BJ Miller: What really matters at the end of life
Bīdžejs Millers: Kam dzīves beigās patiešām ir nozīme
Using empathy and a clear-eyed view of mortality, BJ Miller shines a light on healthcare’s most ignored facet: preparing for death. Full bio
Double-click the English transcript below to play the video.
lai jautātu, tāpēc pastāstīšu.
no Pateicības dienas svētkiem,
were horsing around,
a parked commuter train.
uz stāvoša metro vilciena jumta.
with the wires that run overhead.
ar strāvas vadiem virs galvas.
like a great idea at the time.
muļķīgākas lietas.
and that was that.
joprojām strādā.
with death -- my death --
ar nāvi – manu nāvi –
my long run as a patient.
of dysfunction --
mērojas ar tās nopelniem.
a hospice and palliative medicine doc,
un paliatīvās medicīnas ārsts,
who goes into healthcare
veselības aprūpē strādājošie
are also unwitting agents
does not serve.
answer to that question,
patiesībā, ir ļoti vienkārša
with diseases, not people, at its center.
uz slimībām, nevis cilvēkiem.
it was badly designed.
of bad design more heartbreaking
nav tik traģiskas
for good design more compelling
and concentrated.
un koncentrējies.
to reach out across disciplines
ir runāt starpdisciplīnāri
into this big conversation.
šajā nopietnajā sarunā par to,
opportunity in front of us,
vispārīgajiem jautājumiem,
about death isn't being dead,
miršanā nav pati nāve,
it can be very helpful
var ļoti noderēt
which is necessary as it is,
kas noteikti ir vajadzīgas
essential part of life, part of the deal,
pieder pie lietas.
to make space, adjust, grow.
to realize forces larger than ourselves.
kas ir lielāki par mums pašiem.
became fact, fixed --
reject this fact than reject myself.
noraidīt šo faktu, nenoraidot sevi.
but I learned it eventually.
about necessary suffering
is where healing happens.
ka šī ir vieta, kur dziedina.
as we learned yesterday --
kā vakar uzzinājām –
on the other hand,
is unnecessary, invented.
nevajadzīgu ciešanu.
since this brand of suffering is made up,
ka ja esam tās izgudrojuši,
something we can affect.
to this fundamental distinction
pret šo milzīgo atšķirību
and unnecessary suffering
un nevajadzīgajām ciešanām
design cues for the day.
sistēmas uzlabošanas norādēm.
as people who care,
„cilvēkiem, kas aprūpē”,
not add to the pile.
of a reflective advocate,
sava veida pārdomu padomdevējs,
important field but poorly understood --
– svarīga bet maz novērtēta nozare,
limited to end of life care.
ar mirstošo pacientu aprūpi.
uz neizdziedināmo slimnīcām.
and living well at any stage.
un labu dzīvi jebkurā tās posmā,
have to be dying anytime soon
ka jums nav jābūt drīzumā mirstošam,
on top of long-standing HIV.
un turklāt ilgtermiņa imūndeficīta vīruss.
kaulu sāpēm un nogurumu,
out loud together about his life --
skaļi domājot par viņa dzīvi,
his losses as they roll in,
tiem kļūstot arvien pamanāmākiem,
the next moment.
but regret, quite another.
bet nožēla – pavisam kas cits.
out of a Norman Rockwell painting --
zīmējumu personāžs,
kad viņš kādudien ieradās klīnikā
when he came into clinic one day,
down the Colorado River.
plostot lejup pa Kolorado upi.
and his health, some would say no.
viņa drošībai un veselībai,
while he still could.
kamēr vēl bija spējīgs.
scorpions, snakes,
skorpioni, čūskas,
of the Grand Canyon --
krāšņajām malām –
beyond our control.
kas ir ārpus mūsu kontroles.
so many of us would make,
ko daudzi no mums būtu veikuši,
what is best for ourselves over time.
kas katram no mums ir vislabākais.
is a shift in perspective.
ir skatpunkta nobīde.
when I went back to college,
kad atgriezos augstskolā,
uz mākslas vēsturi.
I'd learn something about how to see --
es vēlējos iemācīties redzēt.
for a kid who couldn't change
kas nevarēja izmainīt
we humans get to play with,
ar ko mēs, cilvēki, spēlējamies,
es strādāju lieliskā vietā Sanfrancisko,
at an amazing place in San Francisco
that helps with this shift in perspective.
tikt galā ar šo skatpunkta nobīdi.
wheeling the body out through the garden,
un, vedot viņa ķermeni caur dārzu
nurses, volunteers,
medmāsas, brīvprātīgie,
with flower petals.
to usher in grief with warmth,
kā ievadīt sēras ar sirds siltumu,
in the hospital setting,
slimnīcas apstākļiem,
lined with tubes and beeping machines
ar caurulēm, pīkstošiem aparātiem,
even when the patient's life has.
kas neapstājas pat pēc pacienta nāves.
the body's whisked away,
had never really existed.
nekad nemaz nav eksistējis.
in the name of sterility,
within those walls is numbness --
varam cerēt ir nejūtīgums –
the opposite of aesthetic.
I am alive because of them.
Pateicoties tām esmu dzīvs.
and treatable illness.
un ārstējamām slimībām.
that's not what they were designed for.
Tās nav tam paredzētas.
giving up on the notion
can become more humane.
in Livingston, New Jersey,
Livingstonā, Ņūdžersijā,
great care at every turn,
saņēmu lielisku aprūpi,
palliative care for my pain.
complaining about driving through it.
par sliktajiem braukšanas apstākļiem.
coming down all sticky.
kā tas krīt no debesīm.
smuggled in a snowball for me.
man slepus ienesa sniega piku.
holding that in my hand,
ko jutu, turot to rokā,
onto my burning skin;
and turn into water.
kā tā kūst un pārvēršas ūdenī.
in this universe mattered more to me
šajā visumā nozīmēja vairāk,
all the inspiration I needed
bija visa man vajadzīgā iedvesma,
and be OK if I did not.
vai aizietu mierā, ja tas neizdotos.
I've known many people
esmu pazinis daudzus cilvēkus,
some final peace or transcendence,
mieru vai transcendenci,
by what their lives had become --
kļuvusi pretīga pašu dzīve.
living with chronic and terminal illness,
ar hroniskām un terminālām slimībām.
or prepared for this silver tsunami.
šim sudraba cunami.
dynamic enough to handle
dinamiska infrastruktūra, lai tiktu galā
straujajiem satricinājumiem.
something new, something vital.
ko ļoti svarīgu.
for designers of all stripes to work with.
ko dažādiem dizaineriem likt lietā.
who are closer to death:
and unburdening to those they love;
viņam un viņa tuvajiem.
of wonderment and spirituality.
apgarotības un garīguma sajūta.
from our residents in subtle detail.
esam iemācījušies ļoti daudz sīkumu.
one day to the next due to ALS.
while she has them.
kamēr viņai tās vēl ir.
at the foot of her bed,
pret savu sauso ādu,
coursing through her veins --
dedzinās viņas vēnas.
where in a moment, in an instant,
kas kādā mirklī, acumirklī,
loving our time by way of the senses,
izbaudīšana caur maņām,
doing the living and the dying.
to pašu, kas dzīvo un mirst.
is our kitchen,
can eat very little, if anything at all.
gandrīz nemaz nevar ēst.
sustenance on several levels:
apmierinājumu vairākos līmeņos:
happening under our roof,
kas notiek mūsu telpās,
interventions we know of,
un iesaistošajiem ir
the possibility of accessing
justies kā cilvēkiem, saistītiem.
living and dying with dementia.
kas dzīvo un mirst no plānprātības.
the things we don't have words for,
kam mums pat trūkst vārdu.
of the system was our first design cue,
no sistēmas bija mūsu galvenā norāde,
by way of the senses,
the aesthetic realm --
and final bit for today;
trešās un pēdējās šodienas domas,
to set our sights on well-being,
more wonderful,
or human-centered model of care,
un uz cilvēkiem vērsto aprūpes modeli.
becomes a creative, generative,
jaunradi,
highest forms of adaptation.
augstākajām pielāgošanās formām.
it takes to be human.
cilvēka dzīves vajadzības.
radījusi kulināriju.
has given rise to architecture.
radījusi arhitektūru.
is a necessary part of life,
ir neatņemama dzīves sastāvdaļa,
we take a light approach to dying
pret nāvi attiekties vieglprātīgi,
any particular way of dying.
kādu īpašu miršanas veidu.
that cannot move,
we will all kneel there.
to play itself all the way out --
dzīvei sevi izspēlēt līdz galam,
getting out of the way,
a process of crescendo through to the end.
par krešendo līdz pat pēdējam.
one way or another.
around this fact,
ņemot šo faktu vērā.
var rast skaistuma vai jēgas dzirksti.
a shock of beauty or meaning
for a perfect moment,
kas sniedza brīnišķīgu brīdi,
ABOUT THE SPEAKER
BJ Miller - Palliative care physicianUsing empathy and a clear-eyed view of mortality, BJ Miller shines a light on healthcare’s most ignored facet: preparing for death.
Why you should listen
Palliative care specialist BJ Miller helps patients face their own deaths realistically, comfortably, and on their own terms. Miller is cultivating a model for palliative care organizations around the world, and emphasizing healthcare’s quixotic relationship to the inevitability of death. He is a hospice and palliative medicine physician and sees patients and families at the UCSF Helen Diller Family Comprehensive Cancer Center.
Miller’s passion for palliative care stems from personal experience -- a shock sustained while a Princeton undergraduate cost him three limbs and nearly killed him. But his experiences form the foundation of a hard-won empathy for patients who are running out of time.
BJ Miller | Speaker | TED.com