BJ Miller: What really matters at the end of life
बीजे मिलर: शिल्लक आयुष्याच्या शेवटी राहणारी
Using empathy and a clear-eyed view of mortality, BJ Miller shines a light on healthcare’s most ignored facet: preparing for death. Full bio
Double-click the English transcript below to play the video.
मला त्यासाठी लागला.
were horsing around,
a parked commuter train.
चढून जावयाचे ठरविले.
with the wires that run overhead.
विद्युत प्रवाह वाहून नेणाऱ्या तारांखाली
like a great idea at the time.
and that was that.
with death -- my death --
ती पहिली भेट होती
my long run as a patient.
of dysfunction --
कारणीभूत आहेत.
a hospice and palliative medicine doc,
कश्या त्यांना शन करता येतील हे पाहतो
who goes into healthcare
are also unwitting agents
does not serve.
answer to that question,
with diseases, not people, at its center.
रुग्णांसाठी नाहीत.
it was badly designed.
ते खराब रचनेचे असतात.
of bad design more heartbreaking
for good design more compelling
and concentrated.
to reach out across disciplines
काम करावयाचे आहे.
into this big conversation.
चर्चेचे निमंत्रण देतो .
opportunity in front of us,
मरणास सामोरे जावे
about death isn't being dead,
it can be very helpful
which is necessary as it is,
गरजेचे आहे.
essential part of life, part of the deal,
तो अटळ भाग आहे,
to make space, adjust, grow.
to realize forces larger than ourselves.
समजून घेणे शहाणपणाचे ठरेल.
became fact, fixed --
reject this fact than reject myself.
but I learned it eventually.
about necessary suffering
is where healing happens.
येथेच दडले आहे .
as we learned yesterday --
on the other hand,
is unnecessary, invented.
since this brand of suffering is made up,
चांगली बाब आहे कि
something we can affect.
यात बदल करू शकतो
to this fundamental distinction
and unnecessary suffering
यांचा मुलभूत विचारस्र्णीत
design cues for the day.
as people who care,
आपले काम आहे.
not add to the pile.
त्यात भर न घालता.
of a reflective advocate,
चिंतनशील प्रवक्ता आहे.
important field but poorly understood --
अनेकांना समजली नाही.
limited to end of life care.
अंतापर्यंत मर्यादित नाही.
and living well at any stage.
जीवनाच्या कोणत्याही अवस्थेत
have to be dying anytime soon
मृत्यू येईल.
ज्यायोगे.
on top of long-standing HIV.
शिवाय तो एच आय व्ही आहे दीर्घकाळापासून
त्याच्यावर उपचार केलेत.
out loud together about his life --
विचार करीत असू.
his losses as they roll in,
the next moment.
but regret, quite another.
आणि पश्चाताप दुसरी बाब
out of a Norman Rockwell painting --
when he came into clinic one day,
काही आश्वर्य वाटले नाही.
down the Colorado River.
and his health, some would say no.
पाहून एखादा नाही म्हणेल.
while he still could.
करावयाचे होते काहीनी केले नसते.
scorpions, snakes,
उष्णता ,साप, विंचू
of the Grand Canyon --
पाण्याची भिंत--
beyond our control.
so many of us would make,
what is best for ourselves over time.
याचा अंदाज घेत होतो.
is a shift in perspective.
म्हणजे दृष्टिकोनातील बदल आहे.
when I went back to college,
महाविद्यालयात गेलो.
अभ्यास निवडला.
I'd learn something about how to see --
for a kid who couldn't change
नाही अश्यांसाठी
we humans get to play with,
दोन जणातील हा अनुभव असतो.
at an amazing place in San Francisco
मी सन फ्रान्सिस्कोयेथे काम केले.
that helps with this shift in perspective.
दृष्टीकोनात बदल होण्यास मदत झाली.
wheeling the body out through the garden,
मृत शरीर नेत होते.
nurses, volunteers,
परिचारिका, स्वयंसेवक
शांततेत श्रद्धांजली दिली
with flower petals.
to usher in grief with warmth,
स्वरूप होते दुखाः स दिलेले
in the hospital setting,
भिन्न होते.
lined with tubes and beeping machines
बीप बीप करणारी यंत्रे
even when the patient's life has.
रुग्णाच्या मृत्यू नंतरही विझत नाहीत
the body's whisked away,
ते हलवितात.
had never really existed.
अतित्व नाही.
in the name of sterility,
within those walls is numbness --
एक आशेचा किरण दिसतो.
the opposite of aesthetic.
सौदर्याच्या अगदी विरुद्ध
I am alive because of them.
मी आज त्यामुळेच जिवंत आहे.
फार चर्चा करतो.
and treatable illness.
अपघाताच्या उपचारासाठी असतात.
that's not what they were designed for.
करण्यासाठी वा मुत्युसाठी खचितच नसते.
giving up on the notion
जाचक कल्पना मांडत नाही.
can become more humane.
रुग्णांवर उपचार करीत असे.
in Livingston, New Jersey,
सेंट बर्नाबास हॉस्पिटलात
great care at every turn,
palliative care for my pain.
complaining about driving through it.
गाडी चालविण्यास उत्सुक नव्हती
coming down all sticky.
आपण भिजलो आहोत बर्फात
smuggled in a snowball for me.
बर्फाचा गोळा आणला
holding that in my hand,
जळालेल्याच्या वेदना नाहीश्या झाल्या
onto my burning skin;
and turn into water.
in this universe mattered more to me
भाग राहीन
all the inspiration I needed
मला खूपच प्रेरणा मिळाली.
and be OK if I did not.
I've known many people
मी अनेकांना ओळखतो
some final peace or transcendence,
by what their lives had become --
living with chronic and terminal illness,
or prepared for this silver tsunami.
आम्ही तयार नव्हतो.
dynamic enough to handle
आवश्यक होती.
something new, something vital.
for designers of all stripes to work with.
who are closer to death:
लोकांसाठी काय महत्वाचे असते
and unburdening to those they love;
ओझे नसून ही भावना आराम व प्रेम
of wonderment and spirituality.
from our residents in subtle detail.
one day to the next due to ALS.
श्वास घेण्यास तिला अडचण येई
while she has them.
समाधान घेऊ इच्छित होती.
at the foot of her bed,
तिच्या पायाशी लोळत आहे.
स्पर्श करतो.
coursing through her veins --
तिला हे महत्वाचे वाटे.
where in a moment, in an instant,
loving our time by way of the senses,
काळावर प्रेम करणे
doing the living and the dying.
शरीर मरण व जीवन जगात असते.
is our kitchen,
आमचे स्वयंपाकघर होते.
can eat very little, if anything at all.
sustenance on several levels:
मार्गाने शरीर पश्नाचे काम करीत असू.
happening under our roof,
interventions we know of,
the possibility of accessing
living and dying with dementia.
ती मोलाची असते.
the things we don't have words for,
वर्तमानकाळात ठेवते.
of the system was our first design cue,
उभी करणे हे आमचे काम
by way of the senses,
देण्याचा प्रयत्न
the aesthetic realm --
and final bit for today;
to set our sights on well-being,
आपला दृशिकोन उंचावला पाहिजे
more wonderful,
or human-centered model of care,
मानवी चेहरा असलेली आरोग्यकेंद्रे
becomes a creative, generative,
नवनिर्मिती ठरेल.
highest forms of adaptation.
उच्च दर्जाचा सुधार आहे मानवी उत्क्रांतीत
it takes to be human.
त्यातून पाककला जन्मली.
has given rise to architecture.
वास्तुशास्त्राचा उद्गम झाला .
is a necessary part of life,
we take a light approach to dying
गांभीर्य कमी करीत नाही.
any particular way of dying.
that cannot move,
त्याबद्दल आपणास काही करता य्रणार नाही.
we will all kneel there.
एके दिवशी त्यास शरण जावे लागेल.
to play itself all the way out --
getting out of the way,
a process of crescendo through to the end.
हळुवार वाढणारा आहे.
काहीजण यावर कार्यरत आहेत.
one way or another.
around this fact,
नव्याने जडण घडण करावी लागेल.
a shock of beauty or meaning
for a perfect moment,
सामोरे गेलो पाहिजे
ABOUT THE SPEAKER
BJ Miller - Palliative care physicianUsing empathy and a clear-eyed view of mortality, BJ Miller shines a light on healthcare’s most ignored facet: preparing for death.
Why you should listen
Palliative care specialist BJ Miller helps patients face their own deaths realistically, comfortably, and on their own terms. Miller is cultivating a model for palliative care organizations around the world, and emphasizing healthcare’s quixotic relationship to the inevitability of death. He is a hospice and palliative medicine physician and sees patients and families at the UCSF Helen Diller Family Comprehensive Cancer Center.
Miller’s passion for palliative care stems from personal experience -- a shock sustained while a Princeton undergraduate cost him three limbs and nearly killed him. But his experiences form the foundation of a hard-won empathy for patients who are running out of time.
BJ Miller | Speaker | TED.com