas upoznati sa svojom braćom.
00:27
Remi is 22,
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Remi ima 22 godine,
00:29
tall and very handsome.
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visok je i vrlo zgodan.
00:32
He's speechless, but he communicates joy
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Ne govori, ali prenosi radost na način
00:36
in a way that some of the best orators cannot.
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koji ne uspijeva ni nekima od najboljih govornika.
00:41
Remi knows what love is.
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Remi zna što je ljubav.
00:43
He shares it unconditionally and he shares it regardless.
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Širi je bezuvjetno i bez zadrške.
00:48
He's not greedy. He doesn't see skin color.
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Nije pohlepan. Ne vidi boju kože.
00:51
He doesn't care about religious differences, and get this:
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Ne zanimaju ga vjerske razlike i, pazite ovo:
00:54
He has never told a lie.
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Nikad nije izrekao laž.
00:58
When he sings songs from our childhood,
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Kad pjeva pjesme iz našeg djetinjstva,
01:00
attempting words that not even I could remember,
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prisjećajući se riječi kojih se čak ni ja ne mogu sjetiti,
01:03
he reminds me of one thing:
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podsjeti me
01:05
how little we know about the mind, and how wonderful
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koliko malo znamo o umu i koliko divne
01:08
the unknown must be.
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moraju biti njegove nepoznanice.
01:11
Samuel is 16. He's tall. He's very handsome.
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Samuel ima 16 godina. Visok je. Vrlo je zgodan.
01:17
He has the most impeccable memory.
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Ima nepogrešivo pamćenje.
01:21
He has a selective one, though.
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Ono je, doduše, selektivno.
01:23
He doesn't remember if he stole my chocolate bar,
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Ne sjeća se je li ukrao moju čokoladicu,
01:27
but he remembers the year of release for every song on my iPod,
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no sjeća se godine izdanja
svake pjesme na mojemu iPod-u,
svake pjesme na mojemu iPod-u,
01:31
conversations we had when he was four,
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razgovora koje smo vodili kad je imao 4 godine,
01:33
weeing on my arm on the first ever episode of Teletubbies,
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mokrenja na moju ruku tijekom
prve epizode Teletubbiesa
prve epizode Teletubbiesa
01:36
and Lady Gaga's birthday.
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i rođendana Lady Gage.
01:40
Don't they sound incredible?
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Ne čine li vam se nevjerojatnima?
01:43
But most people don't agree.
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No većina se ljudi ne slaže.
01:46
And in fact, because their minds don't fit
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U biti, budući da se njihovi umovi ne uklapaju
01:48
into society's version of normal,
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u društvenu verziju normalnoga,
01:51
they're often bypassed and misunderstood.
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često su izbjegavani i neshvaćeni.
01:54
But what lifted my heart and strengthened my soul
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No, ono što mi je razveselilo srce i ojačalo dušu
01:58
was that even though this was the case,
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jest to da, iako stvari tako stoje,
02:00
although they were not seen as ordinary,
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iako ih nitko ne smatra običnima,
02:03
this could only mean one thing:
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to može značiti samo jedno:
02:05
that they were extraordinary --
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oni su izuzetno posebni --
02:09
autistic and extraordinary.
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autistični i iznimni.
02:13
Now, for you who may be less familiar with the term "autism,"
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Za vas koji možda niste toliko
upoznati s pojmom autizma,
upoznati s pojmom autizma,
02:18
it's a complex brain disorder that affects social communication,
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to je složen poremećaj mozga koji utječe
na društvenu komunikaciju,
na društvenu komunikaciju,
02:21
learning and sometimes physical skills.
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učenje i ponekad fizičke vještine.
02:25
It manifests in each individual differently,
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Na svakom se pojedincu drugačije očituje
02:28
hence why Remi is so different from Sam.
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te je Remi zato toliko drugačiji od Sama.
02:31
And across the world, every 20 minutes, one new person
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Svakih je 20 minuta jednoj osobi u svijetu
02:33
is diagnosed with autism, and although it's one of
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dijagnosticiran autizam i, iako je to jedan od
02:36
the fastest-growing developmental disorders in the world,
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poremećaja u razvoju s najbržim porastom u svijetu,
02:39
there is no known cause or cure.
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nije mu poznat uzrok niti lijek.
02:42
And I cannot remember the first moment I encountered autism,
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Ne mogu se sjetiti prvog trenutka
kad sam se susrela s autizmom,
kad sam se susrela s autizmom,
02:46
but I cannot recall a day without it.
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no ne mogu ni u sjećanje prizvati dan bez njega.
02:49
I was just three years old when my brother came along,
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Imala sam samo 3 godine
kad je moj brat došao na svijet
kad je moj brat došao na svijet
02:51
and I was so excited that
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i bila sam toliko uzbuđena što
02:53
I had a new being in my life.
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imam novo biće u svom životu.
02:57
And after a few months went by,
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Nakon nekoliko mjeseci,
02:59
I realized that he was different.
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shvatila sam da je drugačiji.
03:02
He screamed a lot.
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Puno je vrištao.
03:04
He didn't want to play like the other babies did,
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Nije se htio igrati poput drugih beba
03:07
and in fact, he didn't seem
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i zapravo se činilo da ga
03:09
very interested in me whatsoever.
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ja nimalo ne zanimam.
03:12
Remi lived and reigned in his own world, with his own rules,
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Remi je živio i vladao u vlastitom svijetu
s vlastitim pravilima,
s vlastitim pravilima,
03:16
and he found pleasure in the smallest things,
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a zadovoljstvo je pronalazio u malim stvarima
03:18
like lining up cars around the room
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poput redanja autića po sobi,
03:20
and staring at the washing machine
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ili zurenja u perilicu,
03:22
and eating anything that came in between.
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ili jedenja bilo čega između te dvije aktivnosti.
03:26
And as he grew older, he grew more different,
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Kako je rastao, tako je postajao sve drugačiji
03:29
and the differences became more obvious.
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i razlike su postale puno očitije.
03:32
Yet beyond the tantrums and the frustration
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No ispod svih gnjevnih ispada, frustracija
03:35
and the never-ending hyperactivity
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i vječite hiperaktivnosti,
03:38
was something really unique:
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bilo je nešto uistinu jedinstveno:
03:41
a pure and innocent nature, a boy who saw the world
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čista i nevina narav, dječak koji je svijet promatrao
03:45
without prejudice, a human who had never lied.
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oslobođen predrasuda,
ljudsko biće koje nikad nije slagalo.
ljudsko biće koje nikad nije slagalo.
03:50
Extraordinary.
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Izuzetno.
03:53
Now, I cannot deny that there have been
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Ipak, ne mogu poreći da je bilo
03:55
some challenging moments in my family,
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teških trenutaka u mojoj obitelji,
03:58
moments where I've wished that they were just like me.
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trenutaka u kojima sam željela da su poput mene.
04:01
But I cast my mind back to the things that they've taught me
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No prisjetim se stvari koje su me naučili
04:04
about individuality and communication and love,
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o individualnosti, komunikaciji i ljubavi
04:08
and I realize that these are things that
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i shvatim da su to stvari koje
04:11
I wouldn't want to change with normality.
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ne bih htjela zamijeniti normalnošću.
04:15
Normality overlooks the beauty that differences give us,
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Normalnost previđa ljepotu koju nam razlike daju i
04:21
and the fact that we are different doesn't mean that one of us is wrong.
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previđa činjenicu da to što smo različiti
ne znači da je jedno od nas u krivu.
ne znači da je jedno od nas u krivu.
04:24
It just means that there's a different kind of right.
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To samo znači da postoji drugačija vrsta ispravnoga.
04:28
And if I could communicate just one thing to Remi
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Kad bih mogla objasniti samo jednu stvar Remiju,
04:32
and to Sam
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Samu
04:34
and to you,
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i vama,
04:36
it would be that you don't have to be normal.
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bila bi to činjenica da ne morate biti normalni.
04:39
You can be extraordinary.
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Možete biti iznimni.
04:43
Because autistic or not,
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Jer, bili autistični ili ne,
04:46
the differences that we have --
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razlike koje su među nama --
04:48
We've got a gift! Everyone's got a gift inside of us,
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One su dar! Svatko u sebi posjeduje dar,
04:52
and in all honesty, the pursuit of normality
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a, iskreno, potraga za normalnošću
04:56
is the ultimate sacrifice of potential.
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krajnje je žrtvovanje potencijala.
04:59
The chance for greatness, for progress and for change
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Prilika za izvrsnost, za napredak i promjenu,
05:03
dies the moment we try to be like someone else.
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umire u trenutku kad pokušamo
biti poput nekog drugog.
biti poput nekog drugog.
05:07
Please -- don't tell me I'm normal.
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Molim vas -- ne govorite mi da sam normalna.
05:10
Thank you. (Applause)
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Hvala. (Pljesak)
05:12
(Applause)
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(Pljesak)
ABOUT THE SPEAKER
Faith Jegede Cole - WriterWriter Faith Jegede Cole draws on her experiences growing up with two autistic brothers in order to spread awareness and understanding about this increasingly common diagnosis.
Why you should listen
Faith Jegede Cole is a British writer, speaker and researcher. She is passionate about the power of storytelling and its ability to shift mindsets. Her TED Talk titled "What I’ve learned from my autistic brothers" has been viewed over a million times and has warmed the hearts of families impacted by autism.
Faith is currently pursuing her PhD in Communication at American University. She has spent the last three years studying identity, reputation and privacy in the world of online communication. Her research specifically explores the tensions between online visibility and online vulnerability that are experienced when seeking to create positive changes in society.
Prior to her PhD, Faith worked within the radio broadcasting industry for seven years. Before moving to America she hosted and produced her own lifestyle show on a national UK station.
Faith is a proud Londoner, but now lives in Washington DC, with her husband Nathaniel Cole and happily calls it home.
Faith Jegede Cole | Speaker | TED.com