TEDxDelft
Mileha Soneji: Simple hacks for life with Parkinson's
Mileha Soneji: Consejos simples para la vida con Parkinson
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Las soluciones simples son a menudo las mejores, incluso si se trata de algo tan complicado como el Parkinson. En esta charla inspiradora, Mileha Soneji comparte diseños que facilitan un poco las tareas cotidianas de las personas que viven con Parkinson. "La tecnología no lo es todo", dice Mileha. "Necesitamos soluciones centradas en la persona".
Mileha Soneji - Product designer
Mileha Soneji believes that having empathy and being able to put yourself in another person's shoes is what makes for great design. Full bio
Mileha Soneji believes that having empathy and being able to put yourself in another person's shoes is what makes for great design. Full bio
Double-click the English transcript below to play the video.
00:12
In India, we have these huge families.
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En India tenemos grandes familias.
00:15
I bet a lot of you all
must have heard about it.
must have heard about it.
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Apuesto a que muchos de Uds.
han oído hablar de eso.
han oído hablar de eso.
00:18
Which means that there are
a lot of family events.
a lot of family events.
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Significa que hay gran cantidad
de eventos familiares.
de eventos familiares.
00:21
So as a child, my parents
used to drag me to these family events.
used to drag me to these family events.
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De niño, mis padres solían arrastrarme
a estos eventos familiares.
a estos eventos familiares.
00:26
But the one thing
that I always looked forward to
that I always looked forward to
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Pero lo único que yo siempre esperaba
00:29
was playing around with my cousins.
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era jugar con mis primos.
00:32
And there was always this one uncle
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Y siempre estaba ese tío
00:34
who used to be there,
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que solía estar allí,
00:35
always ready, jumping around with us,
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siempre dispuesto a saltar
00:37
having games for us,
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y a jugar con nosotros,
00:39
making us kids have the time of our lives.
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haciendo que pasáramos
grandes momentos.
grandes momentos.
00:42
This man was extremely successful:
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Este hombre tenía mucho éxito:
00:45
he was confident and powerful.
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mostraba confianza y poder.
00:47
But then I saw this hale and hearty person
deteriorate in health.
deteriorate in health.
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Pero luego vino el deterioro de salud
de esta persona sana y robusta.
de esta persona sana y robusta.
00:53
He was diagnosed with Parkinson's.
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Le diagnosticaron Parkinson.
00:56
Parkinson's is a disease that causes
degeneration of the nervous system,
degeneration of the nervous system,
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El Parkinson es una enfermedad que causa
degeneración del sistema nervioso,
degeneración del sistema nervioso,
01:00
which means that this person
who used to be independent
who used to be independent
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es decir, que a esta persona
que solía ser independiente
que solía ser independiente
01:03
suddenly finds tasks like drinking coffee,
because of tremors, much more difficult.
because of tremors, much more difficult.
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de repente le resultan difícil tareas
como beber café debido a los temblores.
como beber café debido a los temblores.
01:09
My uncle started using a walker to walk,
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Mi tío empezó a usar
andador para caminar,
andador para caminar,
01:12
and to take a turn,
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y para dar un giro
01:13
he literally had to take
one step at a time, like this,
one step at a time, like this,
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literalmente tenía que dar
de a un paso a la vez, así,
de a un paso a la vez, así,
01:17
and it took forever.
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y demoraba mucho tiempo.
01:20
So this person, who used to be
the center of attention
the center of attention
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Esta persona que solía ser
el centro de atención
el centro de atención
01:23
in every family gathering,
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en las reuniones familiares,
01:25
was suddenly hiding behind people.
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de repente se escondía entre la gente.
01:28
He was hiding from the pitiful look
in people's eyes.
in people's eyes.
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Se escondía de la mirada lastimosa
en los ojos de las personas.
en los ojos de las personas.
01:32
And he's not the only one in the world.
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Y no está solo en el mundo.
01:35
Every year, 60,000 people
are newly diagnosed with Parkinson's,
are newly diagnosed with Parkinson's,
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Cada año hay 60 000 personas
diagnosticadas con Parkinson,
diagnosticadas con Parkinson,
01:40
and this number is only rising.
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y este número solo va en aumento.
01:44
As designers, we dream that our designs
solve these multifaceted problems,
solve these multifaceted problems,
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Como diseñadores, soñamos que nuestros
diseños resuelvan problemas múltiples,
diseños resuelvan problemas múltiples,
01:49
one solution that solves it all,
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una solución que resuelva todo,
01:52
but it need not always be like that.
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pero no siempre tiene que ser así.
01:55
You can also target simple problems
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Pueden abordarse problemas simples
01:58
and create small solutions for them
and eventually make a big impact.
and eventually make a big impact.
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con pequeñas soluciones y, finalmente,
generar un gran impacto.
generar un gran impacto.
02:03
So my aim here was
to not cure Parkinson's,
to not cure Parkinson's,
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Mi objetivo no fue curar su Parkinson,
02:06
but to make their everyday tasks
much more simple,
much more simple,
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sino simplificar sus tareas cotidianas,
02:09
and then make an impact.
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y luego logar un impacto.
02:12
Well, the first thing I targeted
was tremors, right?
was tremors, right?
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Bueno, primero me centré
en los temblores, ¿sí?
en los temblores, ¿sí?
02:16
My uncle told me that he had stopped
drinking coffee or tea in public
drinking coffee or tea in public
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Mi tío me dijo que había dejado
de beber café o té en público
de beber café o té en público
02:21
just out of embarrassment,
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por vergüenza,
02:23
so, well, I designed the no-spill cup.
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por eso, bueno, diseñé
la taza antiderrame.
la taza antiderrame.
02:27
It works just purely on its form.
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Funciona gracias a su forma.
02:29
The curve on top deflects the liquid
back inside every time they have tremors,
back inside every time they have tremors,
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La curva superior desvía el líquido
hacia adentro en cada temblor,
hacia adentro en cada temblor,
02:35
and this keeps the liquid inside
compared to a normal cup.
compared to a normal cup.
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y eso mantiene el líquido dentro
en contraste con una taza normal.
en contraste con una taza normal.
02:38
But the key here is that it is not tagged
as a Parkinson's patient product.
as a Parkinson's patient product.
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Lo importante aquí es que no es solo
un producto para pacientes de Parkinson.
un producto para pacientes de Parkinson.
02:44
It looks like a cup that could be used
by you, me, any clumsy person,
by you, me, any clumsy person,
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Parece una taza para ser usada por
Uds., o yo, o cualquier persona torpe,
Uds., o yo, o cualquier persona torpe,
02:48
and that makes it much more comforting
for them to use, to blend in.
for them to use, to blend in.
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y eso la hace más cómoda de usar,
y pasar desapercibida.
y pasar desapercibida.
02:53
So, well, one problem solved,
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Bueno, un problema resuelto,
02:56
many more to go.
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y mucho más por delante.
02:58
All this while, I was interviewing him,
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En todo este tiempo, lo entrevisté,
03:01
questioning him,
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le pregunté,
03:02
and then I realized that I was getting
very superficial information,
very superficial information,
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y me di cuenta de que obtenía
información muy superficial,
información muy superficial,
03:06
or just answers to my questions.
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o solo respuestas a mis preguntas.
03:09
But I really needed to dig deeper
to get a new perspective.
to get a new perspective.
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Pero tenía que profundizar para
obtener una nueva perspectiva.
obtener una nueva perspectiva.
03:13
So I thought, well,
let's observe him in his daily tasks,
let's observe him in his daily tasks,
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Y pensé, bueno, observémoslo
en sus tareas cotidianas,
en sus tareas cotidianas,
03:16
while he's eating, while he's watching TV.
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mientras come, mientras mira TV.
03:19
And then, when I was actually
observing him walking to his dining table,
observing him walking to his dining table,
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Y al observarlo caminar
hacia su mesa del comedor,
hacia su mesa del comedor,
03:23
it struck me, this man who finds it
so difficult to walk on flat land,
so difficult to walk on flat land,
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me impactó que este hombre hallara
dificultad al caminar en suelo plano,
dificultad al caminar en suelo plano,
03:29
how does he climb a staircase?
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¿cómo subir una escalera?
03:31
Because in India we do not have
a fancy rail that takes you up a staircase
a fancy rail that takes you up a staircase
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Porque en India no tenemos carriles
estupendos para subir escaleras
estupendos para subir escaleras
03:35
like in the developed countries.
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como en los países desarrollados.
03:37
One actually has to climb the stairs.
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Uno tiene que subir las escaleras.
03:39
So he told me,
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Así que me dijo:
03:41
"Well, let me show you how I do it."
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"Bueno, te mostraré cómo lo hago".
03:43
Let's take a look at what I saw.
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Veamos lo que yo vi.
03:48
So he took really long
to reach this position,
to reach this position,
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Demoró mucho en llegar a esta posición,
03:51
and then all this while, I'm thinking,
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y en todo este tiempo, pienso,
03:53
"Oh my God, is he really going to do it?
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"Dios mío, ¿realmente lo va a hacer?
03:55
Is he really, really going to do it
without his walker?"
without his walker?"
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¿Realmente lo va a hacer sin andador?"
03:58
And then ...
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Y luego...
04:02
(Laughter)
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(Risas)
04:08
And the turns, he took them so easily.
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Dio giros con mucha facilidad.
04:13
So -- shocked?
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¿Impactados?
04:14
Well, I was too.
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Bueno, yo también.
04:19
So this person who could not
walk on flat land
walk on flat land
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Esta persona que no podía
caminar en suelo plano
caminar en suelo plano
04:22
was suddenly a pro at climbing stairs.
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de repente era un profesional
subiendo escaleras.
subiendo escaleras.
04:25
On researching this, I realized that
it's because it's a continuous motion.
it's because it's a continuous motion.
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Investigando, me di cuenta de que
se debe a que es un movimiento continuo.
se debe a que es un movimiento continuo.
04:30
There's this other man
who also suffers from the same symptoms
who also suffers from the same symptoms
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Este otro hombre
tiene los mismos síntomas
tiene los mismos síntomas
04:33
and uses a walker,
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y usa un andador,
04:35
but the moment he's put on a cycle,
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pero cuando está en una bicicleta,
04:37
all his symptoms vanish,
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desaparecen sus síntomas,
04:38
because it is a continuous motion.
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porque es un movimiento continuo.
04:41
So the key for me was to translate
this feeling of walking on a staircase
this feeling of walking on a staircase
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La clave para mí fue traducir
esta sensación de caminar escaleras
esta sensación de caminar escaleras
04:45
back to flat land.
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al suelo plano.
04:47
And a lot of ideas
were tested and tried on him,
were tested and tried on him,
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En él, probamos muchas ideas,
04:50
but the one that finally worked
was this one. Let's take a look.
was this one. Let's take a look.
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pero la que finalmente funcionó
fue esta. Veamos.
fue esta. Veamos.
04:57
(Laughter)
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(Risas)
05:00
(Applause)
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(Aplausos)
05:05
He walked faster, right?
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Caminó más deprisa, ¿no?
05:06
(Applause)
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(Aplausos)
05:11
I call this the staircase illusion,
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Yo lo llamo la ilusión de la escalera,
05:14
and actually when the staircase illusion
abruptly ended, he froze,
abruptly ended, he froze,
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y en realidad cuando acabó la ilusión
de la escalera abruptamente, se congeló,
de la escalera abruptamente, se congeló,
05:18
and this is called freezing of gait.
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y esto se llama bloqueo de la marcha.
05:20
So it happens a lot,
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Sucede mucho,
05:21
so why not have a staircase illusion
flowing through all their rooms,
flowing through all their rooms,
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de modo que ¿por qué no tener una ilusión
de escalera en cada habitación,
de escalera en cada habitación,
05:25
making them feel much more confident?
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para brindar mucha más confianza?
05:29
You know, technology is not always it.
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La tecnología no siempre lo es todo.
05:32
What we need are human-centered solutions.
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Necesitamos soluciones
centradas en la persona.
centradas en la persona.
05:34
I could have easily
made it into a projection,
made it into a projection,
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Yo podía haber hecho una proyección
05:37
or a Google Glass, or something like that.
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o usar Google Glass, o algo así.
05:39
But I stuck to simple print on the floor.
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Pero estaba limitada
a impresiones en el piso.
a impresiones en el piso.
05:42
This print could be taken into hospitals
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Esta impresión podría
llevarse a hospitales
llevarse a hospitales
05:45
to make them feel much more welcome.
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para hacerlos sentir
mucho más bienvenidos.
mucho más bienvenidos.
05:48
What I wish to do
is make every Parkinson's patient
is make every Parkinson's patient
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Deseo que cada paciente de Parkinson
05:51
feel like my uncle felt that day.
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se sienta como mi tío aquel día.
05:54
He told me that I made him feel
like his old self again.
like his old self again.
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Él me dijo que le hice sentir que
recuperaba su viejo yo otra vez.
recuperaba su viejo yo otra vez.
05:59
"Smart" in today's world
has become synonymous to high tech,
has become synonymous to high tech,
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"Smart" en el mundo actual
es sinónimo de última tecnología,
es sinónimo de última tecnología,
06:03
and the world is only getting
smarter and smarter day by day.
smarter and smarter day by day.
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y el mundo se vuelve
cada vez más "smart".
cada vez más "smart".
06:07
But why can't smart be something
that's simple and yet effective?
that's simple and yet effective?
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Pero ¿por qué "smart" no puede ser
algo simple y efectivo?
algo simple y efectivo?
06:12
All we need is a little bit of empathy
and some curiosity,
and some curiosity,
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Solo necesitamos un poco de empatía
y un poco de curiosidad,
y un poco de curiosidad,
06:16
to go out there, observe.
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salir y observar.
06:18
But let's not stop at that.
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Pero no paremos allí.
06:20
Let's find these complex problems.
Don't be scared of them.
Don't be scared of them.
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Encontremos estos problemas
complejos. No les temamos.
complejos. No les temamos.
06:24
Break them, boil them down
into much smaller problems,
into much smaller problems,
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Dividámoslos, descompongamos eso
en problemas mucho más pequeños,
en problemas mucho más pequeños,
06:27
and then find simple solutions for them.
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y luego encontremos soluciones
simples para ellos.
simples para ellos.
06:30
Test these solutions, fail if needed,
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Probemos estas soluciones,
fallemos si es necesario,
fallemos si es necesario,
06:33
but with newer insights to make it better.
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pero con ideas nuevas
para hacerlo mejor.
para hacerlo mejor.
06:36
Imagine what we all could do
if we all came up with simple solutions.
if we all came up with simple solutions.
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Imaginen lo que podríamos hacer
si todos aportáramos soluciones simples.
si todos aportáramos soluciones simples.
06:40
What would the world be like
if we combined all our simple solutions?
if we combined all our simple solutions?
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¿Cómo sería el mundo si combináramos
todas nuestras soluciones simples?
todas nuestras soluciones simples?
06:44
Let's make a smarter world,
but with simplicity.
but with simplicity.
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Hagamos un mundo más inteligente,
pero con simplicidad.
pero con simplicidad.
06:47
Thank you.
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Gracias.
06:49
(Applause)
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(Aplausos)
ABOUT THE SPEAKER
Mileha Soneji - Product designerMileha Soneji believes that having empathy and being able to put yourself in another person's shoes is what makes for great design.
Why you should listen
Mileha Soneji is a trained strategic product designer, originally hailing from the city of Pune in India. She currently works in the Netherlands as a strategist. Her work entails combining the fuzzy front-end of the design process with emerging technologies to answer the question of what needs to be designed in the future.
Even as a child, Mileha had a keen interest in (re)designing things around her, even though she had little knowledge about it as a profession. This led her to take up the Bachelor in Product Design at the MIT School of Design. After graduation, she got a couple of years of work experience in India, where she quickly realized that apart from the actual tangible design, a successful product needs a backbone of thorough research in user needs and market analysis. The need to study this further brought Mileha to Delft University of Technology in the Netherlands to study Strategic Product Design for her Masters.
Mileha Soneji | Speaker | TED.com