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TEDxBeaconStreet

Norman Spack: How I help transgender teens become who they want to be

Filmed:

Puberty is an awkward time for just about everybody, but for transgender teens it can be a nightmare, as they grow overnight into bodies they aren't comfortable with. In a heartfelt talk, endocrinologist Norman Spack tells a personal story of how he became one of the few doctors in the US to treat minors with hormone replacement therapy. By staving off the effects of puberty, Spack gives trans teens the time they need. (Filmed at TEDxBeaconStreet.)

- Endocrinologist
At Boston's Children Hospital, endocrinologist Norman Spack treats transgender teens to delay the effects of puberty. Full bio

I want you all to think
00:12
about the third word that was ever said
00:16
about you,
00:20
or if you were delivering,
00:23
about the person you were delivering.
00:26
And you can all mouth it if you want
00:31
or say it out loud.
00:34
It was, the first two were, "It's a ..."
00:35
Well, it shows you that
00:44
I also deal with issues where there's
00:46
not certainty of whether it's a girl or a boy,
00:47
so the mixed answer was very appropriate.
00:50
Of course, now the answer often comes
00:54
not at birth but at the ultrasound,
00:56
unless the prospective parents choose
00:58
to be surprised like we all were.
01:01
But I want you to think about what it is
01:05
that leads to that statement
01:08
on the third word,
01:12
because the third word
01:14
is a description of your sex,
01:17
and by that I mean,
01:24
made by a description of your genitals.
01:27
Now, as a pediatric endocrinologist,
01:32
I used to be very, very involved,
01:35
and still somewhat am,
01:37
in cases in which
01:39
there are mismatches
01:42
in the externals
01:44
or between the externals and the internals,
01:47
and we literally have to figure out
01:51
what is the description of your sex.
01:56
But there is nothing that is definable
02:00
at the time of birth
02:02
that would define you,
02:05
and when I talk about definition,
02:09
I'm talking about your sexual orientation.
02:11
We don't say, "It's a gay boy."
02:18
"A lesbian girl."
02:23
Those situations don't really define themselves
02:26
more until the second decade of life.
02:29
Nor do they define your gender,
02:33
which, as different from your anatomic sex,
02:38
describes your self-concept.
02:42
Do you see yourself
02:45
as a male or female
02:47
or somewhere in the spectrum in between?
02:51
That sometimes shows up
02:56
in the first decade of life,
03:01
but it can be very confusing for parents
03:04
because it is quite normative
03:08
for children to act in a cross-gender play and way,
03:11
and that in fact there are studies that show
03:17
that even 80 percent of children
03:19
who act in that fashion
03:22
will not persist in wanting to be
03:25
the opposite gender
03:30
at the time when puberty begins.
03:32
But at the time that puberty begins,
03:36
that means between about age 10 to 12 in girls,
03:42
12 to 14 in boys,
03:45
with breast budding
03:49
or two to three times increase in the gonads
03:50
in the case of genetic males,
03:54
by that particular point, the child who says
03:57
they are in the absolute wrong body
04:00
is almost certain to be transgender
04:05
and is extremely unlikely to change those feelings,
04:09
no matter how anybody tries reparative therapy
04:16
or any other noxious things.
04:20
Now this is relatively rare,
04:24
so I had relatively little
personal experience with this,
04:27
and my experience was more typical
04:30
only because I had an adolescent practice.
04:33
And I saw someone age 24,
04:35
went through Harvard, genetically female,
04:37
went through Harvard with three male roommates
04:39
who knew the whole story,
04:41
a registrar who always listed his name
04:43
on course lists as a male name,
04:46
and came to me after graduating saying, "Help me.
04:48
I know you know a lot of endocrinology."
04:53
And indeed I've treated a lot of people
04:55
who were born without gonads.
04:57
This wasn't rocket science.
04:59
But I made a deal with him:
05:01
I'll treat you if you teach me.
05:02
And so he did.
05:05
And what an education I got
05:08
from taking care of all the members
05:10
of his support group.
05:12
And then I got really confused,
05:15
because I thought it was relatively easy at that age
05:17
to just give people the hormones
05:20
of the gender in which they were affirming,
05:22
but then my patient married,
05:26
and he married a woman
05:29
who had been born as a male,
05:32
had married as a male, had two children,
05:34
then went through a transition into female,
05:37
and now this delightful female
05:43
was attached to my male patient,
05:48
in fact got legally married because they showed up
05:52
as a man and a woman, and who knew?
05:54
Right? (Laughter)
05:56
And while I was confused about,
05:59
does this make so-and-so gay?
06:03
Does this make so-and-so straight?
06:05
I was getting sexual orientation
06:07
confused with gender identity.
06:10
And my patient said to me,
06:13
"Look, look, look.
06:15
If you just think of the following, you'll get it right:
06:17
Sexual orientation is who you go to bed with;
06:20
gender identity is who you go to bed as."
06:23
And I subsequently learned from the many adults --
06:29
I took care of about 200 adults —
06:32
I learned from them
06:34
that if I didn't look, peek as to who
06:36
their partner was in the waiting room,
06:39
I would never be able to guess
06:41
better than chance
06:43
whether they were gay, straight, bi,
06:45
or asexual in their affirmed gender.
06:47
In other words,
06:51
one thing has absolutely nothing to do
06:52
with the other.
06:55
And the data show it.
06:57
Now, as I took care of the 200 adults,
06:59
I found it extremely painful.
07:04
These people were -- many of them
07:06
had to give up so much of their lives.
07:09
Sometimes their parents would reject them,
07:13
siblings, their own children,
07:16
and then their divorcing spouse
07:18
would forbid them from seeing their children.
07:20
It was so awful, but why did they do it
07:24
at 40 and 50?
07:27
Because they felt they had to affirm themselves
07:30
before they would kill themselves.
07:34
And indeed, the rate of suicide
07:37
among untreated transgendered people
07:39
is among the highest in the world.
07:43
So what to do?
07:46
I was intrigued in going to a conference
07:49
in Holland, where they are experts in this,
07:52
and saw the most remarkable thing.
07:54
They were treating young adolescents
07:58
after giving them the most intense
08:01
psychometric testing of gender,
08:04
and they were treating them by blocking
08:07
the puberty that they didn't want.
08:09
Because basically, kids look about the same,
08:11
each sex, until they go through puberty,
08:14
at which point, if you feel you're in the wrong sex,
08:17
you feel like Pinocchio becoming a donkey.
08:20
The fantasy that you had that your body will change
08:23
to be who you want it to be with puberty
08:26
actually is nullified by the puberty you get.
08:28
And they fall apart.
08:33
So that's why putting the puberty on hold—
08:36
Why on hold? You can't just give them
08:39
the opposite hormones that young.
08:41
They'll end up stunted in growth,
08:43
and you think you can have
a meaningful conversation
08:45
about the fertility effects of such treatment
08:48
with a 10-year-old girl, a 12-year-old boy?
08:50
So this buys time in the diagnostic process
08:54
for four or five years
08:56
so that they can work it out,
08:58
they can have more and more testing,
09:01
they can live without feeling their bodies
09:04
are running away from them.
09:06
And then, in a program they call 12-16-18,
09:08
around age 12 is when they
give the blocking hormones,
09:12
and then at age 16 with retesting,
09:17
they requalify.
09:19
Now remember, the blocking
hormones are reversible,
09:21
but when you give the hormones of the opposite sex,
09:25
you now start spouting breasts and facial hair
09:28
and voice, depending on what you're using,
09:30
and those effects are permanent
09:32
or require surgery to remove
09:35
or electrolysis,
09:37
and you can never really affect the voice.
09:38
So this is serious, and this is 15-, 16-year-old stuff.
09:40
And then at 18, they're eligible for surgery,
09:45
and while there's no good surgery
for females to males genitally,
09:48
the male-to-female surgery
has fooled gynecologists.
09:52
That's how good it can be.
09:57
So I looked at how the patients were doing,
10:00
and I looked at patients who
just looked like everybody else,
10:03
except they were pubertally delayed.
10:06
But once they gave them the hormones
10:09
consistent with the gender they affirm,
10:11
they look beautiful.
10:13
They look normal. They had normal heights.
10:15
You would never be able to pick them out
10:19
in a crowd.
10:21
So at that point, I decided I'm going to do this.
10:24
This is really where the pediatric
10:26
endocrine realm comes in,
10:29
because in fact, if you're going to deal with it
10:31
in kids age 10-12, 10-14,
10:33
that's pediatric endocrinology.
10:36
So I brought some kids in,
10:39
and this now became the standard of care,
10:43
and Children's Hospital was behind it.
10:45
By my showing them the kids before and after,
10:48
people who never got treated
10:53
and people who wished to be treated,
10:54
and pictures of the Dutch,
10:56
they came to me and said,
11:00
"You've got to do something for these kids."
11:01
Well, where were these kids before?
11:03
They were out there suffering, is where they were.
11:06
So we started a program in 2007.
11:09
It became the first program of its kind --
11:15
but it's really of the Dutch kind --
11:18
in North America.
11:20
And since then, we have 160 patients.
11:22
Did they come from Afghanistan? No.
11:27
They came, 75 percent of them came
11:30
from within 150 miles of Boston.
11:33
And some came from England.
11:38
Jackie had been abused in the Midlands, in England.
11:42
She's 12 years old there,
11:45
she was living as a girl
11:47
but she was being beaten up.
11:49
It was a horror show.
11:51
They had to homeschool her.
11:52
And the reason the British were coming was
11:54
because they would not treat anybody
11:57
with anything under age 16,
12:00
which means they were consigning them
12:02
to an adult body, no matter what happened,
12:04
even if they tested them well.
12:07
Jackie, on top of it, was,
12:09
by virtue of skeletal markings,
12:12
destined to be six feet five.
12:14
And yet, she had just begun
12:18
a male puberty.
12:20
Well, I did something a little bit innovative,
12:22
because I do know hormones,
12:26
and that estrogen is much more potent
12:28
in closing epiphyses, the growth plates,
12:30
and stopping growth, than testosterone is.
12:34
So we blocked her testosterone
12:37
with a blocking hormone,
12:39
but we added estrogen, not at 16, but at 13.
12:42
And so here she is at 16, on the left.
12:46
And on her 16th birthday, she went to Thailand,
12:50
where they would do a genital plastic surgery.
12:52
They will do it at 18 now.
12:54
And she ended up 5'11"
12:56
but more than that, she has normal breast size,
12:59
because by blocking testosterone,
13:02
every one of our patients
13:04
has normal breast size
13:06
if they get to us at the appropriate age, not too late.
13:08
And on the far right, there she is.
13:12
She went public,
13:14
semifinalist in the Miss England competition.
13:16
The judges debated as to, can they do this?
13:20
Can they make her —
13:24
And one of them quipped, I'm told,
13:25
"But she has more natural self
13:28
than half the other contestants."
13:30
(Laughter)
13:32
And some of them have been rearranged a little bit,
13:34
but it's all her DNA.
13:38
And she's become a remarkable spokeswoman.
13:41
And she was offered contracts as a model,
13:44
at which point she teased me, where she said,
13:48
"You know, I might have had a better chance
13:50
as a model if you'd made me six feet one."
13:52
Go figure. (Laughter)
13:55
So this picture, I think, says it all.
14:00
It really says it all.
14:03
These are Nicole and brother Jonas,
14:05
identical twin boys,
14:09
and proven to be identical,
14:12
in which Nicole had affirmed herself
14:14
as a girl as early as age three.
14:17
At age seven, they changed her name,
14:19
and came to me at the very beginnings
14:21
of a male puberty.
14:25
Now you can imagine looking at Jonas
14:26
at only 14 that male puberty
14:28
is early in this family,
14:30
because he looks more like a 16-year-old,
14:32
but it makes the point all the more
14:34
why you have to be conscious
14:36
of where the patient is.
14:38
Nicole has done pubertal blockade in here,
14:40
and Jonas is just going -- biologic control.
14:44
This is what Nicole would look like
14:48
if we weren't doing what we were doing.
14:49
He's got a prominent Adam's apple.
14:51
He's got angular bones to the face, a mustache,
14:54
and you can see there's a height difference
14:57
because he's gone through
14:59
a growth spurt that she won't get.
15:00
Now Nicole is on estrogen.
15:02
She has a bit of a form to her.
15:04
This family went to the White House last spring
15:07
because of their work
15:11
in overturning an anti-discrimination,
15:13
there was a bill that would block
15:17
the right of transgender people in Maine
15:20
to use public bathrooms,
15:22
and it looked like the bill was going to pass,
15:24
and that would have been a problem,
15:27
but Nicole went personally
to every legislator in Maine
15:28
and said, "I can do this.
15:32
If they see me, they'll understand
15:34
why I'm no threat in the lady's room,
15:36
but I can be threatened in the men's room."
15:38
And then they finally got it.
15:40
So where do we go from here?
15:43
Well, we still have a ways to go
15:47
in terms of anti-discrimination.
15:49
There are only 17 states that have
15:51
an anti-discrimination law
15:52
against discrimination in housing,
15:54
employment, public accommodation,
15:57
only 17 states, and five of them are in New England.
16:00
We need less expensive drugs.
16:03
They cost a fortune.
16:05
And we need to get this condition
16:06
out of the DSM.
16:08
It is as much a psychiatric disease
16:11
as being gay and lesbian,
16:13
and that went out the window in 1973,
16:15
and the whole world changed.
16:18
And this isn't going to break anybody's budget.
16:20
This is not that common.
16:22
But the risks of not doing anything for them
16:25
not only puts all of them at risk
16:29
of losing their lives to suicide,
16:33
but it also says something about
16:36
whether we are a truly inclusive society.
16:39
Thank you.
16:42
(Applause)
16:45

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About the Speaker:

Norman Spack - Endocrinologist
At Boston's Children Hospital, endocrinologist Norman Spack treats transgender teens to delay the effects of puberty.

Why you should listen

Norman Spack is a pediatric endocrinologist at Boston's Children Hospital and the co-founder of the hospital's Gender Management Service clinic. Created in 2007, the clinic remains one of the few in the world that treats minors with hormone replacement therapy.

Spack began working with college-aged transgender patients professionally in 1985, but found that once patients had reached adulthood, it was extremely difficult to treat their sexually mature bodies using hormone therapy. When parents of transgender children began seeking him out through online support groups, Spack started to think about possible treatments for patients in their youth, before puberty has permanently changed their bodies. Since then Spack has spoken widely on pediatric hormone therapy and has campaigned for law reform in several states to protect transgender people against hate crimes and discrimination.

More profile about the speaker
Norman Spack | Speaker | TED.com